Quality of Life of Patients with Glaucoma in Slovakia

Majerníková, Ľudmila; Hudáková, Anna; Obročníková, Andrea; Halász, Beáta Grešš; Kaščáková, Mária

doi:10.3390/ijerph18020485

Cited by 11 publications

(12 citation statements)

References 28 publications

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“…The result of the factor analysis turned out to be identical to those performed 40 years ago in Britain [ 20 ], 15 years ago in Norway [ 23 ], and recently in Germany [ 38 ] and Thailand [ 32 ], which displays the usefulness of the scale over time and across cultures. Being a next-of-kin carer of someone suffering from dementia of any aetiology is stressful [ 15 , 16 , 17 , 18 , 19 , 39 , 40 , 41 , 42 , 43 , 44 ]. The results of this study are well-aligned with the existing research that suggests some carers experience a great deal of burden; this is also the case for Slovak next-of-kin carers for dementia sufferers.…”

Section: Discussionmentioning

confidence: 99%

“…Several Slovak studies describe various determinants of stress for those caring for dementia sufferers, and also family caregiving involving end-of-life care [ 15 , 16 ]. Slovak research into the consequences of care has disclosed that 53% of next-of-kin reported a psychological burden resulting from the custody of relatives, and 44% of next-of-kin additionally report a burden relating to physical care [ 15 , 17 , 18 ]. Slamkova et al (2020) [ 19 ] pointed to the increase in the burden on next-of-kin carers in care activities and changes in their state of health in relation to their emotions.…”

Section: Introductionmentioning

confidence: 99%

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The Burden of Next-of-Kin Carers of Dementia Sufferers in the Home Environment

Tokovská

Šolcová

2022

Healthcare

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The role and responsibilities of next-of-kin carers are significant, filling several years of their lives and causing them to experience a burden of care. This study was conducted to investigate the burden of next-of-kin carers for dementia sufferers in Slovakia. Data were compiled via the Relatives’ Stress Scale (RSS) screening instrument through a survey of 112 primary next-of-kin carers and analysed using the statistical tests of descriptive statistics, means, scores and significance differences (Wilcoxon test). This is one of the few scales which provides: (a) specific measures of caregiver stress, and (b) is standardised for a population of informal carers in the home environment. The profiles of Slovak next-of-kin carers were identified with statistically significant characteristics (gender, age of carers). The study identified a high level of caregiving stress (82.15%), and selected factors were found to be significant in all burden dimensions: emotional stress (p = 0.001), social stress (p = 0.003), and negative feelings (p = 0.002). The results emphasise the need for coordination of healthcare and social services, possibly by expanding the network of social support groups, operating a counselling hotline/chat, and introducing national educational programmes for the next-of-kin carers of dementia sufferers. The results are also a source of reference for the umbrella organisation ‘the Slovak Alzheimer’s Society’ to access when implementing changes at a national level.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The Burden of Next-of-Kin Carers of Dementia Sufferers in the Home Environment

Tokovská

Šolcová

2022

Healthcare

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“…Slovakia is culturally and socially very close to the Czech Republic environment and speakers of both countries understand each other without a translation. So far, several studies using the NEI VFQ-25 in the Czechoslovak environment have been conducted [21][22][23]. The Czech version of the NEI VFQ-25 was created and validated according to the recommendation for linguistic validation of the questionnaires [24].…”

Section: Quality Of Lifementioning

confidence: 99%

The intraocular implant and visual rehabilitation improve the quality of life of elderly patients with geographic atrophy secondary to age-related macular degeneration

