Reliability and Responsiveness of NutriQoL® Questionnaire

Cuerda, Maria Cristina; Apezetxea, A.; Carrillo, Lourdes; Casanueva, Felipe F.; Cuesta, Federico; Irles, J. A.; Virgili, María Nuria; Layola, M.; Lizán, Luís

doi:10.1007/s12325-016-0384-8

Cited by 5 publications

(7 citation statements)

References 18 publications

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“…The NutriQoL was released to assess the QoL of patients with HEN irrespective of their underlying diseases and routes of administration. It was shown to be reliable and valid, and it seemed to be useful to assess QoL in Spanish‐speaking population 56,91–94 . Quality of Life—Enteral Feeding Questionnaire (QoL‐EF) was specifically designed to assess the QoL of head and neck cancer patients with enteral feeding tubes 67 …”

Section: Resultsmentioning

confidence: 99%

“…It was shown to be reliable and valid, and it seemed to be useful to assess QoL in Spanish-speaking population. 56,[91][92][93][94] Quality of Life-Enteral Feeding Questionnaire (QoL-EF) was specifically designed to assess the QoL of head and neck cancer patients with enteral feeding tubes. 67 HPN-Quality of Life (HPN-QoL) was a tool for measuring QoL among HPN-dependent patients, which was originally designed by the Home Artificial Nutrition and Chronic Intestinal Failure (HAN&CIF) special interest group of ESPEN, and the basic psychometric properties of the HPN-QoL has been evaluated in a multinational sample.…”

Section: Therapy-specific Instrumentsmentioning

confidence: 99%

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Quality of life assessment instruments in adult patients receiving home parenteral and enteral nutrition: A scoping review

et al. 2022

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Quality of life (QoL) assessment is important to evaluate the effect of the intervention for patients treated with home parenteral and enteral nutrition (HPEN). The purpose of this scoping review is to describe, evaluate, and recommend QoL instruments used in adult patients receiving HPEN. We used the Arksey and O'Malley framework and performed literature searches in five databases (PubMed, CINAHL, EMBASE, Web of Science, and Cochrane Library) to identify possibly relevant articles that focused on QoL of adult patients receiving HPEN. Of the studies that qualify for full-text screening, two independent researchers extracted data. Twenty-seven QoL instruments were identified, consisting of seven generic instruments, 12 disease-specific instruments, and eight therapy-specific instruments. The Short Form-36 was the most widely used generic instrument and the European Organization for Research and Treatment of Cancer QLQ-C30 was the most commonly employed disease-specific instrument. The recently developed therapy-specific tools, NutriQoL and HPN-QoL, were increasingly employed in studies either alone or in combination with other types of instruments. Important aspects of each instrument were summarized to aid clinicians and researchers in selecting an appropriate instrument when measuring the QoL of adult HPEN patients. Findings could also help to identify the necessity to develop new tools or to modify pre-existing ones to measure QoL of HPEN patients.

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Section: Resultsmentioning

confidence: 99%

Section: Therapy-specific Instrumentsmentioning

confidence: 99%

Quality of life assessment instruments in adult patients receiving home parenteral and enteral nutrition: A scoping review

et al. 2022

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“…Notably, there were some differences between the present study and the original study. In the NutriQoL ® developed for the Spanish population, the questionnaire was answered not only by the patients themselves but also by caregivers [10,11]. The authors performed an interobserver reliability test in 35 patients and caregivers, and the degree of agreement obtained was excellent [11].…”

Section: Discussionmentioning

confidence: 99%

“…Consequently, Cuerda et al [9] and Apezetxea et al [10] developed and validated NutriQoL ® in Spain to assess the health-related quality of life of patients receiving HENT, regardless of the disease and route of administration of the diet. NutriQoL ® is a tool that has proven to be valid, reliable, sensitive to change, and beneficial for measuring the quality of life in individuals who receive HENT and is effective in detecting changes in the health status of patients [10,11]. However, NutriQoL ® was developed in the Spanish language, specifically targeting the local population, which is a limitation when used in the Brazilian population.…”

