Quality of Life in People with Coeliac Disease: Psychological and Socio- Economic Aspects

Martinez-Martinez, María Isabel; Alegre-Martínez, Antoni; García-Ibánez, Jessica; Cauli, Omar

doi:10.2174/1871530318666180723100003

Cited by 19 publications

(17 citation statements)

References 43 publications

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“…Similar difficulties are also highlighted by other authors from other countries [ 5 , 7 , 13 , 23 ]. In Wolf et al studies, difficulties with eating outside the home were more frequently reported by teenagers than by adults (87% vs. 74%) [ 24 ]. In our study on teenagers, that was the main factor indicating the troublesome character of the diet.…”

Section: Discussionmentioning

confidence: 99%

“…Strict adherence to GFD is most common among patients with greater knowledge of their disease [ 24 ]. They are ‘extremely vigilant’ in selecting the right products.…”

Section: Discussionmentioning

confidence: 99%

“…They are more likely to experience anxiety and fatigue. Their quality of life (QoL) is significantly lower than that of patients who are ‘less vigilant’ in the choice of GFD [ 24 ]. This applies to teenagers as much as to adults, more often to women [ 27 ].…”

Section: Discussionmentioning

confidence: 99%

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Adherence to Gluten-Free Diet in Children with Celiac Disease

Czaja‐Bulsa

Bulsa

2018

Nutrients

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Celiac disease (CD) can only be treated by rigorous life-long gluten-free diet (GFD). The study included 102 mothers and their CD children treated with GFD for at least two years. Frequency and cause of diet failure in children treated at present (54 children) and 10 years ago (48 children) were compared. Dietary adherence was evaluated serologically (tTG), while diet management difficulties were examined by means of a questionnaire. The study shows that one-third of patients fail to follow GFD, more often 10 years ago than now (40% vs. 26%; p < 0.05), mainly children aged 13–18 (54% vs. 40% now; p < 0.05). Younger children (up to 12) are less likely to abandon the diet (27% vs. 8%; p < 0.05). In this age group non-intentional diet failure prevails, while teenagers interrupt their diet intentionally (45% vs. 33%; p = ns (small population of children in this groups)). Currently, the most common causes of teenage diet failure are the absence of symptoms after consuming a small amount of gluten and, even more often, troublesome diet administration. Previously, the absence of peer acceptance prevailed. With this study we found that: 1. In West Pomerania, every fourth CD child does not follow GFD. 2. For years, teenagers have failed to follow GFD due to the absence of symptoms after consuming small amounts of gluten. 3. The incidence of non-intentional failure to follow GFD has significantly decreased over years, which indicates better dietary care.

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Section: Discussionmentioning

confidence: 99%

“…Strict adherence to GFD is most common among patients with greater knowledge of their disease [ 24 ]. They are ‘extremely vigilant’ in selecting the right products.…”

Section: Discussionmentioning

confidence: 99%

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Adherence to Gluten-Free Diet in Children with Celiac Disease

Czaja‐Bulsa

Bulsa

2018

Nutrients

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“…Endoscopy waiting times were not in keeping with NICE guidelines of 6 weeks. 24 The significant negative correlation between delay till endoscopy and Marsh Grade of biopsy suggests that with greater wait time patients are more likely to self impose a GFD, likely in attempt to achieve the improved quality of life from switching to a GFD, 9,16,27 increasing the chance of a missed diagnosis. This means it is more likely for these borderline patients to need a repeat biopsy, which subjects these patients to persisting symptoms as they wait to go onto a GFD and causes distress due to clinical uncertainty and having to go through the endoscopy process.…”

Section: Discussionmentioning

confidence: 99%

Does Clinical Nihilism affect the diagnostic approach for patients with undiagnosed adult coeliac disease? A UK Multicentre study

Taylor

Sanders

Blanshard

et al. 2020

Preprint

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Background - Adult coeliac disease (CD) has delays in diagnosis but the reasons for this have not been explored. Methods - Group 1) Time from primary care presentation to diagnostic endoscopy was prospectively quantified in 151 adult patients with a positive endomysial antibody test and compared with the diagnostic pathway of 92 adult patients with suspected inflammatory bowel disease (IBD). Group 2) Across 4 hospitals over a 3-month period, duodenal biopsy reports for suspected CD were reviewed (n=1423). Group 3) 50 gastroenterologists completed questionnaires concerning their viewpoints on CD. Results - Group 1) Suspected coeliac patients waited significantly longer for diagnostic endoscopy following referral (48.5 [28-89] days) than suspected IBD patients (34.5 [18-70] days; p=0.003). Group 2) Of the 1423 patients that underwent diagnostic endoscopy for possible CD, 40.0% met the guidelines to take at least 4 biopsies. Diagnosis of CD was more likely if these guidelines were followed (10.1% vs 4.6% p<0.0001). 12.4% of newly diagnosed CD patients had at least 1 non-diagnostic gastroscopy in the 5 years prior to diagnosis. Group 3) 32.0% (16) of gastroenterologists failed to identify that CD has greater prevalence in adults than IBD. Moreover, 36.0% (18) of gastroenterologists felt that doctors were not required for the management of CD. Conclusion - Prolonged waiting times for endoscopy and inadequacies in biopsy technique suggest clinical inertia towards CD. This is exemplified by the nihilistic approach to the condition demonstrated in our qualitative data. This is the first study to demonstrate clinical inertia towards CD.

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“…The low peak bone mass achieved in adolescence is the cause of low traumatic fractures in adulthood (Abadie et al 2011). In any way, quality of life is deteriorated in all celiac patients (Martinez-Martinez et al 2018).…”

Section: Genetics Of Celiac Diseasementioning

confidence: 99%

Osteoporosis Complicating Some Inborn or Acquired Diseases

Žofková

Nemcikova²

2018

Physiol Res

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Osteoporosis in chronic diseases is very frequent and pathogenetically varied. It complicates the course of the underlying disease by the occurrence of fractures, which aggravate the quality of life and increase the mortality of patients from the underlying disease. The secondary deterioration of bone quality in chronic diseases, such as diabetes of type 1 and type 2 and/or other endocrine and metabolic disorders, as well as inflammatory diseases, including rheumatoid arthritis – are mostly associated with structural changes to collagen, altered bone turnover, increased cortical porosity and damage to the trabecular and cortical microarchitecture. Mechanisms of development of osteoporosis in some inborn or acquired disorders are discussed.

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Quality of Life in People with Coeliac Disease: Psychological and Socio- Economic Aspects

Abstract: Continuous health education and care regarding socio-economic issues should be continuously developed and provided to people with CD.

Cited by 19 publications

References 43 publications

Adherence to Gluten-Free Diet in Children with Celiac Disease

Adherence to Gluten-Free Diet in Children with Celiac Disease

Does Clinical Nihilism affect the diagnostic approach for patients with undiagnosed adult coeliac disease? A UK Multicentre study

Osteoporosis Complicating Some Inborn or Acquired Diseases

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