Nekolová

Kremláček

Lukavský

et al. 2022

Graefes Arch Clin Exp Ophthalmol

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Introduction The objective of this prospective study was to evaluate the effects of intraocular macular lens implantation and visual rehabilitation on the quality of life of patients with geographic atrophy (GA) secondary to age-related macular degeneration (AMD). Methods Patients with bilaterally decreased near vision (not better than 0.3 logMAR with the best correction), pseudophakia, were included in the project. The Scharioth macula lens (SML) was implanted into the patients’ better-seeing eye. Intensive visual rehabilitation of the ability to perform nearby activities was performed for 20 consecutive postoperative days. All subjects were examined before and after SML implantation ophthalmologically. The National Eye Institute 25-Item Visual Function Questionnaire (NEI VFQ-25) was administered before and 6 months after surgery. Results Twenty eligible patients with mean age 81 years (63 to 92 years) were included in the project: 7 males and 13 females. Nineteen of them completed the 6-month follow-up. Near uncorrected visual acuity was 1.321 ± 0.208 logMAR before SML implantation and improved to 0.547 ± 0.210 logMAR after 6 months (dz = − 2.846, p < 0.001, BF10 = 3.29E + 07). In the composite score of the NEI VFQ-25, there was an improvement in the general score and the specific domains related to the implantation. Participants reported fewer difficulties in performing near activities (dz = 0.91, p = 0.001, BF10 = 39.718) and upturns in mental health symptoms related to vision (dz = 0.62, p = .014, BF10 = 3.937). Conclusion SML implantation, followed by appropriate rehabilitation, improved near vision and increased the quality of life of visually handicapped patients with AMD in our project.

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“…Vision-related quality of life (VRQoL) may be defined as a person's satisfaction with their visual function and its effect on daily life, and this may be negatively impacted by glaucoma-related visual impairment [5] . Studies have found associations between healthrelated or VRQoL scores and multiple factors in glaucoma patients including visual acuity [6][7][8][9][10][11] , visual field status [6][7][8]10,[12][13][14][15][16] , optical coherence tomography [17] , visual symptoms [18] , rate of glaucoma progression [19] , and socio-economic factors such as age, marital status, literacy, and place of residence [20] . The number of QoL studies in glaucoma has increased since the early 1990's however, there are still fewer QoL studies in glaucoma than in other disabling chronic diseases [4] .…”

Section: Introductionmentioning

confidence: 99%

Vision-related quality-of-life in Jamaican glaucoma patients at Kingston Public Hospital

Jordan¹

2022

Int J Ophthalmol

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AIM: To determine the vision-related quality-of-life of glaucoma patients and the association between clinical and socioeconomic factors, and vision-related quality-of-life. METHODS: This was a cross-sectional study. Consecutive patients with glaucoma were interviewed using a modified 25-item National Eye Institute Visual Function Questionnaire (VFQ-25) by a single interviewer. Statistical analysis was done to find associations between patient variables and vision-related quality-of-life scores. Confidentiality and anonymity were maintained. RESULTS: Ninety-six participants were recruited in the study. There were 44 males and the mean age for males and females was 65.7 and 69.5y, respectively. The mean composite score was 71.2 (with a maximum possible score of 100), with the highest mean score in the colour vision subscale (89.8) and the lowest mean score in the driving subscale (34.0). Worse visual acuity (P<0.001), longer duration of glaucoma (P<0.001) and higher number of glaucoma medications (P<0.001) were associated with a worse composite score. Female participants and those who lived in urban areas had significantly better scores than male participants (P=0.002) and those who lived in rural areas (P=0.017), respectively. CONCLUSION: The vision-related quality-of-life in Jamaican glaucoma patients is comparable to that of glaucoma patients in the Barbados Eye Study and other international studies using the VFQ-25 questionnaire. Worse quality-of-life scores are associated with poorer visual acuity, longer duration of glaucoma, more glaucoma medications, and sociodemographic factors such as male gender and rural residence.

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Quality of Life of Patients with Glaucoma in Slovakia

Cited by 11 publications

References 28 publications

The Burden of Next-of-Kin Carers of Dementia Sufferers in the Home Environment

The Burden of Next-of-Kin Carers of Dementia Sufferers in the Home Environment

The intraocular implant and visual rehabilitation improve the quality of life of elderly patients with geographic atrophy secondary to age-related macular degeneration

Vision-related quality-of-life in Jamaican glaucoma patients at Kingston Public Hospital

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