Relationship Between Caregiver Burden and Health-Related Quality of Life

Hughes, Susan L.; Giobbie‐Hurder, Anita; Weaver, Frances M.; Kubal, Joseph D.; Henderson, William

doi:10.1093/geront/39.5.534

Cited by 174 publications

(152 citation statements)

References 23 publications

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“…This study's caregivers provided care from the Health domains, which definitely resulted in reduced performance in the remaining health domains (23) .…”

Section: Discussionmentioning

confidence: 97%

Burden of care and its impact on health-related quality of life of caregivers of individuals with spinal cord injury

Nogueira¹,

Rabeh

Caliri

et al. 2012

Rev. Latino-Am. Enfermagem

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Objective: to analyze the impact and burden of care on the Health-Related Quality of Life (HRQOL) of caregivers of individuals with a spinal cord injury (SCI). Method: cross-sectional observational study carried out by reviewing medical records and applying questionnaires. The scale Short Form 36 (SF-36) was used to assess HRQOL and the Caregiver Burden Scale (CBScale) for care burden. Results were analyzed quantitatively. Most patients with SCIs were male, aged 35.4 years old on average, with a predominance of thoracic injuries followed by cervical injuries. Most caregivers were female aged 44.8 years old on average. Results: tetraplegia and secondary complications stand out among the clinical characteristics that contributed to greater care burden and worse HRQOL. Association between care burden with HRQOL revealed that the greater the burden the worse the HRQOL. Conclusion: Preventing care burden through strategies that prepare patients for hospital discharge, integrating the support network, and enabling access to health care services are interventions that could minimize the effects arising from care burden and contribute to improving HRQOL. Conclusão: prevenir a sobrecarga do cuidado por meio de estratégias de preparo para alta, integração da rede de apoio e acesso a serviços de saúde, poderia minimizar os efeitos da sobrecarga do cuidado e contribuir para melhor QVRS.Descritores: Qualidade de Vida; Cuidadores; Traumatismos da Medula Espinhal; Atividades Cotidianas. Sobrecarga del cuidado e impacto en la calidad de vida relacionada a la salud de los cuidadores de individuos con lesión medularObjetivo: análisis del sobrecarga del cuidado e impacto en la Calidad de Vida Relacionada a la Salud (CVRS), de los cuidadores de individuos con lesión medular traumática (LME). Método: estudio observacional, de corte transversal, realizado por revisión de prontuarios y aplicación de cuestionarios. Fueron utilizadas las escalas de Short Form 36 (SF-36) para evaluar la CVRS, Caregiver Burden Scale (CBScale) para Sobrecarga del cuidado y los resultados fueron analizados cuantitativamente. La mayoría de los individuos con LM era del sexo masculino, con media de edad de 35,4 años, con predominio de lesión torácica seguida de lesión cervical. La mayoría de los cuidadores era del sexo femenino, con media de edad de 44,8 años. Resultado:de las características clínicas que aportaron para mayor sobrecarga del cuidado y peor CVRS se destacaron individuos cuadripléjicos y con complicaciones secundarias. Al asociar la sobrecarga del cuidado con la CVRS se logró que cuanto mayor la sobrecarga peor a CVRS.Conclusión: precaver la sobrecarga del cuidado por medio de estrategias de adorno para alta, integración de la red de apoyo y acceso a servicios de salud, podrían minimizar los efectos de la sobrecarga del cuidado y aportar para una mejor CVRS.

