Quality of life aspects in kidney cancer patients: data from a national registry

Anastasiadis, Aristotelis G.; Davis, Anne R.; Sawczuk, Ihor S.; Fleming, Megan; Perelman, Michael A.; Burchardt, Martin; Shabsigh, Ridwan

doi:10.1007/s00520-003-0484-2

Cited by 30 publications

(19 citation statements)

References 12 publications

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“…Studies to date have documented unmet informational and supportive care (psychological, emotional, and social) needs in patients with kidney cancer and suggest that the treatment of kidney cancer can impact negatively on physical and psychosocial functioning; [51][52][53] however, as with other cancer types, there remains a need for rigorous research regarding the optimal approach to supportive care needs assessment. 54 The provision of supportive care interventions (i.e., patient education, psychosocial support, palliative care, rehabilitation) have the potential to improve patient outcomes, 55 but have not yet been developed or tested in this population.…”

Section: Assessment Of Supportive Care Needs and Appropriate Supportimentioning

confidence: 99%

“…63,64 Some examples of proposed decision aids that could be developed for patients diagnosed with kidney cancer include the use of cytoreductive nephrectomy for newly diagnosed metastatic disease and options for management of small renal masses. 52,[59][60][61][62][63][64] Evaluate the impact of differences in regional funding and access to treatment on patient outcomes for kidney cancer (Priority 9)…”

Section: Research Priorities and Kidney Cancermentioning

confidence: 99%

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The kidney cancer research priority-setting partnership: Identifying the top 10 research priorities as defined by patients, caregivers, and expert clinicians

Jones

Bhatt²,

Avery³

et al. 2017

CUAJ

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It is critically important to define disease-specific research priorities to better allocate limited resources. There is growing recognition of the value of involving patients and caregivers, as well as expert clinicians in this process. To our knowledge, this has not been done this way for kidney cancer. Using the transparent and inclusive process established by the James Lind Alliance, the Kidney Cancer Research Network of Canada (KCRNC) sponsored a collaborative consensus-based priority-setting partnership (PSP) to identify research priorities in the management of kidney cancer. The final result was identification of 10 research priorities for kidney cancer, which are discussed in the context of current initiatives and gaps in knowledge. This process provided a systematic and effective way to collaboratively establish research priorities with patients, caregivers, and clinicians, and provides a valuable resource for researchers and funding agencies.

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Section: Assessment Of Supportive Care Needs and Appropriate Supportimentioning

confidence: 99%

Section: Research Priorities and Kidney Cancermentioning

confidence: 99%

The kidney cancer research priority-setting partnership: Identifying the top 10 research priorities as defined by patients, caregivers, and expert clinicians

Jones

Bhatt²,

Avery³

et al. 2017

CUAJ

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“…Many studies utilize populations that vary widely in terms of time since diagnosis 3,4,21 or have limited data on diagnosis and treatment. 21,60 Finally, few studies have included survivors at multiple, well-defined time points postdiagnosis, hindering the ability to make comparisons of survivors at different phases of survivorship. Even fewer studies have enrolled cohorts of survivors who are followed longitudinally through the survivorship continuum.…”

mentioning

confidence: 99%

The rationale, design, and implementation of the American Cancer Society's studies of cancer survivors

Smith

Stein

Mehta

et al. 2006

Cancer

194

186

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The American Cancer Society (ACS) defines cancer survivorship as beginning at diagnosis with cancer and continuing for the balance of life and views quality of life (QOL) as a key outcome. In this article, the authors describe the rationale, methodology, and sample characteristics of the 2 ACS Studies of Cancer Survivors (SCS): 1) a longitudinal study identifying and surveying survivors approximately 1 year postdiagnosis that includes plans to resurvey the panel at 2 years, 7 years, and 12 years postdiagnosis to identify predictors of QOL; and 2) a cross-sectional study of QOL among 3 separate cohorts of survivors who were approximately 3 years, 6 years, and 11 years postdiagnosis at the time of data collection. Survivors of prostate, breast, lung, colorectal, bladder, skin, kidney, ovarian, and uterine cancers and of non-Hodgkin lymphoma were sampled from 25 different central cancer registries, with African-American and Hispanic survivors over sampled. Survivors completed either mail or telephone surveys that described their physical, psychological, social, and spiritual functioning.The overall recruitment rate was 34.0%; 15411 participants completed surveys, of whom 40.1% had a high school education or less and 19.4% were racial/ethnic minorities. The SCS surveys provide a large diagnostically, geographically, and demographically diverse database on cancer survivorship that was designed to overcome some of the limitations of past research. Future reports will compare QOL of survivors at different well-defined times postdiagnosis, investigate the issues of understudied populations and diagnostic groups, and describe survivor QOL at state levels. Insights valuable to those considering registrybased studies are offered on issues of ascertainment, sampling, and recruitment.

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“…Anastasiadis et al. (2003) performed a cross‐sectional survey of kidney cancer patients of all stages.…”

Section: Resultsmentioning

confidence: 99%

“…Patients with RCC did have a lower QoL than the general population and similar or worse than patients with hypertension or type II diabetes. Anastasiadis et al (2003) performed a cross-sectional survey of kidney cancer patients of all stages. QoL was assessed using the SF-12 (results were slightly lower than the general population).…”

Section: Surgical Treatmentmentioning

confidence: 99%

A review of the literature on the impact of renal cancer therapy on quality of life

Bird

Hayter²

2009

Journal of Clinical Nursing

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Quality of life aspects in kidney cancer patients: data from a national registry

Cited by 30 publications

References 12 publications

The kidney cancer research priority-setting partnership: Identifying the top 10 research priorities as defined by patients, caregivers, and expert clinicians

The kidney cancer research priority-setting partnership: Identifying the top 10 research priorities as defined by patients, caregivers, and expert clinicians

The rationale, design, and implementation of the American Cancer Society's studies of cancer survivors

A review of the literature on the impact of renal cancer therapy on quality of life

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