Background: Multiple sclerosis (MS) is a chronic disease of the central nervous system that also develops in patients under 18 years of age. The disease negatively affects the quality of life (QoL) of children and adolescents. We conducted a literature review. The aim of the review was to identify the QoL of pediatric patients with MS and assess the factors determining their QoL. Methods: We analyzed studies published between 2000 and 2020 in PubMed, Scopus, Science Direct, Web of Science, and EBSCO databases. Results: In all, 17 studies were included in the review. The most common tool in assessing QoL was the generic module PedsQL. The range of mean/median global score of QoL was 53.8–81.7. The worst QoL was dominantly reported in the school and emotional spheres, on the contrary, the disease’s least determined area of QoL was the social and physical dimension. In particular, disability and fatigue were important predictors of QoL. Conclusions: MS negatively affects the school and emotional spheres in particular, so it is important to pay greater attention to these spheres of life of MS patients. As the review studies pay insufficient attention to the analysis of positive factors and their impact on the QoL of MS patients, research should integrate these phenomena. The use of MS-targeted tools in future research in the pediatric MS population is also appropriate.
Purpose: The aim of this study was to identify and analyse the quality of life of patients with primary open-angle glaucoma (POAG) based on their visus and peripheral vision. Methods: Our study was observational in nature; it was a cross-sectional study. In total, 119 patients with POAG were included in a causal-comparative character, ex post facto research design. The authors collected data using the National Eye Institute Visual Function Questionnaire-25 (NEI VFQ-25) and World Health Organization Quality of Life abbreviated version questionnaire (WHOQOL-BREF) tools. Results: Only patients with POAG that were over 18 years of age and had no other ocular or chronic illnesses were included. The mean duration of glaucoma was 8.77 (SD ± 5.63) years. Binocular disability was observed in 68.0% of patients. Using WHOQOL-BREF, there were significant differences found in the better-eye-vision group in psychological (p < 0.001) and environment (p < 0.001) domains. In the worse-eye-vision group, significant differences were found in physical health (p < 0.001), environment (p < 0.001), and quality related to health (p < 0.001) domains. Using NEI VFQ-25, there were significant differences found (p = 0.000) in all domains except subscale driving. Conclusion: Quality of life of patients with visual impairment is significantly lower in comparison to that of patients without a visual impairment.
Personality characteristics might be important factors influencing an individual's ability to cope with burnout syndrome. The aim of the study was to examine the relationship between personality factors such as self-evaluation and a sense of coherence and burnout syndrome among students of nursing. The study involved a total of 190 university students of the study programme Nursing and Midwifery (average age 20.66 ± 3.01; 98.4% females). Scale Burnout Inventory (SBI) in the school was used for assessing the burnout levels. A Sense of Coherence Questionnaire (SOC) and Rosenberger's Self-Esteem Scale (SES) were used as well. A significant negative relationship was found between burnout syndrome and self-esteem (p ≤ 0.01), as well as sense of coherence (p ≤ 0.01); it means that higher levels of self-esteem and sense of coherence were associated with lower burnout syndrome levels among students. Personality factors are strongly linked to burnout among students. Therefore it is important to observe and guide the students and appropriately utilize their predispositions in the management of the demanding study, as they tend to persist after a period of professional practice. It is therefore considered, that improving the skills of coping with stress among students is beneficial in preventing the subsequent occurrence of burnout in the profession of a nurse.
RelationShip between the quality of life and the meaning of life in canceR patient Aim. The goal of the study was focused on examining the impact of meaningfulness of life on the quality of life in cancer patients. Methods. The selection of respondents was deliberate. The study involved together one hundred cancer patients undergoing anticancer therapy (chemotherapy, radiotherapy) in cancer care centers in the Prešov and Košice regions. We used two standardized World Health Organisation questionnaires WHOQOL-BREF 26 and The Life Meaningfulness Scale (LMS).Results. The results show statistical significance (p <.001) between LMS dimensions and total score of LMS, a positive correlation (p <.001) was found between the dimensions of the LMS and factors -religiosity, social support, older age, female gender. A higher sense of life our sample was observable in the population of women with cancer, in patients with a higher level of social support and in religious patients. A positive correlation was recorded in terms of the meaning of life impact on the quality of life in relation to overall score LMS and in relation to Domain 2 Survival as well as Domain 3 Social relationships (p <.05) and Q2 Satisfaction with health (p <.001).Conclusions. The study indicates the presence of relationship between the quality of life and the meaning of life in cancer patients. The results could form the basis for implementing strategies in oncological nursing practice. key words: quality of life, meaning of life, cancer patients, nursing
Aim: The goal of the pilot study was to compare the quality of life of patients with multiple sclerosis in the Presov region with or without the support of a self-help group. Design: The character of this pilot study on patients with MS was related to the use of self-help groups and their impact on the assessment of the quality of life of the respondents, with the help of a questionnaire (WHOQOL-BREF). Methods: The research was carried out in the Prešov region with the help of the standardized WHOQOL-BREF questionnaire. Ninety-one patients with MS participated in the pilot study (46 respondents attended a self-help group and 35 did not). Results: The groups, when compared, aided by the statistically evaluated WHOQOL-BREF domains, were found to show significant differences in their evaluation of quality of life in three domains: domain one: physical health; domain two: surviving; domain three: social relations. Better scores were achieved in these domains by those who attended a group. In the physical sphere, we noticed significant differences in sleep quality, and sexual satisfaction (p < 0.001), while in social and economic areas, there were significant differences in satisfaction with personal relationships (p < 0.001), and economic circumstances (p < 0.01), self-contentment (p < 0.01), and coping with negative feelings (p < 0.05). Conclusion: Patients with multiple sclerosis can live normal lives provided they are supported by their families, friends, health care professionals, and self-help groups.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
customersupport@researchsolutions.com
10624 S. Eastern Ave., Ste. A-614
Henderson, NV 89052, USA
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright © 2024 scite LLC. All rights reserved.
Made with 💙 for researchers
Part of the Research Solutions Family.