Resilience in Familial Caregivers of Children with Developmental Disabilities: A Meta-analysis

Iacob, Claudia I.; Avram, Eugen; Cojocaru, Daniel; Podină, Ioana R.

doi:10.1007/s10803-020-04473-9

Cited by 40 publications

(30 citation statements)

References 66 publications

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“…These factors are only a limited snapshot of the picture of mental health in caregivers during COVID-19. For example, resilient coping has been associated with self-efficacy, coping style, social support, cognitive appraisal, locus of control, optimism, acceptance, life satisfaction, and positive family functioning in families of autistic individuals (Bekhet et al, 2012;Iacob et al, 2020) and future research is needed to investigate these relations in caregivers during COVID-19. Research on the impact of COVID-19 on caregivers of autistic people suggest that these individuals and their families are experiencing increased demands and psychological distress (Lee et al, 2020).…”

Section: Discussionmentioning

confidence: 99%

Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study

Friesen

Weiss

Howe

et al. 2021

J Autism Dev Disord

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Many caregivers of autistic people experience mental health issues, and the impact of disruptions due to COVID-19 may present additional challenges for these individuals. This study characterized caregiver stress, anxiety, and resilient coping during COVID-19 and investigated the impact of COVID-19 disruptions, demographic variables, and resilient coping on mental health. The majority of caregivers reported some degree of disruption associated with COVID-19, and more than half reported moderate levels of stress and high anxiety. Resilient coping did not emerge as a moderator between COVID-19 disruptions and caregiver mental health, but instead had a direct effect on outcomes. Future research is needed to understand additional factors impacting the mental health of caregivers of autistic people during the COVID-19 pandemic.

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Section: Discussionmentioning

confidence: 99%

Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study

Friesen

Weiss

Howe

et al. 2021

J Autism Dev Disord

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“…Resilience is a process of interactive adaptation that facilitates coping in the face of adversity linked with a person's neurological and psychological makeup [47], and, equally (if not more) importantly, the socio-ecological contexts [48]. Past research in families of autistic individuals has shown that resilience is associated with social support, coping style (e.g., problem-focused coping), cognitive appraisal, optimism, locus of control, self-efficacy, acceptance, sense of coherence, and positive family function [49,50]. Autistic individuals demonstrate their resilience everyday through coping despite heightened stress and anxiety due to uncertainty and limited opportunities for inperson social interaction [9].…”

Section: Opportunities To Foster Resilience and Improve Care For Autimentioning

confidence: 99%

Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond

et al. 2020

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The new coronavirus disease (COVID-19) pandemic is changing how society operates. Environmental changes, disrupted routines, and reduced access to services and social networks will have a unique impact on autistic individuals and their families and will contribute to significant deterioration in some. Access to support is crucial to address vulnerability factors, guide adjustments in home environments, and apply mitigation strategies to improve coping. The current crisis highlights that our regular care systems are not sufficient to meet the needs of the autism communities. In many parts of the world, people have shifted to online school and increased use of remote delivery of healthcare and autism supports. Access to these services needs to be increased to mitigate the negative impact of COVID-19 and future epidemics/pandemics. The rapid expansion in the use of telehealth platforms can have a positive impact on both care and research. It can help to address key priorities for the autism communities including long waitlists for assessment and care, access to services in remote locations, and restricted hours of service. However, system-level changes are urgently needed to ensure equitable access and flexible care models, especially for families and individuals who are socioeconomically disadvantaged. COVID-19 mandates the use of technology to support a broader range of care options and better meet the diverse needs of autistic people and their families. It behooves us to use this crisis as an opportunity to foster resilience not only for a given individual or their family, but also the system: to drive enduring and autism-friendly changes in healthcare, social systems, and the broader socio-ecological contexts.

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“…Social support among these parents has also been found to modulate physical health outcomes like blood pressure (Gallagher and Whiteley, 2012;Lovell et al, 2012). Besides these benefits, social support is also implicated in fostering and sustaining resilience among parents of children with special needs (Bekhet et al, 2012;Iacob et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

Sources of perceived social support on resilience amongst parents raising children with special needs in Ghana

Dey

Amponsah

2020

Heliyon

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Background: While parenting a child with special needs is burdensome, some parents do overcome through protective resources. Social support has been widely linked to this unique ability to overcome the challenges of raising a child with special needs. In spite of this, there is still paucity of research about the influence of the sources of perceived social support on this ability, known as resilience. Aim: This study examined three sources of perceived social support-family, friends and significant other-on the resilience of Ghanaian parents raising children with special needs while adjusting for covariates (parental gender, marital status and educational level). Methods: One hundred and seven (107) biological parents were recruited from special schools and parents support groups in Accra, Ghana. They completed paper-and-pencil or online questionnaires on resilience and perceived social support. Results: Output from hierarchical multiple regression after adjusting for covariates showed that only support from significant others predicted resilience. Additionally, being married was positively and holding a higher education was inversely associated with resilience. Conclusion and implication: These findings indicate the importance of support from significant others in the resiliency of parents but underscore the need to fully integrate and emphasize support from the other sources in resilience enhancing interventions.

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Resilience in Familial Caregivers of Children with Developmental Disabilities: A Meta-analysis

Cited by 40 publications

References 66 publications

Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study

Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study

Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond

Sources of perceived social support on resilience amongst parents raising children with special needs in Ghana

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