Spousal role and caregiver burden in HIV affected families in Anhui Province, China

Hsieh, Julie; Li, Li; Lin, Chunqing; Luo, Sitong; Ji, Guoping

doi:10.1080/09540121.2017.1300631

Cited by 5 publications

(8 citation statements)

References 31 publications

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“…Older people in the family also have various duties, such as taking care of children, parents, other elderly people, chores and giving financial support to their family. Providing care for PLHA within the family is an additional duty (Hsieh et al, 2017). A program needs to be developed to equalise responsibilities and increase willingness to care for PLHA through education that caring for PLHA is the family's responsibility.…”

Section: Discussionmentioning

confidence: 99%

The determinants of willingness to care for people living with HIV‐AIDS: A cross‐sectional study in Indonesia

Sukartini

Nursalam

Arifin

2021

Health Soc Care Community

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The acceptance of people living with HIV-AIDS (PLHA) within the community is still a problem that should be highlighted and addressed (Fitriyani & Waluyo, 2019). Bringing attention to this problem could also have an impact on the community's willingness to help and care for PLHA (Stroumpouki et al., 2020). The operational definition of caring, in this case, not only refers to caring for PLHA who are sick but also to being willing to provide the support, attention, information, assistance and acceptance that allow PLHA to live healthily (Watson, 2002;You et al., 2013). PLHA become vulnerable because of their illness, so they have many needs. Moreover, the stigma within communities makes it very difficult for PLHA to obtain rights such as access to medical services, socialisation and improvements to their quality of life, such as through access to work (Alemu

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Section: Discussionmentioning

confidence: 99%

The determinants of willingness to care for people living with HIV‐AIDS: A cross‐sectional study in Indonesia

Sukartini

Nursalam

Arifin

2021

Health Soc Care Community

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“…This finding was in line with previous studies. 11 , 13 Older people have less than optimal physical health and social functioning, and need more physical strength and resource to take care of themselves. 11 , 37 Older caregivers experienced physical ailments and psychological problems including backache, sleepless night, social isolation due to caregiving activities.…”

Section: Discussionmentioning

confidence: 99%

“… 11 , 13 Older people have less than optimal physical health and social functioning, and need more physical strength and resource to take care of themselves. 11 , 37 Older caregivers experienced physical ailments and psychological problems including backache, sleepless night, social isolation due to caregiving activities. 12 , 13 The insufficient income, overwhelming needs and high expenditure related to caregiving caused financial burden for older caregivers.…”

Section: Discussionmentioning

confidence: 99%

“… 10 In China, informal caregivers, particularly family caregivers, take considerable responsibilities for providing care to PLWHA. 11 They provide health-related, psychosocial and physical care for PLWHA, such as accompanying relatives to hospitals, administering medication, encouraging and spending time with PLWHA, cooking, bathing, and washing. 12 Most family caregivers are untrained and often feel ill to take on caregiving tasks.…”

Section: Introductionmentioning

confidence: 99%

“… 24 Consequently, informal caregivers experience a high level of caregiver burden related to providing care for PLWHA. 11 , 13 …”

Section: Introductionmentioning

confidence: 99%

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Caregiver Burden Among Informal Caregivers of Persons Living with HIV/AIDS in Liangshan Prefecture, China

Song¹,

Wang²,

Yin³

et al. 2022

PPA

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Purpose Previous studies revealed that informal caregivers for persons living with HIV/AIDS (PLWHA) experience perceived caregiver burden. Although Liangshan prefecture is one of the areas with the fastest growing HIV/AIDS epidemics in China, little is known about burden of informal caregivers for PLWHA. This study aimed to evaluate caregiver burden and these predictors among informal caregivers of PLWHA in Liangshan prefecture, China. Methods This was a cross-sectional study conducted from August to December 2017. We used convenience sampling to recruit informal caregivers of PLWHA. A total of 222 participants completed questionnaires including demographic information, caregiving-related information, and caregiver burden (measured by Zarit Burden Interview, ZBI). SPSS software was used to analyze the data. Independent student’s t -test, one-way analysis of variance (one-way ANOVA), Spearman rank correlation, and multiple linear regression analysis were performed. Results The mean ZBI score was 40.61 (SD = 14.47), and 199 (89.6%) informal caregivers had a mild or above caregiver burden. Multiple linear regression analysis revealed that older age ( P =0.003), caregivers with poor health ( P =0.002), parent-caregivers ( P =0.001), poorer ability in ‘balancing caregiving needs and their own needs’ ( P <0.001), and ‘managing emotional needs’ ( P =0.014) were significantly associated with higher level of caregiver burden. Conclusion The majority of informal caregivers had perceived caregiver burden in Liangshan prefecture of China. Findings emphasize that health-care providers, medical institutions and government should develop educational programs and policy to improve caregiver’s ability to cope with caregiving for PLWHA, and take more attention to caregivers with health problem, at older age, parent-caregivers. These may contribute to reducing caregiver burden among informal caregivers of PLWHA.

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Mental Health Problems of Female Spouses of Men Living With HIV in Sichuan, China: A Qualitative Study

Cao

Wong

et al. 2020

J Assoc Nurses AIDS Care

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HIV disclosure to spouses can promote HIV prevention and facilitate support from those spouses; it can also cause mental health challenges for the spouses. We conducted a qualitative study of the mental health status and potential contributing factors of mental health challenges of spouses of men living with HIV in Sichuan, China. We interviewed 31 spouses whose husbands were living with HIV. Qualitative data were analyzed using content and thematic analyses. We found that mental health challenges were common among the spouses; leading challenges were themed as hopelessness, depression, and anxiety. Greater HIV knowledge, close relationship with husband, and psychological support may protect spouses from mental health challenges, whereas HIV-related stigma, heavy caregiving burden, and an unsupportive environment might be detrimental to mental health. Spouses of men living with HIV need mental health services, which should take into account a wide spectrum of contributors at individual, couple, and social levels.

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Spousal role and caregiver burden in HIV affected families in Anhui Province, China

Cited by 5 publications

References 31 publications

The determinants of willingness to care for people living with HIV‐AIDS: A cross‐sectional study in Indonesia

The determinants of willingness to care for people living with HIV‐AIDS: A cross‐sectional study in Indonesia

Caregiver Burden Among Informal Caregivers of Persons Living with HIV/AIDS in Liangshan Prefecture, China

Mental Health Problems of Female Spouses of Men Living With HIV in Sichuan, China: A Qualitative Study

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