Quality of Life of Caregivers of Individuals With Parkinson’s Disease

Kim, Sung Hae; Kim, Yonji; Kim, Yie Lin; Sohn, Young H.

doi:10.1097/rnj.0000000000000158

Cited by 19 publications

(21 citation statements)

References 32 publications

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“…For this purpose, they sought support in social interactions and conversations, recreational activities like book reading or listening to radio. This is in congruence with prior research, which has majorly highlighted the significant role of conversations and social support as key mechanisms to cope with the caregiver stress and preserve their self-identity (Abendroth et al, 2012 ; Lee et al, 2019 ; Smith & Shaw, 2017 ). However, as proposed by Yalom ( 2000 ), in the face of uncertainty, faith and meaning in the greater scheme of things, often acts as a support mechanism.…”

Section: Discussionsupporting

confidence: 88%

Perceptions and meanings of living with Parkinson’s disease: an account of caregivers lived experiences

Bhasin

Bharadwaj

2021

International Journal of Qualitative Studies on Health and Well

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Section: Discussionsupporting

confidence: 88%

Perceptions and meanings of living with Parkinson’s disease: an account of caregivers lived experiences

Bhasin

Bharadwaj

2021

International Journal of Qualitative Studies on Health and Well

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“…The number of studies on care recipient behavioural problems ranked highest (8 studies) Harwood, Ownby, Burnett, Barker, & Duara, 2000;Kramer, 1997;Liu & Huang, 2018;Pruchno & Patrick, 1999;Rapp & Chao, 2000;Smith, Onwumere, Craig, & Kuipers, 2018;Verbakel et al, 2018), among which five were on dementia, followed by patients with chronic disabilities (1 study), the general older adults (1 study) and psychosis (1 study). Seven studies were on care recipient functional status (Harvey, Burns, Fahy, Manley, & Tattan, 2001;Keir, Farland, Lipp, & Friedman, 2009;Liu & Huang, 2018;Pruchno & Patrick, 1999;Tsai & Pai, 2016;Verbakel et al, 2018), including social functioning and physical functioning, and care recipient disease severity (4 studies) (Kramer, 1997;Lee, Kim, Kim, Kim, & Sohn, 2018;Tsai & Pai, 2016;Yamamoto-Mitani et al, 2003).…”

Section: Factors At the Individual Levelmentioning

confidence: 99%

“…As an important factor in Lazarus model (Lazarus & Folkman, 1984), caregiver's coping strategies were closely related to caregiving appraisal (Chronister et al, 2010;Hanks, Rapport, & Vangel, 2007;Kramer, 1997;Parks, Anastasiadou, Sanchez, Graell, & Sepulveda, 2018). Caregiver's use of social service and quality of life were also associated factors (DiBartolo & Soeken, 2003;Gupta & Bowie, 2018;Lee et al, 2018;Yamamoto-Mitani et al, 2003).…”

Section: Factors At the Individual Levelmentioning

confidence: 99%

“…Harwood, Ownby, et al TA B L E 1 (Continued) studies at the community level mainly focused on the effects of social support, including social services and resources (Chen, Hedrick, & Young, 2010;Chronister et al, 2010;Hanks et al, 2007;Kramer, 1997;Lee et al, 2018;McAuliffe et al, 2018;Whitney et al, 2007;Yamamoto-Mitani et al, 2003;Zhang & Zhao, 2011). Social pressure was also studied (Imaiso, 2015).…”

Section: Casmentioning

confidence: 99%

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Factors associated with caregiving appraisal of informal caregivers: A systematic review

Wang

Cheung

Leung

et al. 2020

Journal of Clinical Nursing

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Aims and objectives To identify factors associated with the caregiving appraisal of informal caregivers. Background Caregiving appraisal, the cognitive evaluation of the caregiving situation, is an essential factor in determining positive or negative caregiving outcomes. Identifying factors associated with appraisal is fundamental for designing effective health promotion strategies. Design A systematic review. Methods PubMed, EMBASE, CINAHL, PsycINFO, Social Sciences Citation Index, Scopus, CNKI and Wanfang Database were searched for papers published from 1984 to December 2018. Keywords related to informal caregivers' caregiving appraisal were used. Cross‐sectional and cohort studies were included. The Quality Assessment and Validity Tool for Correlational Studies, and the CASP Cohort Study Checklist were used for quality assessment. Descriptive and narrative synthesis were used to analyse data. Social ecological model was used for classifying the associated factors into different levels. The PRISMA checklist was followed. Results Forty studies were included. The quality of the studies was moderate to high. Data were organised into three levels (individual, interpersonal and community level) and categorised into modifiable factors (e.g. patient behavioural problems, caregiver self‐efficacy and social support) and nonmodifiable factors (e.g. caregiving duration, gender and education). The majority of studies have investigated the factors at the individual level. Conclusion There are inconsistencies in the understanding of caregiving appraisal, and consensus is needed for conceptual clarity. Caregiving appraisal is associated with three levels of factors. These modifiable factors provide evidence for designing evidence‐based interventions, and the nonmodifiable factors help identify confounding factors in assessment and appraisal. Relevance to clinical practice Nurses are the best‐placed healthcare professionals to support informal caregivers. The three levels of associated factors and the interactive approaches provide direction for informing clinical nursing practice. They also provide evidence for healthcare researchers and policymakers to develop interventions and theoretical perspectives and to better allocate healthcare resources.

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“…The scale was used with the original author's approval. The original study reported a Cronbach's α of 0.93 (O. Kim, ) and a previous study examining family support from caregivers of people with PD in Korea reported a Cronbach's α of 0.91 (J. Lee, Kim, Kim, Kim, Kim, & Sohn, ). In the present study, Cronbach's α was 0.96.…”

Section: The Studymentioning

confidence: 99%

Unmet needs of people with Parkinson’s disease: A cross‐sectional study

Kim

et al. 2019

Journal of Advanced Nursing

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Aims To identify the type and extent of unmet needs in people with Parkinson's disease and to examine the impact of health locus of control and family support on these needs. Design A cross‐sectional study. Methods This study was conducted from October 2015 ‐ February 2016 in Korea. Data were collected through questionnaires focusing on unmet needs, health locus of control, family support and clinical features. Results Therapeutic needs represented the highest percentage of unmet needs in people with Parkinson's disease (85.05%), followed by social/spiritual/emotional needs (82.72%). Physical needs were the lowest reported score (75.01%). Unmet needs were more frequent in those with more severe non‐motor symptoms. Also, higher family support, internal locus of control and doctor locus of control were correlated with more unmet needs. Conclusion Understanding factors that determine the type and degree of unmet needs in people with PD is important to provide appropriate nursing care. The findings of this study can be used for providing nursing interventions reflecting unmet needs and reducing their unmet needs to improve the overall well‐being of people with PD. Impact This study addressed unmet needs unmet needs specific to Parkinson's disease with respect to their nursing needs. Therapeutic needs were the highest unmet needs in people with PD, followed by social/spiritual/emotional needs, need for certainty and physical needs. The findings may be useful for nurses to identify the unmet needs of people with PD which need to be addressed. By reflecting on unmet needs, nurses can give personally tailored nursing care.

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Quality of Life of Caregivers of Individuals With Parkinson’s Disease

Cited by 19 publications

References 32 publications

Perceptions and meanings of living with Parkinson’s disease: an account of caregivers lived experiences

Perceptions and meanings of living with Parkinson’s disease: an account of caregivers lived experiences

Factors associated with caregiving appraisal of informal caregivers: A systematic review

Unmet needs of people with Parkinson’s disease: A cross‐sectional study

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