Recommendations for spinal rehabilitation professionals regarding sexual education needs and preferences of people with spinal cord dysfunction: a mixed-methods study

New, Peter W; Seddon, Merilyn; Redpath, Cameron; Currie, Kay; Warren, Narelle

doi:10.1038/sc.2016.62

Cited by 43 publications

(37 citation statements)

References 29 publications

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“…1 However, persons with SCI or SCD are often dissatisfied about the education and the treatment they receive regarding sexual concerns, 2 and this lack of care may lead to a decrease in patient's participation in sexual activity and sexual satisfaction. Thus, it is important for clinicians to take sexual concerns into account and address them as they work to engage in patientcentered care.…”

Section: Introductionmentioning

confidence: 99%

International spinal cord injury male sexual function and female sexual and reproductive function basic data sets—version 2.0

Alexander

New

Biering‐Sørensen

et al. 2017

Spinal Cord Ser Cases

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published research, suggestions from concerned individuals and on line work group consensus. The revised data sets were then posted on the International Spinal Cord Society (ISCoS) and American Spinal Injury Association (ASIA) websites for 2 months for review. Subsequently, the data sets were approved by the ISCoS Scientific and Executive Committees and ASIA board of directors. RESULTS: The data sets were modified to a self-report format. They were reviewed for appropriateness for the pediatric age group and adapted to include a new variable to address the issue of sexual orientation. A clarification of the difference between the data sets and the autonomic standards was also developed. CONCLUSION: Sexuality is a continuously evolving topic. Modifications were needed to address this topic in a comprehensive fashion. It is recommended that Version 2.0 of these data sets are used for ongoing documentation of sexual status in the medical record and for documentation of sexual concerns during on-going research.Spinal Cord Series and Cases (2017) 3, 17050; doi:10.1038/scsandc.2017.50; published online 10 August 2017 INTRODUCTIONSexuality is an important issue for persons with spinal cord injuries (SCIs) and non-traumatic spinal cord dysfunction (SCD). 1 However, persons with SCI or SCD are often dissatisfied about the education and the treatment they receive regarding sexual concerns, 2 and this lack of care may lead to a decrease in patient's participation in sexual activity and sexual satisfaction. Thus, it is important for clinicians to take sexual concerns into account and address them as they work to engage in patientcentered care.The International SCI Basic Data Sets for Male Sexual Function and Female Sexual and Reproductive Function were developed in 2011 3,4 as part of the overall International Data Sets project. Their purpose was to help provide a standardized platform that clinicians could use in the medical record to follow patient's sexual concerns. They included separate documentation of the concepts of psychogenic and reflex sexual arousal in both males and females along with the need for separate documentation of the retention of orgasmic capacity in both sexes and of ejaculation in males. Another purpose of the data sets was so researchers could use a basic data set to describe sexual concerns, thus promoting comparison of study results.Based upon recent analyses and data set updates 5,6 it was determined that updates to the International SCI Basic Data Sets for Male Sexual Function and Female Sexual and Reproductive Function are necessary. Subsequent to the development of Version 1.0, a validation study was performed that identified the need for a self-report format. 5 In addition, the need to acknowledge sexual orientation and the issues of children were raised. In light of these concerns, it was determined that a revision of the basic data sets was necessary. The purpose of this article is to describe the developments of the International SCI Male Sexual Function Basic Data Set Version 2.0 and the...

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Section: Introductionmentioning

confidence: 99%

International spinal cord injury male sexual function and female sexual and reproductive function basic data sets—version 2.0

Alexander

New

Biering‐Sørensen

et al. 2017

Spinal Cord Ser Cases

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“…Patients with SCI express dissatisfaction with sexual education after injury. 12 Akman reported that Turkish men with SCI preferred to have sexual education given by physicians after the completion of the rehabilitation period, yet in that study, only 8.5% of patients received sexual education after injury. 15 Though no consensus exists on the timing, methods and details of sexual education after traumatic SCI, we believe that a protocol for this aspect of management is warranted.…”

Section: Discussionmentioning

confidence: 89%

“…11 Historically, education in sexuality was rarely carried out during rehabilitation after SCI due to lack of prioritizing these complications or physician discomfort. 12 We sought to determine the frequency and severity of erectile and ejaculatory dysfunctions and their correlates in a sample of men with SCI. We also sought to determine the fertility desires and treatment options offered for sexual and fertility enhancement in these men.…”

Section: Introductionmentioning

confidence: 99%

Evaluation of sexual and fertility dysfunction in spinal cord-injured men in Jamaica

Morrison

White-Gittens²,

Smith³

et al. 2017

Spinal Cord Ser Cases

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“…It has been demonstrated the sexual education and rehabilitation in patients with SCI can improve overall satisfaction and quality of life. 33 …”

Section: Discussionmentioning

confidence: 99%

Erectile Function Predicts Sexual Satisfaction in Men With Spinal Cord Injury

et al. 2017

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IntroductionSpinal cord injury (SCI) is usually a sudden traumatic event and has a negative effect on sexual function.AimTo evaluate the characteristics of sexual activity in men with SCI and identify predictors of being sexually active and having a satisfactory sex life.MethodsWe assessed sexual activity profiles of men with SCI from a Brazilian tertiary rehabilitation center from February to August 2012. All patients older than 18 years with SCI for longer than 1 year were invited to participate. We analyzed age, time since SCI, patient age at SCI, employment status, partner status, completeness of lesion, functional independence, urinary continence, and Sexual Health Inventory for Men (SHIM) score.Main Outcome MeasuresThe SHIM was used to assess erectile function (EF). Satisfaction with sex life was analyzed as a dichotomous variable. Predictors of an active and satisfactory sex life were identified using univariable and multivariable analyses.ResultsWe evaluated 295 men with mean age of 40.7 ± 14.5 years. Most patients had a complete SCI (65.1%) and 159 (53.9%) were incontinent. The median SHIM score was 5 (interquartile range = 0–16) and only 71 men (24.1%) had a SHIM score of at least 17. Of these men, 159 (53.9%) were sexually active. Only 63 men (39.6%) were satisfied with their sex life after SCI. In univariable analysis, all variables were associated with an active sex life. Those with a SHIM score of at least 17 had a greater likelihood of being sexually active (odds ratio = 116, 95% confidence interval = 14–432). EF was the only parameter associated with a satisfactory sex life (odds ratio = 1.3, 95% confidence interval = 1.2–1.4).ConclusionsMost men with SCI were sexually inactive and/or dissatisfied with their sex life. Age, duration of SCI, completeness of SCI, continence, having a partner, and good EF were identified as predictors of an active sex life. However, only EF was a predictor of a satisfactory sex life.Gomes CM, Miranda EP, de Bessa J, et al. Erectile Function Predicts Sexual Satisfaction in Men With Spinal Cord Injury. Sex Med 2017;5:e148–e155.

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Recommendations for spinal rehabilitation professionals regarding sexual education needs and preferences of people with spinal cord dysfunction: a mixed-methods study

Abstract: There was very low satisfaction with sexuality education during rehabilitation. Our findings highlight the scope and directions for improving the sexual education and information given to people with both SCDys and SCI during rehabilitation.

Cited by 43 publications

References 29 publications

International spinal cord injury male sexual function and female sexual and reproductive function basic data sets—version 2.0

International spinal cord injury male sexual function and female sexual and reproductive function basic data sets—version 2.0

Evaluation of sexual and fertility dysfunction in spinal cord-injured men in Jamaica

Erectile Function Predicts Sexual Satisfaction in Men With Spinal Cord Injury

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