Quality of life in hidradenitis suppurativa: A cross-sectional study of a pediatric population

McAndrew, Rachel; Lopes, Fabiana C P S; Sebastian, Kate; Diaz, Lucia Z.

doi:10.1016/j.jaad.2020.09.072

Cited by 10 publications

(18 citation statements)

References 5 publications

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“…QoL in cohabitants of patients with HS was independently studied in four studies from Poland, Italy, Spain and USA, using the Family Dermatology Life Quality Index (FDLQI) [ 60 , 61 , 62 , 63 ]. In the Polish study, the mean FDLQI for patients′ partners was 8.7 ± 6.8, indicating a moderate effect of HS on their lives.…”

Section: Resultsmentioning

confidence: 99%

“…The mean FDLQI scores for parents of children with HS in the US study was 9.9 (range 0–30). Caregivers’ lives were most impacted by the time spent caring for their child with HS and the personal emotional distress related to their child′s condition [ 63 ].…”

Section: Resultsmentioning

confidence: 99%

“…The average score of the Skindex-teen in children with HS was 45.7 (0–84). The greatest negative impacts on QoL were related to the appearance of the involved skin and to patients feeling frustrated by their HS [ 63 ].…”

Section: Resultsmentioning

confidence: 99%

“…Children with HS reported significant impact of HS on their lives. However, this impact may be less severe than that experienced by adult HS patients [ 63 , 64 ].…”

Section: Discussionmentioning

confidence: 99%

“…In the publications from 2019–2021 reviewed in this study, data were presented on many different aspects of the HRQoL impact of HS, including the impact on family members and the improvement in HRQoL that may result from effective treatment. Four studies from different countries reported a significant impact of HS on patients′ partners and family members [ 60 , 61 , 62 , 63 ]. The Family Dermatology Life Quality Index (FDLQI) scores in those studies ranged from 8.7 to 13.8 (FDLQI possible score range = 0 [no impact] to 30 [maximum impact]).…”

Section: Discussionmentioning

confidence: 99%

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Quality of Life in Hidradenitis Suppurativa: An Update

Chernyshov

Finlay

Tómas-Aragonés

et al. 2021

IJERPH

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Knowledge on hidradenitis suppurativa/acne inversa (HS) is rapidly increasing. HS has a profound impact on patients and their family life. Several factors, such as comorbidities, unemployment and HS severity, make this impact even more severe. The most widely used instrument to measure this impact is the dermatology-specific DLQI. We also identified six HS-specific health-related quality of life (HRQoL) instruments. Of them, HIDRAdisk, HSIA, HiSQOL and HSQoL-24 are better validated but there is still lack of experience of its use. Several treatment methods showed positive effect on patients’ HRQoL. Surgery remains a method with a substantial positive effect on HRQoL. Several studies confirming a positive effect of adalimumab on the HRQoL of patients with HS were published during the last three years. Data on the influence of several other biologics on HRQoL of HS patients are controversial or based on studies with a small number of patients.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

“…Children with HS reported significant impact of HS on their lives. However, this impact may be less severe than that experienced by adult HS patients [ 63 , 64 ].…”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Quality of Life in Hidradenitis Suppurativa: An Update

Chernyshov

Finlay

Tómas-Aragonés

et al. 2021

IJERPH

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Recognizing the Effects and Disparities of Pediatric Hidradenitis Suppurativa

Kirby

Zaenglein

2021

JAMA Dermatol

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Evaluation of Hidradenitis Suppurativa Diagnostic Criteria in Pediatric Patients

et al. 2022

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ImportanceHidradenitis suppurativa (HS) is associated with considerable diagnostic delay. Although most patients report adolescent onset, existing HS diagnostic criteria may not adequately capture disease in pediatric populations.ObjectivesTo determine the proportion of physician-diagnosed pediatric patients with HS who met diagnostic criteria, and describe demographics, disease characteristics, and diagnostic patterns among pediatric patients with HS.Design, Setting, and ParticipantsIn this retrospective, cross-sectional study, electronic medical records from 2 sites of a single academic tertiary care center were included. Eligible patients were those born after January 1, 1993, and assigned International Classification of Diseases, Ninth and Tenth Revisions (ICD-9/10) codes for HS (ICD-9 705.83/ICD-10 L73.2) between January 1, 2012, and July 1, 2021. Patients were excluded if they were older than 18 years at diagnosis, had inaccessible diagnostic visit notes, or were unintentionally assigned an HS ICD code.ExposuresPediatric patients with HS.Main Outcomes and MeasuresFulfillment of diagnostic criteria in pediatric patients with HS.ResultsA total of 297 adolescents with HS were included in the study; 123 patients were female (78.1%), 78 self-identified as Black (26.3%), and 116 self-identified as Hispanic (39.1%). The median (IQR) age at diagnosis was 14.0 (13.0-16.0) years. Documentation from the diagnostic visit demonstrated that 127 (42.8%) patients did not meet all 3 major HS diagnostic criteria. Of these patients, 122 (96.1%) did not meet the recurrence interval criterion (≥2 lesions within 6 months). Overall, 96 patients who did not meet the recurrence interval criterion had documentation from additional visits in the health system; 59 (61.5%) had documentation of 1 or more additional lesions consistent with HS. Review of these additional records demonstrated that 26 of these 59 (44.1%) patients met the recurrence interval criterion after diagnosis, and 44 (74.6%) had recurrent lesions within a 1-year interval (median, 6.5 months; interquartile range, 3.5-12.2 months). Medical chart review was conducted from November 22, 2021, to January 12, 2022. Analysis was conducted from January 12, 2022, to January 15, 2022.Conclusions and RelevanceOverall, 118 (40%) of 297 pediatric patients with HS in this retrospective cross-sectional study did not meet all major diagnostic criteria at the time of diagnosis, largely due to failure to fulfill the 6-month recurrence interval criterion. Future studies are needed to determine the appropriate recurrence interval to facilitate timely diagnosis and promote clinical trial eligibility for pediatric patients with HS.

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Quality of life in hidradenitis suppurativa: A cross-sectional study of a pediatric population

Cited by 10 publications

References 5 publications

Quality of Life in Hidradenitis Suppurativa: An Update

Quality of Life in Hidradenitis Suppurativa: An Update

Recognizing the Effects and Disparities of Pediatric Hidradenitis Suppurativa

Evaluation of Hidradenitis Suppurativa Diagnostic Criteria in Pediatric Patients

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