Quality of life of caregivers of persons with neurological disorder sequels

Ramírez-Perdomo, Claudia Andrea; Salazar-Parra, Yivi; Perdomo-Romero, Alix Yaneth

doi:10.1016/j.sedeng.2016.12.001

Cited by 4 publications

(4 citation statements)

References 21 publications

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“…The social dimension of the HRQOL had a low score (mean, 22; in a score range between 9 and 35). A similar result was obtained by a study conducted in a Colombian region with caregivers of people with neurological disorders (mean, 24; in a score range between 9 and 36) 27 . The caregivers in the study reported that they felt isolated and did not have enough time to go out or receive visits.…”

Section: Discussionsupporting

confidence: 85%

“…A similar result was obtained by a study conducted in a Colombian region with caregivers of people with neurological disorders (mean, 24; in a score range between 9 and 36). 27 The caregivers in the study reported that they felt isolated and did not have enough time to go out or receive visits. Because of the constant demands of care that need to be met with the utmost attention, caregivers' personal relationships are often affected.…”

Section: Discussionmentioning

confidence: 97%

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Health-Related Quality of Life in Primary Caregivers of People Receiving Palliative Home Care

Reina-Gamba

Medellin-Olaya

Burbano-Rivera

et al. 2022

J Hosp Palliat Nurs

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Primary caregivers face constant challenges because of changes in the clinical situation of the person receiving palliative home care. These changes can alter the health-related quality of life and all its dimensions. This study aimed to describe the health-related quality of life of 137 primary caregivers of people enrolled in a palliative home care program in Bogotá, Colombia, applying a quantitative, descriptive, and cross-sectional research design. The Caregiver's Quality of Life Instrument, initially developed by Ferrell, and the sociodemographic characteristics form for caregivers of people with chronic disease, both previously validated in the Colombian population, were used. The results showed that the primary caregivers have a good and adequate overall health-related quality of life; however, they presented some alterations in the physical, psychological, and social dimensions. Therefore, nursing and interdisciplinary palliative care teams should aim their interventions not only at patients but also at primary caregivers during palliative home care.

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Section: Discussionsupporting

confidence: 85%

Section: Discussionmentioning

confidence: 97%

Health-Related Quality of Life in Primary Caregivers of People Receiving Palliative Home Care

Reina-Gamba

Medellin-Olaya

Burbano-Rivera

et al. 2022

J Hosp Palliat Nurs

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“…Os seguintes critérios de inclusão foram considerados para a vinculação dos participantes: ser maior de 18 anos, ser o cuidador principal por um período superior a três meses e dedicação mínima de três horas por dia. (5,9,10,12) Os participantes foram informados dos objetivos e procedimentos a serem realizados e assinaram um termo de consentimento informado. Os dados foram coletados em 2019, pelos pesquisadores e por auxiliares de pesquisa treinados para a aplicação dos instrumentos.…”

Section: Métodosunclassified

“…(6) Ademais, no cuidado de doentes crônicos, os cuidadores precisam adotar diferentes formas de comunicação, (7) por conta dos desafios enfrentados: administração de medicamentos, rotinas de cuidado físico, administração de nutrição especial quando a condição o requer, atender às possíveis crises da doença da qual sofrem, (8) auxílio nas atividades diárias, fazer compras, solicitar consultas médicas, comunicar-se com os médicos e solicitar medicamentos. (7) Esses aspectos os levam a sofrer uma sobrecarga (9)(10)(11) e afetam sua qualidade de vida, (12) em associação com as múltiplas tarefas e papéis que devem assumir.…”

Section: Introductionunclassified

Competência do cuidar e seu impacto na qualidade de vida de cuidadores

Ramírez-Perdomo¹,

Cantillo-Medina²,

Perdomo-Romero³

2022

Acta Paulista De Enfermagem

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Competencia del cuidar y sobrecarga del cuidador de la persona con enfermedad crónica hospitalizada

Perdomo-Romero

Cantillo-Medina

Ramírez-Perdomo

2023

Rev. cienc. cuidad.

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Objetivo: Describir la competencia del cuidar y su asociación con la sobrecarga del cuidador familiar de la persona con enfermedad crónica. Método: Estudio cuantitativo descriptivo, transversal, muestreo por conveniencia. Se aplicó la ficha de caracterización de la díada, Instrumento CUIDAR y Zarit. 102 cuidadores de personas con enfermedades crónicas en las áreas hospitalarias, que cumplían los criterios de inclusión. Resultados: Predominan las mujeres como cuidadores, nivel de escolaridad bajo, sobrecarga en un 56,8%, alto nivel de competencia para cuidar 68,6%. Relación estadísticamente significativa con la variable sobrecarga y la calificación global de la competencia CUIDAR así como con sus dimensiones: Conocimiento, Unicidad, Anticipación. Conclusión: La competencia de cuidar se asocia con la sobrecarga del cuidador de personas con enfermedad crónica no transmisible. Por lo tanto, Enfermería tiene la responsabilidad de identificar las necesidades del cuidador e intervenirlas para contribuir en la transición hacia el rol de cuidador en el egreso del paciente al hogar.

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Quality of life of caregivers of persons with neurological disorder sequels

Cited by 4 publications

References 21 publications

Health-Related Quality of Life in Primary Caregivers of People Receiving Palliative Home Care

Health-Related Quality of Life in Primary Caregivers of People Receiving Palliative Home Care

Competência do cuidar e seu impacto na qualidade de vida de cuidadores

Competencia del cuidar y sobrecarga del cuidador de la persona con enfermedad crónica hospitalizada

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