Racial and ethnic representation in primary research contributing to pelvic organ prolapse treatment guidelines

Brandon, Caroline; Barlow, LaMont; Oh, Cheongeun; Sackrison, A.L.; Brucker, Benjamin M.

doi:10.1007/s00192-021-04983-9

Cited by 6 publications

(8 citation statements)

References 27 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Brown et al found the RQ for Asian participants was 1.62, whereas the current study did not find overrepresentation of Asian participants, with an RQ of 0.27. Brandon et al 15 also noted underrepresentation of Asian participants, with an RQ of 0.09. These differences in RQs across studies among historically underrepresented groups could reflect many factors, such as the demographics of local populations, levels of trust in health care providers, beliefs regarding diseases and their treatments within some communities, and variable community engagement and outreach efforts.…”

Section: Discussionmentioning

confidence: 95%

“…This measure was chosen as the primary outcome because of its ability to intuitively reflect the magnitude of discrepancy between the observed versus expected representation of various races and has been used in previous health equity studies, thus allowing for comparisons across studies. [14][15][16] In the current study, RQ calculations were made overall and in 5-year increments from 1995 through 2019. Intercensal estimates reported in July of each year were matched to the year of publication to calculate the corresponding RQs for each study.…”

Section: Methodsmentioning

confidence: 99%

“…An RQ greater than 1 reflects an overrepresentation of that race and/or ethnicity when compared with the expected proportion based on U.S. census data, whereas an RQ less than 1 reflects underrepresentation. This measure was chosen as the primary outcome because of its ability to intuitively reflect the magnitude of discrepancy between the observed versus expected representation of various races and has been used in previous health equity studies, thus allowing for comparisons across studies 14–16 …”

Section: Methodsmentioning

confidence: 99%

See 2 more Smart Citations

Underrepresentation in Pelvic Floor Disorder Patient-Reported Outcomes: Whose Outcomes Are We Measuring?

Shinnick

Siddique

Jarmale

et al. 2022

UROGC

View full text Add to dashboard Cite

ImportancePatient-reported outcome (PRO) instruments measure the patient's perspective. It is unclear whether commonly used PRO measures were tested in populations that had racial and ethnic distributions comparable with those reported in U.S. census data.ObjectiveThe aim of this study was to compare the proportion of non-White race and Hispanic ethnicity participants with their expected proportion based on U.S. census data for PRO instruments with U.S.-based validation studies.Study DesignThis was a retrospective review of PRO measures considered by the Pelvic Floors Disorders Consortium Working Group on Patient-Reported Outcomes in their 2020 consensus publication. Study and participant information were abstracted from PRO validation studies. Racial and ethnic representation in U.S.-based studies were compared with U.S. census data. The primary outcome was the representation quotient of reported races and ethnicities, calculated as the reported percentage of the study population identifying with a race and/or ethnicity divided by the proportion of the U.S. population identifying with that race and/or ethnicity when the study was published.ResultsForty-five studies with 21,080 total participants were included. Race was reported in 17 of 45 studies (37.8%), and ethnicity was reported in 7 of 45 (15.6%). Most studies did not specify how race and ethnicity information was collected. For U.S.-based studies, the representation quotient of White participants from 1995 to 2019 was 1.15. Indigenous American/Native American/American Indian/Alaska Natives had the lowest representation quotient (0.22). Reporting of ethnicity increased over time (P = 0.001), although there was no significant change in the reporting of race or the representation of various races and ethnicities (P > 0.05).ConclusionNon-White and Hispanic patients may be underrepresented in U.S.-based validation studies for PRO instruments in pelvic floor disorders.

show abstract

Section: Discussionmentioning

confidence: 95%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Underrepresentation in Pelvic Floor Disorder Patient-Reported Outcomes: Whose Outcomes Are We Measuring?

