Quality of life and sexual satisfaction in women suffering from endometriosis: An Italian preliminary study

Giuliani, Marta; Cosmi, Valentina De; Pierleoni, Luca; Recine, Alessandra; Pieroni, Michela; Ticino, Adele; Porpora, Maria Grazia; Simonelli, Chiara

doi:10.1016/j.sexol.2015.03.004

Cited by 31 publications

(25 citation statements)

References 46 publications

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“…This is consistent with the results obtained by McPeak et al, who found that women with endometriosis rate their QoL lower as a result of the pain associated with the condition [38]. In turn, a study by Giuliani et al did not confirm the hypothesis that increased pain intensity results in a lower overall QoL [39].…”

Section: Discussionsupporting

confidence: 86%

Quality of life in women with endometriosis: a cross-sectional survey

et al. 2020

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Purpose The aim of the study was to assess QoL and identify and analyse its determinants in women with endometriosis. Methods The study was performed in 2019 in health centres in Lublin (Poland) on 309 women with diagnosed endometriosis. In order to verify which factors affect QoL of the study participants, regression for qualitative variables (CATREG) was used. The applied research instruments included the WHOQOL-BREF quality of life questionnaire, the Acceptance of Illness Scale (AIS), the Laitinen Pain Scale, and a general questionnaire. Results The overall QoL score of the respondents was 3.30, whereas their overall perceived health score was 2.37. The highest QoL scores were found for the psychological domain 13.33, whereas the lowest QoL were found for the physical domain 11.52. Women with endometriosis have a moderate level of illness acceptance (24.64) and experience daily pain of moderate intensity (5.83). Conclusion Women with endometriosis rate their overall QoL higher than their overall perceived health. Perceived QoL in women with endometriosis is most commonly associated with their acceptance of illness, BMI, negative impact of symptoms on the relationship with the partner, and dyspareunia. To improve these women’s lives, care should also respond to the social, emotional, and sexual issues resulting from the illness. Such interventions will contribute to improved comfort and QoL among these women.

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Section: Discussionsupporting

confidence: 86%

Quality of life in women with endometriosis: a cross-sectional survey

et al. 2020

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“…Problems with day-to-day functioning of endometriosis patients have been previously documented 71 , and the associated loss of productivity and reduced quality of life is well known in the literature. However, evaluating the differences among patient subgroups is yet unexplored [71][72][73] . Here, we find that "Bad days" and "Poor health" reports-in the Phendo app, as well as in the WERF survey -are uniquely associated with phenotype A, while participants in other phenotypes don't report such negative experiences.…”

Section: Discussionmentioning

confidence: 99%

Learning endometriosis phenotypes from patient-generated data

2020

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Endometriosis is a systemic and chronic condition in women of childbearing age, yet a highly enigmatic disease with unresolved questions: there are no known biomarkers, nor established clinical stages. We here investigate the use of patient-generated health data and data-driven phenotyping to characterize endometriosis patient subtypes, based on their reported signs and symptoms. We aim at unsupervised learning of endometriosis phenotypes using self-tracking data from personal smartphones. We leverage data from an observational research study of over 4000 women with endometriosis that track their condition over more than 2 years. We extend a classical mixed-membership model to accommodate the idiosyncrasies of the data at hand, i.e., the multimodality and uncertainty of the self-tracked variables. The proposed method, by jointly modeling a wide range of observations (i.e., participant symptoms, quality of life, treatments), identifies clinically relevant endometriosis subtypes. Experiments show that our method is robust to different hyperparameter choices and the biases of self-tracking data (e.g., the wide variations in tracking frequency among participants). With this work, we show the promise of unsupervised learning of endometriosis subtypes from self-tracked data, as learned phenotypes align well with what is already known about the disease, but also suggest new clinically actionable findings. More generally, we argue that a continued research effort on unsupervised phenotyping methods with patient-generated health data via new mobile and digital technologies will have significant impact on the study of enigmatic diseases in particular, and health in general.

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“…Endometriosis has multifactorial etiology which includes: genetic predisposition, immune system abnormalities, anatomical and environmental factors (Begum and Chowdhury, 2013;Lagana et al 2017). Endometriosis can be staged I-IV (I-minimal, II-mild, III-moderate, and IV severe) according to the American Society of Reproductive Medicine, based on; the location, extent, and depth of endometrial implants, a presence and severity of adhesions and size of ovarian endometriom (Giuliani, 2016).…”

Section: Introductionmentioning

confidence: 99%

Effect of an Educational Intervention on Quality of Life and Sexual Function in Women with Endometriosis

Sayed¹,

Aboud²

2018

IJSN

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Aim of the study was to investigate the effect of an educational intervention on quality of life and sexual function in women with endometriosis. Design: Quasi experimental time series research design. Setting: obstetrics and gynecology outpatient clinic affiliated to Benha University Hospital and Benha teaching Hospital. Sample: A purposive sample of 138 women diagnosed with endometriosis was eligible in the study and assigned equally into study and control groups. Tools for data collection: A structured interviewing questionnaire, Endometriosis Health Profile Questionnaire-30 and Sexual Health Outcomes in Women Questionnaire. Results: There was no statistically significant difference between both groups regarding demographic and obstetrical characteristics (p ˃ 0.05). Before implementation of educational intervention, the mean scores of total EHP-30 and SHOW-Q showed impaired quality of life and sexual function in the both groups (p ˃ 0.05). After one and two months of educational intervention implementation, mean total score of EHP-30 was significantly lowered in the study group compared with the control group. The mean scores of satisfaction, orgasm, and desire subscales were significantly higher in study group compared with control group. Whereas, the mean score of the pelvic problem interference subscale was significantly lower in study group compared with control group (p ≤ 0.001). Conclusion: The educational intervention about endometriosis has significant effect on the improvement of women's quality of life and sexual function. Recommendation: Provide health educational program for women with endometriosis to improve quality of life as well as sexual function.

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Quality of life and sexual satisfaction in women suffering from endometriosis: An Italian preliminary study

Cited by 31 publications

References 46 publications

Quality of life in women with endometriosis: a cross-sectional survey

Quality of life in women with endometriosis: a cross-sectional survey

Learning endometriosis phenotypes from patient-generated data

Effect of an Educational Intervention on Quality of Life and Sexual Function in Women with Endometriosis

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