Rheumatoid arthritis patient education: RA patients’ experience

Mäkeläinen, Paula; Vehviläinen‐Julkunen, Katri; Pietilä, Anna‐Maija

doi:10.1111/j.1365-2702.2008.02763.x

Cited by 38 publications

(54 citation statements)

References 28 publications

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“…Most described various feelings such as loneliness, depression and anxiety. Some research has shown that positive interaction which enabled chronically ill adults to ask questions and receive emotional support increased their self-confidence and feelings of security [12,21] . However, for most of the disease groups counseling was imposed on chronically ill adults rather than being agreed with them, and was not always carried out in a positive atmosphere for discussing emotions.…”

Section: Discussionmentioning

confidence: 99%

“…Individuals' level of knowledge about their disease varies, and they may have different expectations about the content of the counseling [20,24,25] . In addition, there is currently a lack of planning in patient counseling, which does not always take account of individual needs [12,14,26,27] . Although individual counseling is known to have positive effects on self-management and compliance [17,[28][29][30] , positive outcomes are not inevitable.…”

Section: Introductionmentioning

confidence: 99%

“…There is no commonly accepted definition of counseling in a nursing context [10][11][12][13] . The term counseling is used alongside terms such as patient education, information, advice, teaching, or guidance.…”

Section: Introductionmentioning

confidence: 99%

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Counseling chronically ill adults in the healthcare setting: An integrative literature review

Kaakinen¹,

Leena²,

Kääriäinen³

et al. 2012

JNEP

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Background: Chronic diseases among the adult population have increased rapidly worldwide. Chronically ill adults use health services more frequently; they are hospitalized more often and for a longer time than the average. Although counseling is an essential part of the care of chronically ill adults, there is no clear conception of counseling elements in healthcare settings. The aim of this integrative review is to describe the key elements of counseling of adults with chronic diseases. Methods:This integrative literature review describes elements of the counseling of chronically ill adults. The study was conducted by means of a systematic search of CINAHL (1981 to April 2010), Medline (1973 to March 2010 and Medic (1978 to April 2010) databases. Three reviewers selected the studies and two reviewers independently assessed the quality of studies. 31 studies were included in the data extraction and narrative synthesis. Results:The review identifies the following typical elements in the counseling of adults with chronic disease: the counseling needs of chronically ill adults; the implementation of counseling; and the impact of counseling. The counseling needs of chronically ill adults included 1) gaining an understanding of the disease and treatment in relation to everyday life, 2) handling of emotions, 3) social support. The implementation of counseling concerned 1) need-based and goal-oriented counseling, 2) the content of counseling, 3) the nature of interaction and atmosphere of counseling, 4) counseling time, 5) counseling methods and materials, and 6) challenges of implementation. The impact of counseling included increased 1) compliance with medication, 2) ability to cope with feelings, 3) understanding of the disease, and 4) quality of life. Conclusions:This study found that effective counseling should be based on the individual needs of chronically ill adults and it should include more knowledge about social services and provide support in handling emotions. The study also revealed it is important to plan counseling and to set goals in conjunction with chronically ill adults. The results of this review are useful for the development of counseling of chronically ill adults in a variety of healthcare settings.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Counseling chronically ill adults in the healthcare setting: An integrative literature review

Kaakinen¹,

Leena²,

Kääriäinen³

et al. 2012

JNEP

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“…Patients with rheumatoid arthritis (RA) were found to have a moderate knowledge of how to use anti-rheumatic drugs and NSAIDs (Mäkeläinen et al, 2009a) and about half of the patients (n = 173) were satisfi ed with patient education given by rheumatology nurses. The patients who were dissatisfi ed felt that the rheumatology nurses had not tailored the information to their needs (Mäkeläinen et al, 2009b). Nearly a third of the patients with RA (n = 86) who received therapy with anti-rheumatic drugs, corticosteroids and NSAIDs were consistently compliant.…”

Section: Introductionmentioning

confidence: 99%

Patients' perceptions of drug information given by a rheumatology nurse: A phenomenographic study

Larsson

Arvidsson

Bergman

et al. 2009

Musculoskeletal Care

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Background. Pain, stiffness and functional restriction of the joints are the main problems experienced by patients with infl ammatory rheumatic conditions. The majority of patients with rheumatic diseases require several drugs every day. Adherence is highest among patients who have repeatedly been given drug information by a nurse from the start of the treatment. When developing patient information, it is essential to utilize patients' experiences. Objectives. The purpose of this study was to describe variations in how patients with rheumatic diseases perceive drug information given by a rheumatology nurse. Methods. The study had a descriptive qualitative design with a phenomenographic approach. Fifteen inpatients with rheumatic diseases who had received a new drug agreed to take part in the study and were interviewed. Results. Three descriptive categories emerged: autonomy, power and security. Autonomy was based on patients' experiences of taking responsibility and participating. Power meant gaining knowledge and being motivated to take the drug. Security involved trust, experiencing care and access to a rheumatology nurse. Conclusions. For patients with a rheumatic disease, drug information from a rheumatology nurse gave them autonomy, power and security. These factors could explain why information from a nurse increases adherence to drug treatment.

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“…Research evidence shows that patient outcomes may be improved through individual nursing interventions [7]. Previous studies find that patients with arthritis are mostly preferred to individual nurse-delivered education by one-to-one communication on certain themes [8] [9]. While existing studies [10]- [12] investigate the effects of nursing education on the management of psoriasis, these studies do not focus on the specific type of psoriasis, psoriatic arthritis, and may be failed to include the educational component of how to manage symptoms of arthritis.…”

mentioning

confidence: 99%

Effects of a Nurse-Led Educational Intervention for Chinese Adult Patients with Psoriatic Arthritis: A Case-Control Study

Bi-shan¹,

Xin²,

Yan³

et al. 2016

OJN

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The aim of this study was to evaluate the effect of an individual nurse-led educational intervention for patients with psoriatic arthritis (PsA). This was a case-control study. The case group consisted of six individual educational sessions delivered by a nurse. A total of 40 patients with PsA joined in this study: the case group (n = 20) and the control group (n = 18). After a 6-week intervention, the case group had significantly better management for the severity of arthritis symptoms (p < 0.05), better psychological well-being and significant lower levels of anxiety (p < 0.05), and depression score (p < 0.01), and reported better improvement of physical and psychological domain of quality of life (QOL) (both p values < 0.05) than the control group. In conclusion, this nurse-led individual education intervention has statistically significant benefits for the management of clinical symptoms of arthritis and for psychological well-being and QOL in patients with PsA.

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Rheumatoid arthritis patient education: RA patients’ experience

Cited by 38 publications

References 28 publications

Counseling chronically ill adults in the healthcare setting: An integrative literature review

Counseling chronically ill adults in the healthcare setting: An integrative literature review

Patients' perceptions of drug information given by a rheumatology nurse: A phenomenographic study

Effects of a Nurse-Led Educational Intervention for Chinese Adult Patients with Psoriatic Arthritis: A Case-Control Study

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