Quality of life and other outcome measures in caregivers of patients with schizophrenia

Testart, J.; Richieri, Raphaëlle; Caqueo-Urízar, Alejandra; Lançon, Christophe; Auquier, Pascal; Boyer, Laurent

doi:10.1586/14737167.2013.838022

Cited by 12 publications

(11 citation statements)

References 46 publications

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“…The results of the study showed that half of the caregivers have poor to moderate QOL. This is consistent with the previous study conducted in India, France and Chile which found that caregiver QOL is low to moderate [4,6,28,30].…”

Section: Discussionsupporting

confidence: 93%

Relationship Between Caregivers’ Burden of Schizophrenia Patient with Their Quality of Life in Indonesia

Tristiana

Triantoro

Nihayati

et al. 2019

J. Psychosoc. Rehabil. Ment. Health

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This study aims to identify the relationship between caregiver burden of patients with schizophrenia and caregiver quality of life (QOL). A cross sectional study involving 222 caregivers patients with schizophrenia was conveniently recruited from the psychiatric clinic of a mental health hospital in Malang Indonesia. Caregiver Burden Inventory Scale and Schizophrenia Caregiver QOL was used to assess the level of burden and QOL among the caregivers respectively. Descriptive statistics was used to determine caregivers' socio-demographic characteristic and the level of caregivers' burden and QOL. Spearman Rho correlation test was conducted to determine the relationship of caregiver burden and caregiver QOL. About 59.6% of schizophrenia caregivers experienced moderate to severe level of burden. The results showed that there was a significant, strong and negative relationship between the caregiver burden and QOL (r = -0.434, p \ 0.001). Most of the participants reported emotional burden and moderate QOL especially psychological and physical QOL, well-being, relationships with friends, and material burden. The findings indicated the higher the caregiver burden, the lower the QOL experienced by family caregivers of individuals with schizophrenia. It is necessary to improve the mental health nursing services for schizophrenia caregivers by providing mental health counseling, and developing support groups for them.

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Section: Discussionsupporting

confidence: 93%

Relationship Between Caregivers’ Burden of Schizophrenia Patient with Their Quality of Life in Indonesia

Tristiana

Triantoro

Nihayati

et al. 2019

J. Psychosoc. Rehabil. Ment. Health

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“…The involvement of the caregivers in the development of the original version of the SCQ and its translations was essential. This is in the line with recent reviews which stress the need for tools with relevant content based on caregivers’ views [ 18 , 19 ].…”

Section: Discussionsupporting

confidence: 87%

Cross-cultural adaptation of the Schizophrenia Caregiver Questionnaire (SCQ) and the Caregiver Global Impression (CaGI) Scales in 11 languages

Rofail

Acquadro

Izquierdo³

et al. 2015

Health Qual Life Outcomes

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BackgroundThe Schizophrenia Caregiver Questionnaire (SCQ) was developed to provide a comprehensive view of caregivers’ subjective experiences of the impacts of caring for someone with schizophrenia. The Caregiver Global Impression (CaGI) scales were designed to assess their perception of the severity of the schizophrenia symptoms, of change in schizophrenia symptoms and in the experience of caring since the beginning of the study. The objectives of the study were to translate the SCQ and CaGI scales in 11 languages [French (Canada, France), English (Canada, UK, Australia), German (Germany), Italian (Italy), Spanish (Spain), Dutch (the Netherlands), Finnish (Finland), and Swedish (Sweden)], to present evidence that the translations capture the concepts of the original questionnaires and are well understood by caregivers of patients with schizophrenia in each target country.MethodsThe different language versions were developed using a standard or adjusted linguistic validation process fully complying with the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) recommended procedures.ResultsInterviews were conducted with 55 caregivers of patients with schizophrenia from 10 countries representing the 11 different languages. Participants ranged in age from 28 to 84 years and had 5 to 16 years of education. Women represented 69.1 % (38/55) of the sample. Fourteen out of the 32 items of the SCQ generated difficulties which were mostly of semantic origin (13 items). The translation of the CaGI scales did not raise any major difficulty. Only five out of the 55 caregivers had difficulty understanding the meaning of the translations of “degree” in the expressions “degree of change in experience of caring” and “degree of change in symptoms”.ConclusionsTranslations of the SCQ and CaGI scales into 11 languages adequately captured the concepts in the original English versions of the questionnaires, thereby demonstrating the conceptual, semantic, and cultural equivalence of each translation.

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“…Disruption and constraints in daily social, 3 , 10 , 21 - 23 work 10 , 18 and leisure activi-ties. 3 , 6 , 10 , 18 , 20 , 21 , 23 , 24 …”

Section: The Concept Of Burdenmentioning

confidence: 99%

“…Dejection, grief, 3 , 19 , 22 sadness, 3 , 21 crying and distress – leading to depression. 3 , 5 , 6 , 10 , 21 , 22 , 24 , 25 , 29 …”

Section: The Concept Of Burdenmentioning

confidence: 99%

Schizophrenia in a member of the family: Burden, expressed emotion and addressing the needs of the whole family

Lippi

2016

S. Afr. J. Psych.

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How often do we find ourselves concentrating so much on treating a patient with schizophrenia that we forget about the needs and difficulties of the family members who take care of that patient? This article highlights the global and specific difficulties that families and caregivers experience in having to care for chronically ill family members with schizophrenia with a backdrop of continuing global deinstitutionalisation of such patients. Matters such as burden and expressed emotion are explored, family-specific interventions are discussed and areas of service delivery and resource inadequacies are identified.

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Quality of life and other outcome measures in caregivers of patients with schizophrenia

Cited by 12 publications

References 46 publications

Relationship Between Caregivers’ Burden of Schizophrenia Patient with Their Quality of Life in Indonesia

Relationship Between Caregivers’ Burden of Schizophrenia Patient with Their Quality of Life in Indonesia

Cross-cultural adaptation of the Schizophrenia Caregiver Questionnaire (SCQ) and the Caregiver Global Impression (CaGI) Scales in 11 languages

Schizophrenia in a member of the family: Burden, expressed emotion and addressing the needs of the whole family

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