Quality of cancer care in Spain: recommendations of a patients' jury

Abstract

The aim of the study was to evaluate quality of cancer care in Spain through patient's views, experiences and perceptions; with the purpose of making recommendations to improve cancer care. A modified citizen's jury was organised with the participation of 30 members and four experts as witnesses. For 1 day jurors representing 13 of 17 Spanish Autonomous Communities were met to make recommendations for improving the quality of cancer care in Spain. Concerns were identified regarding care fragmentation, test delays, duplications and poor social and emotional support. Some recommendations highlighted the need to improve the access to psycho-oncology care as well as support in social care and counselling, addressing patients to specific care. Some strategies proposed by the jury included a 24-h call centre, continuity in palliative care and appropriate follow-up and support after the end of therapy. In conclusion, the experience of cancer should include access to multiple specialists, effective coordination of care, accurate information about the disease and treatment options, and timely attention to symptoms and psychosocial needs.

A narrative synthesis of the quality of cancer care and development of an integrated conceptual framework

“…These demonstrated improvements led to the adoption of reporting of medical errors, adverse events and near misses in health systems. Reporting also ACoSCo (2016), Arrighi, Blancafort, Jovell, and Navarro Rubio (2015), Barocas and Penson (2010), Burmeister et al (2016), Carrington, Weir, andSmith (2011), Edwards (2016) involves a subsequent analysis to better understand the circumstances and identify factors that contributed incidents, as well as analysing the probability of a similar incident occurring again. Improvements should be made on any system failures that have been identified to avoid future patient harm (Pamphilon, Apperley, Samson, Slaper-Cortenbach, & McGrath, 2009).…”

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Survivorship care plans in Spain: A need that cannot be postponed

“…More specifically, Spanish PCP Societies and the Spanish Society of Medical Oncology are seeking institutional and financing initiatives to make SCPs a short‐term reality (Feliu & Virizuela, ; Vivar, ). Also, patient associations claim that the care of survivors should be based on rehabilitation, and characterised by communication with health care providers and self‐management (Arrighi, Blancafort, Jovell, & Navarro Rubio, ; FECEC, ; Ferro & Prades, ).…”

“…More specifically, Spanish PCP Societies and the Spanish Society of Medical Oncology are seeking institutional and financing initiatives to make SCPs a short-term reality (Feliu & Virizuela, 2011;Vivar, 2010). Also, patient associations claim that the care of survivors should be based on rehabilitation, and characterised by communication with health care providers and self-management (Arrighi, Blancafort, Jovell, & Navarro Rubio, 2015;FECEC, 2010;Ferro & Prades, 2013). A recent Spanish study showed that although most cancer patients received follow-up at the hospital, they also visited their general practitioners for care of cancer-related morbidities (Ferro et al, 2014).…”

Measuring the costs of cancer treatment - what model should we use?

“…Arrighi et al . () report on a ‘patient jury’ approach; the paper provides fascinating insights into patient perspectives on cancer care in Spain. Stordeur et al .…”