Qualitative Evaluation of a Pain Intensity Screen for Children with Severe Neurodevelopmental Disabilities

Parker, Joan; Belew, John

doi:10.1016/j.pmn.2011.08.009

Cited by 11 publications

(44 citation statements)

References 23 publications

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“…Pain being such a common and important feature of pathophysiology, it will be important to be able to recognise pain as a possible cause of emotional distress and not to presume that pain is absent when its presentation is atypical. The use of an analogue pain scale, or of an informant-report scale [ 12 , 13 ], may help such assessments.…”

Section: Discussionmentioning

confidence: 99%

Autism Spectrum Disorder and Amplified Pain

Clarke¹

2015

Case Reports in Psychiatry

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Among the core features of ASD, altered sensitivities in all modalities have been accorded increasing importance. Heightened sensitivity to pain and unusual expressions of and reaction to pain have not hitherto been widely recognised as a presenting feature of ASD in general paediatrics. Failure to recognise ASD as a common cause of pain can lead to late diagnosis, inappropriate treatment, distress, and further disability. Two cases are presented which illustrate the late presentation of Autism Spectrum Disorder (Asperger's Syndrome subtype) with chronic unusual pain. Conclusion. Pain in autism can be atypical in its experience and expression and for this reason may go unrecognised by physicians treating chronic pain disorders.

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Section: Discussionmentioning

confidence: 99%

Autism Spectrum Disorder and Amplified Pain

Clarke¹

2015

Case Reports in Psychiatry

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“…Although researchers recognize that pain in children with intellectual disabilities is a common and complex phenomenon, there are no standard educational components for caregivers or guardians of such children [23,24]. Our study focuses on information for parents and professionals that nonverbal children (1 to 6 years old) with paralytic syndromes may have chronic pain, and they should be monitored for pain that parents can use with a physical therapy professional.…”

Section: Discussionmentioning

confidence: 99%

Characteristics of the Psycho-Emotional State of Parents of Children With Paralytic Syndromes and Its Changes During Rehabilitation Measures

Orlova

2022

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Abstract. The current strategy for the treatment of chronic pain in children with paralytic syndromes and neurological lesions, defined by the WHO recommendations in 2012. These recommendations provide a multimodal approach of analgesia for the chronic pain treatment, including the widespread use of non-pharmacological methods and pharmacological therapy. Aim. Assessing the subjective vision of parents of children with paralytic syndromes regarding the impact of physical rehabilitation on chronic pain and their psycho-emotional state. Materials and methods. Data from 64 children and their mothers (64 persons) were included in the study. The age of the children ranged from 1 to 6 years, the median age was 3 years and 3 months. Results. The changed psycho-emotional state of parents of children with paralytic syndromes is determined. If the child has chronic pain, the parents: "Concern about the treatment of the child" is doubled (RR=2.1; p=0.0024), "Hyperopia of the child" - twice (RR=1.9; p=0.0094), "Intolerance to observe the suffering of the child" - one and a half times (RR=1.6; p=0.0017), and increases one and a half times "Sadness and anger when a child cries" (RR=1.5; p=0.0122), "Internal tension" (RR=1.5; p=0.0029), "Insomnia" (RR=1.5; p=0.0215), "Inability of the child to lead a normal image life "(RR=1.5; p=0.0035), "Search for compassion or understanding" (RR=1.5; p=0.0446), "Inner anxiety, feeling of possible trouble" (RR=1.5; p=0.0074). After receiving rehabilitation measures, the psycho-emotional state of the parents of children with paralytic syndromes was determined to decrease: "It is intolerable to observe the child's condition" decreased by 31.3% (p=0.0012); "Feelings of inner anxiety" decreased by 24.5% (p=0.0125); "I fall asleep badly due to the child's condition" decreased by 20.6% (p=0.0109); "Internal tension" decreased by 19.6% (p=0.0269); "Sleepless nights due to the condition of the child" decreased by 18.6% (p=0.0401). Conclusion.The authors consider that physical rehabilitation in children with paralytic syndromes reduces the incidence of moderate chronic pain and improves the emotional state of parents. So, we think that new approaches to rehabilitation should be applied with daily management of the children with paralytic syndromes’ needs and their families with increased psychological and social support. Perhaps the searching for new approaches that optimize more intensive and effective rehabilitation strategies using the family reserve will provide the potential for adaptability of nerve plasticity and recovery in such a contingent of children and prospects for the future.

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“…The r-FLACC is easy to apply in various inpatient settings and can be completed quickly, whereas the NCCPC-PV and the PPP are substantially more elaborate and cumbersome, with their many items and wide scoring ranges (Crosta et al , 2014). In addition to the above mentioned measures, pain assessment scales with more detailed information are established for the use in persons with IDD, such as the faces pain scale (FPS/FPS-R), the child facial coding system, the adult pain checklist-revised (NCAPC), and the tailored observation pain screen (Parker and Belew, 2013; Lotan et al , 2009; Hicks et al , 2001; Gilbert et al , 1999). The aforementioned PADS/PEP is a rather sophisticated measure, which assesses possible pain behavior based on a standardized clinical examination and was constructed for the use in adults with IDD and acute or chronic pain (Bodfish et al , 2006).…”

Section: Pain Assessment In Subjects With Rttmentioning

confidence: 99%

Pain in Rett syndrome: peculiarities in pain processing and expression, liability to pain causing disorders and diseases, and specific aspects of pain assessment

Martin

2017

Advances in Autism

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Purpose Diagnosing pain and pain inflicting diseases are crucial issues in the health care of individuals with intellectual and developmental disabilities. The purpose of this paper is to delineate possible peculiarities in pain perception, characterizing a syndrome-specific spectrum of pain causing diseases as well as particular features of pain expression in Rett syndrome (RTT). Design/methodology/approach A selective review of the literature on pain, dolorous disorders and diseases, molecular aspects of pain transduction, pain perception, and expression of painful conditions in RTT was undertaken. Findings RTT causing mutations in the methyl-CpG-binding protein 2 (MECP2) have an impact on various endogenous molecules modulating pain transmission. Individuals with RTT are specifically prone to numerous pathological states which can cause pain. By thorough observation/application of proper tools, it is possible to recognize painful states in persons with RTT. Originality/value This paper imparts empirical/evidence-based data on pain perception/transmission, possible syndrome-specific causes of pain and pain expression/assessment in RTT, with the objective of promoting the quality of clinical practice in this crucial issue.

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Qualitative Evaluation of a Pain Intensity Screen for Children with Severe Neurodevelopmental Disabilities

Cited by 11 publications

References 23 publications

Autism Spectrum Disorder and Amplified Pain

Autism Spectrum Disorder and Amplified Pain

Characteristics of the Psycho-Emotional State of Parents of Children With Paralytic Syndromes and Its Changes During Rehabilitation Measures

Pain in Rett syndrome: peculiarities in pain processing and expression, liability to pain causing disorders and diseases, and specific aspects of pain assessment

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