Resources for parents raising a disabled child in the UK

Morris, Christopher; Blake, Sharon; Stimson, Anna; Borek, Aleksandra; Maguire, Kath

doi:10.1016/j.paed.2020.05.006

Cited by 2 publications

(1 citation statement)

References 11 publications

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“…Through patient and family engagement strategic programs, health researchers are stimulated to do research with, rather than "on" families and children, and thus responding to direct family needs. [94][95][96] Comparative effectiveness analysis of treatment options are also being done to support informed decisions, 97 and propels advances in important, but often underexplored areas such as research in rare diseases, transition from pediatric to adult care, behavior management and mental health promotion strategies. 98,99 Bringing Rights to Practice: Social Justice Cases Several cases exist reporting on the violation of human rights for children with disabilities.…”

Section: Bringing Children Families and Community To The Examinationmentioning

confidence: 99%

Promoting the Human Rights of Children With Neurologic Conditions

Shikako‐Thomas

Shevell

2018

Seminars in Pediatric Neurology

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Children with neurologic conditions benefit from international conventions, and national treaties, policies and regulations that safeguard their human rights. These regulations also exist to serve as guidance in the creation of comprehensive systems of care, inclusive environments, accessible societies and communities that allow these children to thrive and to achieve the best of their capacities. This narrative review of issues related to human rights and advocacy in pediatric neurologic disabilities will provide an overview of the human rights conventions that relate to children with disabilities, and the most current approaches implicating health care providers in rights promotion for these individuals and their families. We also suggest venues for professionals to advocate for their patients, and suggest strategies to consider rights-based approaches as a mean to provide holistic care in a social neurology framework.

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