Resilience, preparedness, and distress among family caregivers of patients with advanced cancer

Dionne‐Odom, J. Nicholas; Azuero, Andres; Taylor, Richard A.; Wells, Rachel; Hendricks, Bailey A.; Bechthold, Avery C.; Reed, Rhiannon D.; Harrell, Erin R.; Dosse, Chinara; Engler, Sally; McKie, Peggy; Ejem, Deborah; Bakitas, Marie; Rosenberg, Abby R.

doi:10.1007/s00520-021-06265-y

Cited by 46 publications

(26 citation statements)

References 41 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Previous studies have shown that people with higher resilience would actively cope with adversity and rapidly adapt to changes ( 19 , 20 ). Meanwhile, resilience partially mediates the correlation between negative life events and the mental health of caregivers of patients with advanced cancers ( 21 ) and diabetes ( 22 ). However, few studies have explicitly tested the mediating effects of resilience between care burden and depressive symptoms of family caregivers of stroke patients.…”

Section: Introductionmentioning

confidence: 99%

Relationships between care burden, resilience, and depressive symptoms among the main family caregivers of stroke patients: A cross-sectional study

et al. 2022

View full text Add to dashboard Cite

ObjectivesThis study aims to explore the potential mediating role of resilience between care burden and depressive symptoms in family caregivers of stroke patients.MethodsA cross-sectional study was conducted with a convenience sample involving 245 main family caregivers of stroke patients recruited from the neurology department of a Tertiary A hospital in China. Mediation analyses were conducted using the PROCESS macro (Model 4) for SPSS, applying the Bootstrap analysis with 5,000 samples and a 95% confidence interval.ResultsThe results showed that with constant hemiplegia side, Barthel Index, education level, monthly income, care time per day, and living with patients in regression equations, the resilience partially mediated the correlation of care burden and depressive symptoms with a mediation effect ratio of 26.32%.ConclusionsResilience plays a mediating role in the correlation between care burden and depressive symptoms.ImpactThe findings indicated a protective effect of resilience in alleviating the negative influences of care burden on depressive symptoms, suggesting that resilience-training intervention may be developed to mitigate depressive symptoms of the main family caregivers of stroke patients.

show abstract

Section: Introductionmentioning

confidence: 99%

Relationships between care burden, resilience, and depressive symptoms among the main family caregivers of stroke patients: A cross-sectional study

et al. 2022

View full text Add to dashboard Cite

show abstract

“…In informal caregiving, caregivers with high resilience tend to experience a low care burden even in the presence of high care demand from patients ( 23 , 68 ). More resilient caregivers always exert more active coping toward preparing for and executing caregiving tasks, which is good for improving their caregiving ability ( 69 ).…”

Section: Discussionmentioning

confidence: 99%

Resilience and caregiving ability among caregivers of people with stroke: The mediating role of uncertainty in illness

Wang

Cui

et al. 2022

Front. Psychiatry

View full text Add to dashboard Cite

BackgroundIn China, stroke survivors are usually cared for by their family members. However, the caregiving ability of these informal caregivers remain inadequate during the hospitalization of their family members following a sudden onset of a stroke, and this sudden need for care overwhelms caregivers even after the hospital discharge. Therefore, research is required to identify predictors of caregiving ability that could be targeted in future interventions aimed at improving caregiving skills and reducing the burden on caregivers who care for stroke survivors.Materials and methodsFrom August 2019 to February 2020, stroke survivors were hospitalized for the first time, and their family caregivers were registered via convenience sampling. Caregiver demographic information, resilience status, uncertainty in illness, caregiving ability, and patients' severity of stroke were measured using standardized questionnaires. Structural equation modeling was used to test the proposed model, where caregiver resilience and stroke severity predicted caregiving ability directly, and uncertainty in illness mediated the association between caregiver resilience and caregiving ability.ResultsA total of 306 dyads were included in the study. The tested model fit the data well (χ2 = 118.2, df = 64, RMSEA = 0.053, CFI = 0.946, TLI = 0.923). Statistically significant pathways linked caregivers' resilience status to uncertainty in illness (β = −0.558, S.E. = 0.022, P < 0.01), caregivers' resilience to the status of caregiving ability (β = −0.269, S.E. = 0.013, P < 0.01) and caregivers' uncertainty about the illness to caregiving ability (β = 0.687, S.E. = 0.051, P < 0.01). We also found that caregivers' uncertainty in illness mediated the association between caregivers' resilience and caregiving ability (β = −0.384, S.E. = 0.061, P < 0.01).ConclusionsOur structural equation modeling result identified resilience and uncertainty about the illness as predictors of the caregiving ability of informal family caregivers who suffered from care burdens. Supporting family caregivers to build their resilience and reduce illness uncertainty may improve caregiving for stroke survivors.

show abstract

“…In addition, we found that caregiver resilience and coping are vital, characterized by the need to adapt to new tasks and challenges along the treatment trajectory. Despite the importance of resilience in caregivers facing critical illness, the literature regarding caregiver and family resilience is scarce 8,35–38 . Coping as the dynamic process in which individuals deal with challenges 29 and resilience defined as “the process by which individuals are able to positively adapt to substantial difficulties, adversity, or hardship” 39 are essential concepts.…”

Section: Discussionmentioning

confidence: 99%

Experiences and Needs of Caregivers of Adult Patients With Hematologic Malignancies During Treatment

et al. 2022

View full text Add to dashboard Cite

Background: Family caregivers play a vital role in providing care and support for patients with life-threatening hematologic diseases. Extensive patient care needs and long-term treatment trajectories can negatively affect the health of caregivers. Despite the importance of supporting caregivers, few studies examine family caregivers' experiences and support needs during treatment. Objective: To explore the role, experiences, and needs of family caregivers of patients with hematologic malignancies during treatment. Methods: An exploratory longitudinal qualitative study using serial semistructured interviews with caregivers of hematologic patients was carried out. Data were analyzed using thematic analysis. Results: A sample of 16 caregivers completed 47 interviews. Three themes and 2 subthemes were identified: (1) committing to an unconditional mission while adjusting to a changeable situation: developing resilience over time; (2) being an invisible and inseparable sufferer: cultivating hope one day at a time; and (3) balancing between sacrificing one's own needs and self-care. Conclusions: During treatment, caregivers face long-term psychological and physical distress, social isolation, and loneliness due to the extended life-threatening situation imposing shifting challenges and needs. Future research should explore the concept of social support in caregiver resilience and investigate psychosocial interventions in hematologic caregivers.

show abstract

Resilience, preparedness, and distress among family caregivers of patients with advanced cancer

Cited by 46 publications

References 41 publications

Relationships between care burden, resilience, and depressive symptoms among the main family caregivers of stroke patients: A cross-sectional study

Relationships between care burden, resilience, and depressive symptoms among the main family caregivers of stroke patients: A cross-sectional study

Resilience and caregiving ability among caregivers of people with stroke: The mediating role of uncertainty in illness

Experiences and Needs of Caregivers of Adult Patients With Hematologic Malignancies During Treatment

Contact Info

Product

Resources

About