Shinnick

Siddique

Jarmale

et al. 2022

UROGC

View full text Add to dashboard Cite

show abstract

“…Advanced management options include percutaneous tibial nerve stimulation (PTNS), intradetrusor injection of onabotulinumtoxinA, and sacral nerve stimulation (SNS). As mentioned earlier, the OAB treatment guidelines from all major relevant societies, including the AUA, American College of Obstetricians and Gynecologists (ACOG), AUGS, and the Society of Urodynamics, Female Pelvic Medicine, and Urogenital Reconstruction (SUFU) are based on data that grossly overrepresent White women 7,27,30 . It is difficult to claim that patients of diverse backgrounds are receiving evidence‐based care when they are not represented in the evidence.…”

Section: Disparities In Utilization Of Third‐line Therapiesmentioning

confidence: 99%

“…As mentioned earlier, the OAB treatment guidelines from all major relevant societies, including the AUA, American College of Obstetricians and Gynecologists (ACOG), AUGS, and the Society of Urodynamics, Female Pelvic Medicine, and Urogenital Reconstruction (SUFU) are based on data that grossly overrepresent White women. 7,27,30 It is difficult to claim that patients of diverse backgrounds are receiving evidence-based care when they are not represented in the evidence. It is likely that care disparities exist at least partially as a result of lack of data within marginalized groups.…”

Section: Disparities In Utilization Of Third-line Therapiesmentioning

confidence: 99%

Health disparities and access to advanced therapy for overactive bladder

Roselli

McKay

Nauheim

et al. 2022

Neurourology and Urodynamics

View full text Add to dashboard Cite

Aims: Refractory overactive bladder (OAB) is among the most common reasons for referral to specialists in voiding dysfunction. Significant racial and ethnic disparities exist in prevalence, severity, and management of OAB, presenting care barriers for marginalized patients. We aim to explicate these disparities and explore the factors that led to their existence and persistence. We will additionally offer suggestions to mitigate such disparities and approach equitable care for our patients. Methods: This is a narrative review of pertinent articles related to health disparities in OAB. Articles on OAB prevalence stratified by race and ethnicity, and variations in treatment patterns for patients of marginalized backgrounds were identified from the PubMed database. We also included a review of evidence from governmental and historical sources to provide sociocultural context.Results: Patients from marginalized backgrounds are underrepresented in OAB literature. There appear to be differences in symptom severity and prevalence based on race. OAB severity seems closely entwined with social determinants of health. Patients from marginalized populations experience numerous care barriers impeding the treatment of OAB.Finally, White patients are more likely to receive advanced management for OAB.Conclusions: Numerous health disparities exist in the diagnosis and management of OAB. This review is grounded in societal context: health injustice in the United States ultimately stems from systemic racism.Improving our understanding of care disparities and the systems that allow them to persist will bring us closer to equity and allow our patients from marginalized backgrounds to obtain the evidence-based care they deserve.

show abstract

Creating an Inclusive Urology Practice

Gonzalez

Anger

2023

Curr Bladder Dysfunct Rep

View full text Add to dashboard Cite

Purpose of Review Patients seeking urologic care come from diverse backgrounds. Therefore, clinics should strive for inclusivity to make all patients feel comfortable seeing a urologist. This review aims to outline and analyze literature relevant to the care of LGTBQIA+ (lesbian, gay, transgender/transexual, queer/questioning, intersex, asexual/allies, nonbinary/genderqueer +), racial and ethnic minorities, those who have disabilities, and those with a high body mass index (BMI). Although this review article presents the care of diverse communities separately, there is an overlap of the various social axes influencing healthcare outcomes. Healthcare workers should be open-minded to learning about evolving community needs. Recent Findings Creating a safe space for LGTBQIA+ requires understanding terminology, awareness of community-specific challenges and health risks, and changing heteronormative behaviors built into medicine. Specific clinical care delivery structural processes and patient-physician-centered practices can make a clinic welcoming for patients from underrepresented backgrounds and with disabilities. BMI surgical requirements may pose barriers to care, and if implemented, there should be assistance to reach specified weight goals. Summary Creating an inclusive urology clinical practice takes time, but it can be achieved by building a collaborative team. Treating patients with consideration of their personal identities and social determinants of health will lead to better patient-center care and health outcomes.

show abstract

Racial and ethnic representation in primary research contributing to pelvic organ prolapse treatment guidelines

Cited by 6 publications

References 27 publications

Underrepresentation in Pelvic Floor Disorder Patient-Reported Outcomes: Whose Outcomes Are We Measuring?

Underrepresentation in Pelvic Floor Disorder Patient-Reported Outcomes: Whose Outcomes Are We Measuring?

Health disparities and access to advanced therapy for overactive bladder

Creating an Inclusive Urology Practice

Contact Info

Product

Resources

About