Quality of life in Chinese family caregivers for elderly people with chronic diseases

Xie, Hui; Cheng, Cheng; Tao, Yisheng; Zhang, Jie; Delprino, Robert; Jia, Jihui; Su, Yonggang

doi:10.1186/s12955-016-0504-9

Cited by 85 publications

(114 citation statements)

References 27 publications

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“…Surprisingly, most caregivers of dialysis patients in our study were their spouses rather than children. This is different to the profile of Chinese caregivers of older adults who were more likely to be children or children‐in‐law than a spouse . However, in these studies, the recipients of care were at least 10 years older than the dialysis cohort in our study.…”

Section: Discussioncontrasting

confidence: 82%

“…Other predictors of poorer caregiver QOL among Chinese caregivers of the elderly include higher subjective caregiver burden, lower income, spousal caregivers and multiple chronic illnesses and higher dependency among the cared for elderly . Another Chinese study found caregiver age had the greatest impact on PCS and caregiver social lives had the greatest impact on MCS . Previous studies have shown a higher depression score with lower caregiver income, a direct relationship between dialysis patient and caregiver depression score, younger caregiver age associated with poorer physical QOL, and less social support predicted worse mental QOL …”

Section: Discussionmentioning

confidence: 99%

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Quality of life in caregivers compared with dialysis recipients: The Co‐ACTIVE sub‐study of the ACTIVE dialysis trial

et al. 2019

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The authors compared quality of life (QOL) of caregivers of dialysis patients versus that of the patients themselves and found that the former had higher physical and equivalent mental QOL but poorer personal well-being than the Chinese population norm. ABSTRACT:Aim: To compare quality of life (QOL) of caregivers of dialysis patients with the cared for patients and population norms.Methods: The ACTIVE Dialysis study randomized participants to extended (median 24 h/week) or standard (median 12 h/week) haemodialysis hours for 12 months. A subgroup of participants and their nominated caregivers completed QOL questionnaires including the EuroQOL-5 Dimension-3 Level (EQ5D-3 L), short form-36 (SF-36, also allowing estimation of the SF-6D), as well as a bespoke questionnaire and the personal wellbeing index (PWI). Caregiver QOL was compared with dialysis patient QOL and predictors of caregiver QOL were determined using multivariable regression.Results: There were 54 patients and caregiver pairs, predominantly from China. Caregivers mean (SD) age was 53.4 (11.3) years, 60% were female, 71% cared for their spouse/partner, and 36% were educated to university level. Caregivers had better physical but similar mental QOL compared with dialysis patients (mean SF-36 physical component summary: 46.9 AE 8.7 vs 40.4 AE 10.2, P < 0.001; mental component summary: 47.8 AE 9.7 vs 49.6 AE 12.0, P = 0.84). Health utility measured with EQ5D-3 L was not significantly different between caregivers and dialysis patients (mean 0.869 AE 0.185 vs 0.798 AE 0.227, P = 0.083). Caregiver PWI was 43.7 AE 15.5, significantly lower than the Chinese population norm (68.2 AE 14.2, P < 0.001). Higher physical and mental QOL among caregivers was predicted by university education but not age, gender or daily hours caring.Conclusion: Caregivers have higher physical and equivalent mental QOL to dialysis patients but poorer personal well-being than the Chinese population. University education predicts better QOL and may be a surrogate for socioeconomic or other factors. (NCT00649298).In the United States, there are an estimated 14.7 million family and unpaid caregivers assisting 7.7 million communitydwelling people with disabilities. 1 In Australia, an estimated 1 in 8 of the population (2.86 million people) provide informal care for an average of 13 h each week, and if replaced with formal caregivers would cost the equivalent of 3.8% of gross domestic product. 2 Caregiving also has significant financial impact on the caregiver. In the United States, 78% of caregivers incur out-of-pocket expenses averaging US$6954 annually. 3 This burden falls disproportionately on the poor,

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Section: Discussioncontrasting

confidence: 82%

Section: Discussionmentioning

confidence: 99%

Quality of life in caregivers compared with dialysis recipients: The Co‐ACTIVE sub‐study of the ACTIVE dialysis trial

et al. 2019

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“…The findings of this study showed that nursing workers had better self‐reported physical health status and worse MH status compared with general population reference values (Wang, ). However, relatively better physical well‐being may have been one of the reasons for taking this job (Xie et al, ). As noted, a difference of more than three points was clinically meaningful (Ware Jr. & Sherbourne, ); therefore, nursing workers in the present study were mentally vulnerable regarding their VT and MH scores.…”

Section: Discussionmentioning

confidence: 99%

The health‐related quality of life of nursing workers: A cross‐sectional study in medical institutions

Kong

Song³

et al. 2019

Int J of Nursing Practice

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Aims This study aimed to evaluate the health‐related quality of life of nursing workers and influential factors. Background Nursing workers are under great occupational stress. However, few population‐level studies of nursing workers' health conditions have been reported from China. Design This was a cross‐sectional study conducted in 12 medical institutions in east China between January and March 2015. Methods Social‐demographic information, nursing workers' work‐related information and health‐related quality of life using the Chinese (mainland) version of the Short Form 36 health survey were collected by a self‐administrated questionnaire. Results Nursing workers reported significantly lower scores of the vitality, mental health dimensions, and mental component summary of the Short Form 36 survey compared with general population reference values. They scored significantly higher for five other dimensions and comparably for the physical role dimension. Pre‐job training, families' positive attitudes to their job, and good relationships with clients were positively related with nursing workers' mental well‐being. Conclusion To promote nursing workers' mental health, compulsory work‐related training, voluntary psychological counselling, and targeted legislation are needed.

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“…Age was also associated with caregiver burden for all family members. Older people have less than optimal physical health and social functioning while younger caregivers engage in more social activates as a relaxation from the stressful caregiving role (Xie et al, 2016). Older caregivers may need more help and resources in order to perform caregiver role within the family.…”

Section: Discussionmentioning

confidence: 99%

Spousal role and caregiver burden in HIV affected families in Anhui Province, China

Hsieh¹,

Li²,

Lin³

et al. 2017

AIDS Care

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This study examined the burden experienced by various roles of family caregivers of people living with HIV (PLH), in particular spouses vs. non-spouses. A total of 475 family members of PLH were recruited from Anhui Province, China. Participants responded to a survey using the Computer Assisted Personal Interview method. The assessment collected data on demographic characteristics and their perceived caregiver burden, which was compared between spouses and non-spouses. Multiple regression models were built to identify factors associated with caregiver burden. About 64.4% of our study participants were female and the mean age was 42.1 years. Among various relationships to PLH, almost half reported being a spouse. Spouses reported significantly higher caregiver burden than non-spouses. In addition, older age and lower family income were significantly associated with higher level of caregiver burden. Among the subsample of spouses, significantly higher level of caregiver burden was identified among wives. Future studies should give special consideration to address the needs of female spouses in order to reduce their caregiver burden.

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Quality of life in Chinese family caregivers for elderly people with chronic diseases

Cited by 85 publications

References 27 publications

Quality of life in caregivers compared with dialysis recipients: The Co‐ACTIVE sub‐study of the ACTIVE dialysis trial

Quality of life in caregivers compared with dialysis recipients: The Co‐ACTIVE sub‐study of the ACTIVE dialysis trial

The health‐related quality of life of nursing workers: A cross‐sectional study in medical institutions

Spousal role and caregiver burden in HIV affected families in Anhui Province, China

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