ObjectivesTo engage young people, parent carers and clinicians in a systematic process to identify and prioritise research questions regarding ways to improve the health and well-being of children and young people with neurodisability.DesignBritish Academy of Childhood Disability (BACD)-James Lind Alliance research priority setting partnership bringing together patients, carers and clinicians as equal stakeholders.SettingUK health service and community.MethodsThe BACD Strategic Research Group formed the partnership. A Steering Group was established; charity and professional partner organisations were recruited. Suggestions were gathered in an open survey and from research recommendations for statutory guidance. Items were aggregated to formulate indicative research questions and verified as uncertainties from research evidence. An interim survey was used to rank the questions to shortlist topics. A mixed group of stakeholders discussed the top 25 questions at the final priority setting workshop agreeing a final rank order and the top 10 research priorities.ParticipantsPartner organisations were 13 charities and 8 professional societies. 369 people submitted suggestions (40% non-clinicians). 76 people participated in the interim prioritisation (26 parents, 1 young person, 10 charity representatives, 39 clinicians); 22 took part in the final workshop (3 young people, 7 parents, 3 charity representatives, 9 professionals).ResultsThe top three research priorities related to (1) establishing the optimal frequency and intensity (dose) for mainstream therapies, (2) means for selecting and encouraging use of communication strategies and (3) ways to improve children's attitudes towards disability. The top 10 included evaluating interventions to promote mobility, self-efficacy, mental health, continence, physical fitness, educational inclusion and reduce impacts of sleep disturbance.ConclusionsThe methodology provided a systematic and transparent process to identify research priorities that included stakeholders that have typically not contributed to setting the research agenda. The top 10 and other topics identified provide a resource for researchers and agencies that fund research

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Children exposed to domestic violence are at risk for a range of psychosocial difficulties, which may be mitigated by improving their caregiver's mental health and capacity to parent. Life coaching is a promising behaviour change approach for improving the empowerment, efficacy and well-being of carers who are parenting alone following domestic violence. This study evaluated the feasibility of a novel life coaching programme. Using a pre-post-test design, the Family Vision© (FV) programme was implemented in two community settings. The programme was offered to single mothers with experience of domestic violence. Feasibility data were collected using satisfaction forms, semi-structured interviews and focus groups with parents, facilitators and managers. Mothers' self-reports about their mental well-being; empowerment and self-efficacy were collected, as well as the quality of their parent-child relationships and children's psychosocial functioning, using standardised measures at baseline and end of programme. The programme was found to have good acceptability for this population of parents and was considered feasible to deliver in the two community settings where it was piloted. There were indications that women who completed the programme had improved mental well-being, as well as improved empowerment and efficacy by the end of the programme. The FV programme is feasible to implement and could support positive change for single parents with respect to their mental health and capacity to parent effectively. Demonstrated mediators, these effects could also promote children's health and well-being. Feasibility for a randomised trial and wider scale-up in the community is now required.