Sampling and recruitment methodology for a national eye health survey of Indigenous Australians

Fox, Sarah; Arnold, Anna-Lena; Dunn, Ross A.; Keeffe, Jill; Taylor, Hugh R.

doi:10.1111/j.1753-6405.2010.00635.x

Cited by 22 publications

(49 citation statements)

References 22 publications

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“…Acknowledging the significance of community involvement in research with disadvantaged groups, the National Health and Medical Research Council (NHMRC) [159] in Australia requires that health research with Aboriginal participants includes substantial and formal community involvement at all levels [113,114,118]. An added benefit of community engagement in health research is the enhanced likelihood of facilitating the translation of research outcomes to policy and practice.…”

Section: Discussionmentioning

confidence: 99%

Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups

Bonevski

Randell

Paul

et al. 2014

BMC Med Res Methodol

1,072

1,090

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BackgroundThis study aims to review the literature regarding the barriers to sampling, recruitment, participation, and retention of members of socioeconomically disadvantaged groups in health research and strategies for increasing the amount of health research conducted with socially disadvantaged groups.MethodsA systematic review with narrative synthesis was conducted. Searches of electronic databases Medline, PsychInfo, EMBASE, Social Science Index via Web of Knowledge and CINHAL were conducted for English language articles published up to May 2013. Qualitative and quantitative studies as well as literature reviews were included. Articles were included if they reported attempts to increase disadvantaged group participation in research, or the barriers to research with disadvantaged groups. Groups of interest were those described as socially, culturally or financially disadvantaged compared to the majority of society. Eligible articles were categorised according to five phases of research: 1) sampling, 2) recruitment and gaining consent, 3) data collection and measurement, 4) intervention delivery and uptake, and 5) retention and attrition.ResultsIn total, 116 papers from 115 studies met inclusion criteria and 31 previous literature reviews were included. A comprehensive summation of the major barriers to working with various disadvantaged groups is provided, along with proposed strategies for addressing each of the identified types of barriers. Most studies of strategies to address the barriers were of a descriptive nature and only nine studies reported the results of randomised trials.ConclusionsTo tackle the challenges of research with socially disadvantaged groups, and increase their representation in health and medical research, researchers and research institutions need to acknowledge extended timeframes, plan for higher resourcing costs and operate via community partnerships.

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Section: Discussionmentioning

confidence: 99%

Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups

Bonevski

Randell

Paul

et al. 2014

BMC Med Res Methodol

1,072

1,090

View full text Add to dashboard Cite

show abstract

“…In the GEHS, 18% of Indigenous Australians with DM were found to have any DR, and 7% found to have VTDR at first eye check . Furthermore, only 33% of Indigenous DR cases identified to benefit from laser photocoagulation from the SAEHP actually underwent treatment . A meta‐analysis of international studies conducted from 1975 to 2008 in patients not yet treated for DR showed that rates of progression to PDR and severe vision loss are substantially lower since 1985 compared with the pre‐1985 era .…”

Section: Discussionmentioning

confidence: 99%

“…The challenges in conducting population‐based research involving Indigenous Australians are well documented . Indigenous Australian studies included for this analysis were limited predominantly to volunteer cohorts because of the difficulties in collecting community‐derived, population‐based data.…”

Section: Discussionmentioning

confidence: 99%

Review of the prevalence of diabetic retinopathy in Indigenous Australians

Kaidonis

Mills

Landers

et al. 2014

Clinical Exper Ophthalmology

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The purpose of this review was to compare the prevalence of diabetic retinopathy (DR) between Indigenous and non-Indigenous Australians with Diabetes Mellitus (DM) using all available reported data, in order to help direct further research to those most susceptible to severe outcomes. All published studies describing prevalence of DR in a defined study population within Australia published between 1985 and 2013 were identified. Potentially relevant studies were reviewed and the following published data was extracted: study design, sample size with self-reported DM, indigenous status, mean age and range, gender, mean duration of DM, prevalence and severity of DR, and method used to grade DR. Six Indigenous studies (2865 persons with DM) and 5 non-Indigenous studies (9801 persons with DM) reporting DR prevalence satisfied inclusion criteria. Estimated prevalence of any DR among Indigenous Australians with DM was 23.4% compared with 28.9% for non-Indigenous Australians (χ 2

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“…Within each of these six strata, five sample areas or communities were randomly selected using 2006 ABS census data 15 to identify geographical areas containing about 300 Indigenous people. The sample size of 1500 children aged 5 to 15 years and 1500 adults aged 40 years and older was selected based on the ability to detect changes in vision impairment; 13 it also conformed to the World Health Organization's recommendation for the assessment of trachoma of 50 children per cluster 16 . Fieldwork was undertaken between January and December 2008.…”

Section: Methodsmentioning

confidence: 99%

“…A standardised questionnaire collected data on demographics, general health, eye health and health service utilisation, and a standardised eye examination was performed 13 . Trachoma was graded in each eye using a × 2.5 loupe according to the WHO simple grading system, 17 where: trachomatous inflammation, follicular (TF) was defined as the presence of five or more follicles in the upper tarsal conjunctiva; trachomatous inflammation, intense (TI) as pronounced inflammatory thickening of the tarsal conjunctiva that obscures more than half of the normal deep tarsal vessels; trachomatous trichiasis (TT) as the presence of at least one eyelash rubbing on the eyeball; trachomatous scarring (TS) as the presence of scarring in the tarsal conjunctiva; and corneal opacity (CO) as easily visible corneal opacity over the pupil.…”

Section: Methodsmentioning

confidence: 99%

The prevalence of trachoma in Australia: the National Indigenous Eye Health Survey

Taylor

Fox

Xie

et al. 2010

Medical Journal of Australia

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Objective: To determine the prevalence of trachoma among Indigenous Australians. Design, setting and participants: A national, stratified, random cluster sample survey of Indigenous children (5–15 years) and adults (≥ 40 years) in 30 communities across Australia. Data collection was undertaken in 2008. Main outcome measures: Results based on a standardised protocol that included trachoma grading and double grading of photographs of the tarsus. Results: 1694 Indigenous children and 1189 Indigenous adults were examined. Recruitment rates were 84% for children and 72% for adults. The overall rate of follicular trachomatous inflammation among children was 3.8%, ranging from 0.6% in major cities to 7.3% in very remote areas; 50% of communities in very remote areas had endemic rates (> 5%). Trachomatous scarring (TS) occurred among 15.7% of adults, trachomatous trichiasis (TT) among 1.4% and corneal opacity (CO) among 0.3%. TS was found in all regions and TT in all except major cities and inner regional areas. The highest community rates for TS were 58.3%; for TT, 14.6%; and for CO, 3.3%. Conclusion: Blinding endemic trachoma remains a major public health problem in many Aboriginal and Torres Strait Islander communities. Although active trachoma is predominantly seen in very remote communities, scarring and blinding sequelae occur among Indigenous people across the country. The Australian Government's recent commitment to eliminate blinding trachoma is welcomed and much needed.

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Sampling and recruitment methodology for a national eye health survey of Indigenous Australians

Cited by 22 publications

References 22 publications

Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups

Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups

Review of the prevalence of diabetic retinopathy in Indigenous Australians

The prevalence of trachoma in Australia: the National Indigenous Eye Health Survey

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