Role of Canadian user‐led disability organizations in the non‐profit sector

Hutchison, Peggy; Arai, Susan; Pedlar, Alison; Lord, J. R.; Yuen, Felice

doi:10.1080/09687590701659550

Cited by 10 publications

(10 citation statements)

References 19 publications

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“…Fostering social capital is a key suggestion for stability in mental health mutual support groups (Hutchison, Arai, Pedlar, Lord, & Yuen, 2007). Mutual support in physical disability has faced similar challenges, and the promotion of social capital and advocacy through broader affiliations has, in some cases, been transformational for group stability (Hutchison et al, 2007). Around 77% of mental health survivor/user groups are reported to have local links (Wallcraft et al, 2003.…”

Section: Discussionmentioning

confidence: 99%

Leadership in community mutual support groups for mental health: A qualitative case study from the leaders' perspective

Gammage

Foster

2017

Community & Applied Soc Psy

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This study explores the experience of leadership of member‐led community‐based mental health mutual support groups. Recent research has documented factors that affect these groups, including leader well‐being, but little is known about the experience of leadership at the individual level. We aimed to understand more about the experience of leadership and how leading members conceptualise their roles. Individual semi‐structured interviews were conducted with 14 leaders of a community mental health mutual support group in England and thematically analysed. Three themes were identified through which leading members conceptualised their roles and group dynamics: (a) “It's a family”; (b) professional values; and (c) working as a team. These knowledge frameworks appeared to influence leaders' well‐being and conceptualisations of their role. The potential impact of this on group stability is discussed. Recommendations are made that group and individual‐level processes be considered together in future research in mental health mutual support contexts due to their interconnected nature.

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Section: Discussionmentioning

confidence: 99%

Leadership in community mutual support groups for mental health: A qualitative case study from the leaders' perspective

Gammage

Foster

2017

Community & Applied Soc Psy

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“…The formation and rise of the disability movement can be linked to disabled people's increased rejection of perceptions of disability as a personal tragedy that could only be alleviated through the intervention of non-disabled people, as exemplified for instance in Joseph Shapiro's (1993) book No Pity. The movement can also be seen as disabled people's struggle to exert control over their own lives and over the organisations representing them, as shown in the analysis of Canadian user-led disability organisations by Hutchison et al (2007).…”

Section: The Disabled People's Movementmentioning

confidence: 99%

From ‘for’ to ‘of’: a typology of Maltese disability organisations

Callus¹

2013

Disability & Society

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The main aim of this article is to adapt the Typology of Disability Organisations that Oliver devised, and subsequently developed further in 1990, to a different context, in this case the Maltese disability sector. The paper first traces the history of the disabled people's movement and presents Oliver's Typology, which makes a clear distinction between organisations for and of disabled persons. The article then highlights the main characteristics of the Maltese disability sector and develops the Typology of the organisations operating within that sector. It shows how it is nondisabled people that are mostly in control of disability organisations, and suggests ways in which there can be a stronger movement towards the development and strengthening of disabled people's organisations. The article shows how Oliver's Typology can be used flexibly and adapted to various contexts. It also shows how drawing up a Typology of Disability Organisations can shed light on the environment within which these organisations operate, identifying areas of strength and possible areas for growth.

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“…Unfortunately, even "user-led disability organizations" have to operate in a system that favors groups with charitable status and must be accountable to diverse funders who may shape their agendas (Hutchison, Arai, Pedlar, Lord, & Yuen, 2007). Non-profit organizations in Canada, especially disability, human rights, and social justice organizations, are barely holding on within the constraints of hyperneoliberalism and risk alienating already limited funding sources if they choose to explore creativity, radicalism or humour in their work.…”

Section: Non-profit Disability Organizations In a Period Of Hyper-neomentioning

confidence: 99%

Towards renewed descriptions of Canadian disability movements: Disability activism outside of the non-profit sector

Kelly

2013

CJDS

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There are a limited number of academic accounts of disability movements in Canada; however, the existing literature provides relatively consistent descriptions. According to this literature, the disability movement seeks incremental, rather than radical, change through government-led policy, legislation and legal challenges. This work explicitly or implicitly uses the activities and actors from non-profit disability organizations as the platform for documenting and analyzing the movement. In this article, I argue the documented parameters of the Canadian disability movement are only part of the picture. There is a much broader and conflicted world of activism in Canada, constituting multiple disability movements. This article looks beyond the non-profit sector and incorporates expanded definitions of 'activism' inspired by third-wave feminisms to reveal a more complex picture of contemporary Canadian disability movements. The article proceeds with a brief summary of existing descriptions of the disability movement in Canada. I then discuss the challenges faced by non-profit organizations in a period of hyper-neoliberalism and suggest social and economic factors push radical and creative disability activism outside of this sector. I provide five counter examples of Ontario-based disability activists and artists who disrupt the existing accounts and broaden our understanding of who and what constitute disability activism. The article concludes by providing some questions and tentative characteristics that head towards renewed descriptions of disability movements in Canada.

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Role of Canadian user‐led disability organizations in the non‐profit sector

Cited by 10 publications

References 19 publications

Leadership in community mutual support groups for mental health: A qualitative case study from the leaders' perspective

Leadership in community mutual support groups for mental health: A qualitative case study from the leaders' perspective

From ‘for’ to ‘of’: a typology of Maltese disability organisations

Towards renewed descriptions of Canadian disability movements: Disability activism outside of the non-profit sector

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