Section: Introductionmentioning

confidence: 99%

Translation and cross-cultural adaptation of the NutriQoL® questionnaire to the Portuguese language: Brazilian version

et al. 2021

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Objective The objective of this study was to translate and cross-culturally adapt the NutriQoL® into Brazilian Portuguese. Methods The NutriQoL® comprises 17 questions that evaluate the quality of life of patients receiving home enteral nutrition therapy. The methodological procedures included the translation from the Spanish version into Portuguese by two translators, synthesis of the translations, back translation, evaluation by a committee of judges composed of 24 individuals in which a content validity index > 0.78 was considered acceptable, and generation of the pre-final version. A pre-test to analyze its semantic equivalence was administered to 12 patients receiving home enteral nutrition therapy. The final version of the questionnaire was then prepared. Results A summary version of the questionnaire was obtained using two versions of the translation. Both back translations were identical for 73.6% of sentences (n=25). Twenty-four volunteers were included in the committee of judges. The content validity index was 0.88±0.11, and 14.7% (n=5) of questions had a low content validity index and were thus reformulated. In the pre-test, 35.3% (n=12) of items obtained low levels of understanding and required adjustment. In the preparation of the final version, the inconsistencies of the items mentioned were corrected and/or adjusted. Conclusion After completing the methodological procedures, a Brazilian Portuguese version of the NutriQoL® questionnaire was obtained. Following the validation process, it can be used by dieticians and other health professionals to assess the quality of life of patients receiving home enteral nutrition therapy to contribute to improvements in care practices.

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“…Additional analyses were carried out to ensure the reproducibility of the results (reliability), NutriQoL® ‘ s sensitivity to changes in patients’ health (responsiveness) and the reliability of answers between patient and caregiver (inter-observer reliability). These analyses were performed in a prospective study between 2013 and 2014 whose results are detailed in other publication [ 38 ]. Therefore, NutriQoL®, it is a useful instrument to assess the HRQoL of HEN patients with any disease and any administration route in a context were such an instrument was not previously available.…”

Section: Discussionmentioning

confidence: 99%

Rasch analysis in the development of the NutriQoL® questionnaire, a specific health-related quality of life instrument for home enteral nutrition

Apezetxea

Carrillo²,

Casanueva

et al. 2018

J Patient Rep Outcomes

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BackgroundHome enteral nutrition (HEN) is a therapeutic method used in patients who are unable to ingest the required amounts of nutrients but retain a functional gastrointestinal tract. The objective of this study was to compose a specific questionnaire for measuring health-related quality of life (HRQoL) in HEN patients irrespective of their underlying condition and HEN route of administration.MethodsLiterature review, focus groups and semi-structured interviews were used to propose an initial version of the questionnaire which was answered by 165 participants. The responses were analyzed using the Rasch methodology. Firstly, the appropriateness of response options was assessed. Then, the differential item functioning (DIF) was evaluated. Finally, the item fit statistics, infit and outfit, were determined.ResultsRasch analysis was performed on the responses given to the 43 items included in the initial questionnaire. Four items were excluded because more than 50% of respondents answered that the situation proposed did not apply to them. Seven items that showed overlapping and disordered categories were also removed. Pairwise DIF analysis were performed in subgroups defined by underlying disease and administration route. Eleven items presented DIF and were eliminated from the questionnaire. Finally, four items were deleted after analyzing the fit statistics, three of which did not fit the Rasch model and one did not belong to either of the dimensions. The final version of NutriQoL® includes 17 items.ConclusionsNutriQoL® is a useful instrument to assess the HRQoL of HEN patients with any disease and any administration route.

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Reliability and Responsiveness of NutriQoL® Questionnaire

Cited by 5 publications

References 18 publications

Quality of life assessment instruments in adult patients receiving home parenteral and enteral nutrition: A scoping review

Quality of life assessment instruments in adult patients receiving home parenteral and enteral nutrition: A scoping review

Translation and cross-cultural adaptation of the NutriQoL® questionnaire to the Portuguese language: Brazilian version

Rasch analysis in the development of the NutriQoL® questionnaire, a specific health-related quality of life instrument for home enteral nutrition

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