Qualidade de vida em irmãos autistas

Qualidade de vida em irmãos de crianças incluídas no espectro do autismo

“…However, it is observed that the self-reported QoL for these siblings was not as impaired as described in the literature (8,12,25) .…”

“…The present study had as initial hypothesis a decrease in self-reported QoL of siblings and caregivers of children included in the autism spectrum (8)(9)(10)(11)(12) . Demographic data were collected in order to obtain an overview of the families and select the participants of this study.…”

“…A thesis drawn from the study of 31 siblings of autistic children compared to a control group of children with specific disorders of speech articulation using the questionnaire of quality of life assessment in children and adolescents (AUQUEI), aimed to verify whether the three aspects involved in this disorder (communication, socialization and stereotyped behavior) would also be compromised in siblings aged 7 to 11 years and whether this influenced their QoL. The results showed impairment in QoL of siblings of autistic children, making clear the need for more attention and assistance to this population as well as further studies about this issue (8) . In the present study the domain with the lowest rate of satisfaction and the only one that presented difference was Environment in relation to the Physical and Psychological domains, showing the interference of this area in the QoL of the subjects in question.…”

“…A study with 40 autistic children reported that these children, in their perception of the world, are happy, regardless of their functional deficits, as they reported QoL indexes that were similar to those of normal children (7) . However, it is noticed in the literature that those who frequently suffer the consequences of the autism framework are their family members (5,(8)(9)(10)(11)(12) . Parents or caregivers of children included in the autism spectrum may face tensions and therefore could benefit from a family-centered treatment proposals (10) .…”