Quality of life and psychosocial functioning of HIV infected children

Das, Sebi; Mukherjee, Aparna; Lodha, Rakesh; Vatsa, Manju

doi:10.1007/s12098-010-0087-0

Cited by 25 publications

(28 citation statements)

References 21 publications

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“…This was in accordance with multiple prior published studies, which reported that HIV infection significantly compromised HRQoL in children [20,29,30]. In the Indian context, HIV-related discrimination is often not limited to the infected individual, and social ostracism frequently involves the entire family [31].…”

Section: Discussionsupporting

confidence: 90%

Health-related quality of life (HRQoL) and its correlates among community-recruited children living with HIV and uninfected children born to HIV-infected parents in West Bengal, India

et al. 2017

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Purpose Helping children living with HIV (CLH) to attain an optimum quality of life is an important goal for HIV programs around the world. Our principal objectives were to determine the association of HIV infection with different domains of health-related quality of life (HRQoL) among 8- to 15-year-old CLH in India and to compare the HRQoL parameters between CLH and HIV-negative children born to HIV-infected parents (“HIV-affected”). We also assessed whether anti-retroviral therapy (ART) and CD4 lymphocyte counts were associated with HRQoL among CLH. Methods Using the “Quality of Life (health-related) of Children Living with HIV/AIDS in India (QOL-CHAI)” instrument, we interviewed 199 CLH and 194 HIV-affected children from three districts of West Bengal, India. Participants were asked to quantify the difficulties faced by them in six HRQoL domains: physical, emotional, social, school functioning, symptoms, and discrimination. Results The mean age of the participants was 11.6 (SD±2.5) years. CLH, compared to HIV-affected children, had poorer scores on all HRQoL domains except ‘discrimination’. Among CLH, there were no significant differences in HRQoL domain scores (except in the ‘discrimination’ domain) between ART-treated and -untreated groups. CD4 lymphocyte count was found to be a significant positive predictor of the ‘symptom’ scale score. Conclusions In India, interventions for CLH mostly focus on biological disease. However, the current study revealed that HRQoL among CLH was much poorer than that of a socio-demographically comparable group. Culturally and developmentally appropriate psychosocial support measures for Indian CLH are urgently needed. Health-related quality of life (HRQoL) and its correlates among community-recruited children living with HIV and uninfected children born to HIV-infected parents in West Bengal, India

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Section: Discussionsupporting

confidence: 90%

Health-related quality of life (HRQoL) and its correlates among community-recruited children living with HIV and uninfected children born to HIV-infected parents in West Bengal, India

et al. 2017

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“…Parent proxy report of PedsQL TM 4.0 Generic Core (Hindi) was used for assessment of HRQOL of retinoblastoma survivors and siblings. The Hindi version of this questionnaire has been validated previously . The questionnaire consists of four essential core domains for pediatric HRQOL measurement: physical (eight items), emotional (five items), social (five items), and school (five items) .…”

Section: Methodsmentioning

confidence: 99%

Parents’ Perspective of Quality of Life of Retinoblastoma Survivors

Batra

Kain

Kumari

et al. 2016

Pediatric Blood & Cancer

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Health-related quality of life (HRQOL) in retinoblastoma survivors was assessed using parent proxy report of PedsQL(TM) 4.0 generic core scale. One hundred twenty-two parents of retinoblastoma survivors filled the questionnaire satisfactorily. This was compared with parent-reported HRQOL of 50 siblings. The median age of survivors was 98 (range, 60-247) months and male:female ratio was 2:1. The overall parent-reported HRQOL was significantly worse in survivors as compared to controls (74.4 ± 8.5 vs. 85.1 ± 4.6, P < 0.001). All health domains were significantly affected when compared with controls. None of the baseline and treatment-related factors predicted HRQOL.

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“…4 Even though the survival was prolonged by ART there are at risk of impaired psychosocial functioning as their lower scores on total competence in youth (11-18 years) self report. 9 In contrast a quality of life study conducted among Indian children revealed that they have a better psychosocial and school functioning scores than children with cystic fibrosis 5 HIV children with normal CD4 count and undetectable viral load had school (51%) and dropout (28.6%), 10 they have compromised executive function and information processing, 11 81% systematic review reported some form of cognitive delay. 12 Children aged between 9-16 years in a study reported two third of the youth had met the criteria for at least one psychiatric disorder based on their youth versions of diagnostic interview schedule for children (DISC -IV).…”

Section: Discussionmentioning

confidence: 96%

“…3 The quality of life assessment studies among the children with HIV infection showed that their physical, psychosocial and school functioning was affected. [4][5][6] People living with AIDS and cancer experience stress, stress influences the number of immune cells and cytokine dysregulation. The practice of yoga, meditation, muscle relaxation, hypnosis was shown the effect of reducing the psychological and physiological effect of stress in cancers and HIV infection.…”

Section: Introductionmentioning

confidence: 99%

Effectiveness of Spirulina Supplement and Selected Yogasanas on Quality of Life of Children With Hiv Infection

Prabhavathi¹,

Nalini²,

Sethu³

2016

Int. J. Res. Ayurveda Pharm.

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The present study was aimed to evaluate the effectiveness of spirulina supplement and selected yogasanas on quality of life of children with HIV infection. Two hundred children with HIV infection aged between 5 and 18 years belong to both sexes participated in the study hundred children were chosen for both experimental and control groups. Commercially available and ISO certified spirulina food supplement was used in the study. Selected yogasnas such as tadasana (standing pose), trikonasana (triangle pose), padmasana (lotus pose), vajrasana, yogamudra and shavasana (corpse pose) were practiced by the participants under supervision of experts. The domains of quality of life scores also showed a significant change in all comparisons of pretest and posttests of experimental group with the control group and between the experimental and control group of both parent reported scores and self reported scores except the self reported psychosocial summary scores in post test II. The interventions that the spirulina supplement and selected yogasanas would have had a significant impact on the physiological parameters and the quality of life of children with HIV infection/AIDS.

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Quality of life and psychosocial functioning of HIV infected children

Abstract: The quality of life and psychosocial functioning is reasonably good in children with HIV infection. Thus, we should strive to maintain and optimize the overall quality of life of these children so that they can have a productive and meaningful future.

Cited by 25 publications

References 21 publications

Health-related quality of life (HRQoL) and its correlates among community-recruited children living with HIV and uninfected children born to HIV-infected parents in West Bengal, India

Health-related quality of life (HRQoL) and its correlates among community-recruited children living with HIV and uninfected children born to HIV-infected parents in West Bengal, India

Parents’ Perspective of Quality of Life of Retinoblastoma Survivors

Effectiveness of Spirulina Supplement and Selected Yogasanas on Quality of Life of Children With Hiv Infection

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