Rheumatoid arthritis patients' knowledge of the disease and its treatments: A descriptive study

Mäkeläinen, Paula; Vehviläinen‐Julkunen, Katri; Am, Pietilä

doi:10.1002/msc.138

Cited by 31 publications

(38 citation statements)

References 25 publications

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“…33 The studies did not reveal a correlation between the level of knowledge of patients and their physical functioning in everyday life. The autors' own study showed, however, that the level of knowledge about the disease affected the SF domain in the SF-36 questionnaire.…”

Section: Discussionmentioning

confidence: 81%

Knowledge and selected variables as determinants of the quality of life and general health of patients with rheumatoid arthritis

et al. 2017

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Section: Discussionmentioning

confidence: 81%

Knowledge and selected variables as determinants of the quality of life and general health of patients with rheumatoid arthritis

et al. 2017

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“…As multi-professional education is offered to patients, [5] nurses also seemed to want education that was similarly derived. RA has a considerable impact upon the patients' quality of life, [4] and thus the needs of patients also require ever-widening areas of knowledge.…”

Section: Discussionmentioning

confidence: 99%

“…Otherwise, rheumatology or district nurses with physicians monitor the patient in health centres when the RA is in remission. [5] Very few RA patients undergo primary admission to hospital wards due to RA, but as a secondary diagnosis RA is rather common. The Finnish Medical Society Duodecim (2009) [6] has published national Current Care Guidelines concerning RA but it's focus is mainly on medical information and treatment of the disorder.…”

Section: Introductionmentioning

confidence: 99%

The educational needs of nursing staff taking care of patients with rheumatoid arthritis

Romppanen

Rantanen

Kuokkanen

et al. 2015

JNEP

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Objective: This study looks to describe the kind of education needed by nurses taking care of patients with Rheumatoid arthritis. Methods: Survey data concerning nurses' educational needs was collected from 11 hospitals with 33 units in two of the biggest hospital districts in Finland. The data was analyzed using thematic and summative content analysis. Results: The educational needs of nurses concerned medicinal treatment as an entirety, multiform information about RA, multiform treatment processes of RA, specified questions of care of RA patients, RA as a part of the everyday life of the RA patient and his/her family, the emotional nursing of the RA patient and his/her loved ones, and the strengthening of nurses' abilities to encounter patients. Education needs concerning medical issues comprised 76% of the responses. Needs connected to special questions of care covered 15%, and needs connected to emotional nursing, the patients' everyday life and to encounters with RA patients and their loved ones comprised 9%. Conclusions: Nurses wanted to strengthen their information base in all areas, especially those which were medically related. Educational needs concerning other professionals' areas of knowledge (e.g., physiotherapist) might indicate that nurses want to offer all-encompassing care to their patients.

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“…The majority of patients with rheumatic conditions need to take a number of different drugs. In order for the treatment to be knowledge of disease and treatment differs (Mäkeläinen et al, 2009a;Sierakowska, 2005). Following hospitalization, patients have insuffi cient knowledge about their medications.…”

Section: Introductionmentioning

confidence: 99%

“…Three-quarters of rheumatology nurses (n = 80) gave patients information about anti-rheumatic drugs and only 15% of the nurses also gave information about non-steroidal anti-infl ammatory drugs (NSAIDs) (Mäkeläinen et al, 2007). Patients with rheumatoid arthritis (RA) were found to have a moderate knowledge of how to use anti-rheumatic drugs and NSAIDs (Mäkeläinen et al, 2009a) and about half of the patients (n = 173) were satisfi ed with patient education given by rheumatology nurses. The patients who were dissatisfi ed felt that the rheumatology nurses had not tailored the information to their needs (Mäkeläinen et al, 2009b).…”

Section: Introductionmentioning

confidence: 99%

Patients' perceptions of drug information given by a rheumatology nurse: A phenomenographic study

Larsson

Arvidsson

Bergman

et al. 2009

Musculoskeletal Care

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Background. Pain, stiffness and functional restriction of the joints are the main problems experienced by patients with infl ammatory rheumatic conditions. The majority of patients with rheumatic diseases require several drugs every day. Adherence is highest among patients who have repeatedly been given drug information by a nurse from the start of the treatment. When developing patient information, it is essential to utilize patients' experiences. Objectives. The purpose of this study was to describe variations in how patients with rheumatic diseases perceive drug information given by a rheumatology nurse. Methods. The study had a descriptive qualitative design with a phenomenographic approach. Fifteen inpatients with rheumatic diseases who had received a new drug agreed to take part in the study and were interviewed. Results. Three descriptive categories emerged: autonomy, power and security. Autonomy was based on patients' experiences of taking responsibility and participating. Power meant gaining knowledge and being motivated to take the drug. Security involved trust, experiencing care and access to a rheumatology nurse. Conclusions. For patients with a rheumatic disease, drug information from a rheumatology nurse gave them autonomy, power and security. These factors could explain why information from a nurse increases adherence to drug treatment.

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Rheumatoid arthritis patients' knowledge of the disease and its treatments: A descriptive study

Abstract: RA patients' knowledge of their disease and its treatments varied from poor to good in this group. These results can be used for advancing RA patient education. However, more research is needed to evaluate RA patients' knowledge levels.

Cited by 31 publications

References 25 publications

Knowledge and selected variables as determinants of the quality of life and general health of patients with rheumatoid arthritis

Knowledge and selected variables as determinants of the quality of life and general health of patients with rheumatoid arthritis

The educational needs of nursing staff taking care of patients with rheumatoid arthritis

Patients' perceptions of drug information given by a rheumatology nurse: A phenomenographic study

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