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“…This study's caregivers provided care from the Health domains, which definitely resulted in reduced performance in the remaining health domains (23) .…”

Section: Discussionmentioning

confidence: 97%

Burden of care and its impact on health-related quality of life of caregivers of individuals with spinal cord injury

Nogueira¹,

Rabeh

Caliri

et al. 2012

Rev. Latino-Am. Enfermagem

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“…In the present sample, about 88% of the informal caregivers provide care to a family member (partner, parent, children, sister, or brother). Previous research has shown that providing informal care to close family members involves a relatively larger negative subjective burden (both physically and emotionally) than providing care to non-family members (Hughes et al, 1999;Kramer, 1997). If this evidence is confirmed, a stronger inverse relationship between hours of provided informal care and well-being will be found for informal caregivers who are family of the care recipients than for informal caregivers who are not.…”

Section: The Well-being Modelmentioning

confidence: 95%

Monetary valuation of informal care: the well‐being valuation method

2007

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SUMMARYThis paper estimates the monetary value of providing informal care by means of a well-being valuation method. This is done by assessing the compensating variation necessary to maintain the same level of well-being after an informal caregiver provides an extra hour of informal care. The informal caregiver's well-being is proxied by the answer to two subjective well-being questions that were posed in a questionnaire answered by 865 Dutch informal caregivers between the end of 2001 and the beginning of 2002. In the econometric analysis, a distinction is made between the care recipients who are and the ones who are not a family member of the informal caregiver. The results indicate that an extra hour of informal care is worth about 9 or 10 Euros. This equals 8 or 9 Euros if the care recipient is a family member and about 7 or 9 Euros if not. When applying the contingent valuation method to the same sample, the value obtained was 10.52 Euros per hour. This paper concludes that the well-being valuation method is a useful complement to the more traditional valuation methods in the health economics literature in general and more particularly for the economic valuation of informal care: it includes all costs and effects associated with providing care from the perspective of the informal caregiver, it is relatively cheap to implement, and it offers an additional possibility to determine the convergent validity of the different monetary valuation methods.

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“…Having good relationships with patients, good friendships, their marital status, and the social support which they receive from family members are factors that contribute the caregiver's quality of life positively (Francis et al, 2009). There is a positive relationship between the physical health status, social relationship status, and environmental influences of caregivers and their quality of life (Hughes et al, 1999). Studies also state that caregivers experience physical, social, psychological, and economical issues during the time they provide care to the patient; ultimately, causing an increase in care burdens and a deterioration in their quality of life (Morımoto, 2003).…”

Section: Effects Of Care Burdens Of Caregivers Of Cancer Patients On mentioning

confidence: 99%

Effects of Care Burdens of Caregivers of Cancer Patients on their Quality of Life

Türkoğlu¹,

Kılıç²

2012

Asian Pacific Journal of Cancer Prevention

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In this study, the aim was to examine the effects of caring burdens of family caregivers of cancer patients on their quality of life in the east of Turkey. Data were collected at the Chemotherapy unit of Yakutiye Research Hospital of Ataturk University. Participants were 18 years old and older. The sample included 190 family caregivers who were living in the same flats with the patients during caregiving. Data were collected using a questionnaire that included socio-demographic questions for family caregivers and the Burden Interview, and the Caregiver Quality of Life Index-Cancer (CQOLC) Scale. SPSS version 14.0 was used to analyse the data. Descriptive statistics were computed for demographic variables of family caregivers. Pearson correlation analysis was used to analyze the relationship between the care burden and quality of life, linear logistic regression analysis was applied to determine the effect care burdens have on the quality of life, and logistic regression analysis was employed to determine the effect descriptive characteristics and care-related properties have on the quality of life. The score mean of the burden interview of caregivers was 36.6±11.2; and their score mean of CQOLC was 81.4±17.3. This study concluded that there was a negative relationship between caring burdens and the quality of life (p<0.001); descriptive characteristics, caring-related properties, and caring burden variables were all significant predictors of the quality of life. It is recommended that caregivers are given support by being offered training about providing care.

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Relationship Between Caregiver Burden and Health-Related Quality of Life

Cited by 174 publications

References 23 publications

Burden of care and its impact on health-related quality of life of caregivers of individuals with spinal cord injury

Burden of care and its impact on health-related quality of life of caregivers of individuals with spinal cord injury

Monetary valuation of informal care: the well‐being valuation method

Effects of Care Burdens of Caregivers of Cancer Patients on their Quality of Life

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