Recruitment and retention of african american elders into community-based research: Lessons learned

Dennis, Betty Pierce; Neese, Jane B.

doi:10.1016/s0883-9417(00)80003-5

Cited by 94 publications

(95 citation statements)

References 14 publications

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“…There is no difference in participation rates between racial/ethnic minorities, yet among those who have not participated, racial/ethnic minorities report both more opportunity and more willingness. These findings are inconsistent with several nonpopulation‐based studies that suggest racial/ethnic minorities are less willing to participate 9, 27, 28, 29, 30, 31, 32, 33, 34, 35, 36. However, the findings are consistent with a small number of more recent studies that document a willingness to participate among racial and ethnic minorities 37, 38, 39.…”

Section: Discussioncontrasting

confidence: 90%

Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas

McElfish

Long

Selig

et al. 2018

Clinical Translational Sci

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Prior research suggests that rural and minority communities participate in research at lower rates. While rural and minority populations are often cited as being underrepresented in research, population‐based studies on health research participation have not been conducted. This study used questions added to the 2015 Behavioral Risk Factor Surveillance System to understand factors associated with i) health research participation, ii) opportunities to participate in health research, and iii) willingness to participate in health research from a representative sample (n = 5,256) of adults in Arkansas. Among all respondents, 45.5% would be willing to participate in health research if provided the opportunity and 22.1% were undecided. Only 32.4% stated that they would not be willing to participate in health research. There was no significant difference in participation rates for rural or racial/ethnic minority communities. Furthermore, racial/ethnic minority respondents (Black or Hispanic) were more likely to express their willingness to participate.

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Section: Discussioncontrasting

confidence: 90%

Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas

McElfish

Long

Selig

et al. 2018

Clinical Translational Sci

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“…[42][43][44] Some potential participants may fear discovering that they are at risk for developing disease, have concerns about insurance coverage if they participate in a clinical trial, or are suspicious of research due to the Tuskegee Syphilis Study and other negative historical occurrences. [42][43][44][45][46][47][48][49][50][51][52][53][54] The Tuskegee Syphilis Study was administered in Macon County, Alabama, from 1932 to 1972 and involved 600 black men: 399 with syphilis and 201 without the disease. 55 In addition to failing to obtain adequate informed consent, when penicillin became the drug of choice for syphilis in 1947, researchers did not offer treatment or inform the men that they could quit the study.…”

Section: Clinical Trial Participation and Health Disparitiesmentioning

confidence: 99%

Health disparities: A barrier to high-quality care

Mullins

Blatt²,

Gbarayor³

et al. 2005

American Journal of Health-System Pharmacy

106

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Purpose-Disparities in the treatment of cardiovascular disease, diabetes mellitus, and cancer among the sexes and racial groups and possible interventions are discussed.Summary-The ongoing process to identify and reduce health disparities has engaged numerous federal agencies as they monitor the nation's progress toward policy-driven and health-related objectives. Cardiovascular disease disproportionately affects minority groups and is the leading cause of death among women in the United States, and both groups receive suboptimal care for the disease. Disparities in the treatment of diabetes mellitus in African Americans, women, patients with less than a high school education, and the elderly have been found. Many minority groups continue to suffer disproportionately from cancer. Racial disparities also exist in cancer screening and treatment. Minorities are underrepresented in clinical trials for multiple reasons, many of which may be related to cultural beliefs. At all levels of coinsurance, the poor are less likely to seek preventive care. Adherence to national screening and treatment guidelines, clinical trial recruitment and participation, addressing language and geographic barriers, and increasing access to insurance are part of the coordinated efforts required to reduce health disparities. Because pharmacists influence patients' health status directly through pharmaceutical care and indirectly by engaging patients in their treatment, it is essential for pharmacists to be able to provide culturally competent care.Conclusion-Despite significant efforts over the past several years, health disparities continue to exist, particularly among minority groups. Interventions aimed at eliminating these disparities should include ensuring cultural competence among health care providers and improving health literacy among patients.

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“…A further way to operationalize the conditions presented by Alt-White (1995) would be to use the six concepts developed by Dennis and Neese (2000) as part of their research with African Americans. These concepts are historical cognizance, sanctioning, trust building, recognition of group heterogeneity, mutuality, and researcher self-reflection and introspection.…”

Section: A Set Of Concepts To Stimulate Increased Understanding Of Thmentioning

confidence: 99%

“…Sanctioning involves developing relationships with the community in which one is conducting the research (Dennis & Neese, 2000). According to Leininger, (1991Leininger, ( , 1990, when a researcher is new to the community, the participants will initially only give pieces of information to the researcher.…”

Section: Sanctioningmentioning

confidence: 99%

The Significance of Trust in the Research Consent Process with African Americans

Earl

Penney

2001

West J Nurs Res

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Recruitment and retention of african american elders into community-based research: Lessons learned

Cited by 94 publications

References 14 publications

Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas

Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas

Health disparities: A barrier to high-quality care

The Significance of Trust in the Research Consent Process with African Americans

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