Resident Training in Transitioning Youth With Epilepsy Into Adult Care

Tirol, Francis; Kumar, Anagha

doi:10.1177/0883073820953010

Cited by 3 publications

(3 citation statements)

References 11 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A significant finding was that adult health providers reported low-levels of confidence in dealing with complex forms of childhoodonset epilepsy. This finding was supported by Tirol and Kumar [20] whose qualitative study of resident doctors found most respondents rated their transition knowledge as very minimal. Respondents reported a lack of exposure to transition processes and the need for improved training.…”

Section: Published Work Acknowledges This Complex Time Withmentioning

confidence: 60%

“…This finding was supported in a qualitative study of resident doctors that found most respondents rated their transition knowledge as very minimal [20]. Respondents reported a lack of exposure to transition processes and the need for improved training.…”

Section: Health Services and Systemsmentioning

confidence: 71%

“…Health system continuity issues were found to contribute to shortfalls in transition services [1,26]. This presents as different treatment protocols, working methods, infrastructure, and priorities between service providers [2,20,26]. For example, it was noted that paediatric and adult health professionals may not know each other or understand each other's protocols and treatment models [18,26].…”

Section: Health Services and Systemsmentioning

confidence: 99%

See 2 more Smart Citations

Benefits And Challenges for Young Australians with Epilepsy Transitioning Into Adult Healthcare: A scoping review

Eckersley,

Kosiol

2023

APJHM

View full text Add to dashboard Cite

Transitioning from paediatric healthcare into an adult healthcare system is a high-risk time for people with complex epilepsy. This can be a period of significant upheaval as a young person moves away from familiar and safe paediatric environments into unfamiliar adult healthcare. This is compounded by normal adolescent development, the challenges of epilepsy and the lifestyle conditions it demands, including restrictions on driving and levels of independence. Such factors can contribute to suboptimal health engagement which result in increased seizure activity, hospital admissions and reduction in community participation. Effective, well implemented transition programs are key to reducing risks, however little is known about which features of transition pathways define success or best practice. A scoping review was used to examine a broad range of peer-reviewed literature published between 2017 and 2022. This review examined evidence-based literature relating to experiences of people with epilepsy as they transitioned between paediatric and adult healthcare environments. Specifically, exploring practices that offered benefits, recognising barriers, and identifying findings to inform future research and advance transition practices. This review found that key to reducing transition-related health impacts for young people was patient-centred, engaging care that acknowledges their psychosocial and mental health needs specific to their level of development. Evidence suggests that engagement is built through multidisciplinary clinics that facilitate education and self-management. This review found that successful programs can deliver this by focusing on four key areas; relationships and continuity, capacity building, processes, and health services and systems. At a paediatric level this involves timely, age-appropriate preparation that builds skills and knowledge through tailored care-plans. At the transfer phase this means coordinated teams that work together across systems to ensure handover continuity, reduce stressors, and to aid navigation. At the adult level, care-teams that welcome young patients with protocols for continued capacity building are required.

show abstract

Section: Published Work Acknowledges This Complex Time Withmentioning

confidence: 60%

Section: Health Services and Systemsmentioning

confidence: 71%

Section: Health Services and Systemsmentioning

confidence: 99%

See 1 more Smart Citation

Benefits And Challenges for Young Australians with Epilepsy Transitioning Into Adult Healthcare: A scoping review

Eckersley,

Kosiol

2023

APJHM

View full text Add to dashboard Cite

show abstract

Transition to adult care in epilepsy: A systematic review

Goselink¹,

Olsson²,

Malmgren³

et al. 2022

Seizure: European Journal of Epilepsy

View full text Add to dashboard Cite

Benefits and Challenges of Pediatric-to-Adult Health Care Transition in Childhood-Onset Neurologic Conditions

et al. 2023

View full text Add to dashboard Cite

Background and ObjectivesAlthough the importance of pediatric-to-adult health care transition (HCT) has been recognized, individuals with childhood-onset neurologic conditions often encounter challenges during pediatric-to-adult HCT, and HCT benefits for this population remain elusive. We assessed the current HCT situation in individuals with childhood-onset neurologic conditions to develop an improved transition system that incorporates patient perspectives.MethodsThis cross-sectional study was conducted at the Tokyo Metropolitan Kita Medical and Rehabilitation Center for the Disabled from November 2020 to December 2020. We targeted adults with childhood-onset neurologic conditions who visited the Department of Internal Medicine and their families. Questionnaires provided to 127 patients asked them about their experiences with pediatric-to-adult HCT (i.e., educational opportunities regarding HCT during pediatric visits, difficulties in transition, and the merits/demerits of adult practice) and their families' perspectives regarding pediatric-to-adult HCT. We also reviewed the patients' medical records to examine the severity of their disabilities.ResultsResponses were collected from 111 patients (response rate: 87%). Most patients had both severe physical and intellectual disabilities, and approximately half had a physical disability level of Gross Motor Function Classification System V and a profound intellectual disability. Half of the respondents were not transitioned through pediatric-to-adult HCT by their pediatricians, and they visited adult departments by themselves without a formal referral process. They experienced difficulties during HCT, such as a lack of knowledge regarding adult health care providers and consultants. However, those who underwent HCT benefited from it in terms of their health, experience, and service use, such as age- and condition-appropriate care, seeing adult specialists, and the introduction of adult services. They also addressed challenges in managing appointments and having adult doctors understand their medical history. Nonetheless, they were not informed about diseases and medical and welfare resources for adulthood during pediatric visits and desired to discuss future plans with pediatricians.DiscussionSystems that provide sufficient pediatric-to-adult HCT for individuals with childhood-onset neurologic conditions are required. Lifelong education for patients and families, training for pediatricians on HCT and neurologists on childhood-onset conditions and disabilities, and clinical practice and human resources that support patients and families are warranted.

show abstract

Resident Training in Transitioning Youth With Epilepsy Into Adult Care

Cited by 3 publications

References 11 publications

Benefits And Challenges for Young Australians with Epilepsy Transitioning Into Adult Healthcare: A scoping review

Benefits And Challenges for Young Australians with Epilepsy Transitioning Into Adult Healthcare: A scoping review

Transition to adult care in epilepsy: A systematic review

Benefits and Challenges of Pediatric-to-Adult Health Care Transition in Childhood-Onset Neurologic Conditions

Contact Info

Product

Resources

About