Samtaler om sykdom og behandling

Riddervold, Hilda M.; Høy, Elin; Varre, Pernille

doi:10.4220/sykepleiens.2008.0018

Cited by 1 publication

(1 citation statement)

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“…Other benefits mentioned were that FMs could ask questions, remember details of the conversation, receive important information, take notes, and report symptoms that the patient might have forgotten [34,35]. Well-informed patients are more likely to take part in their own care and treatment, which increases their participation [36][37][38]. In our study we found that patients who did bring someone to the consultation found that this helped them to remember and understand what was said, and to reflect on and sum up the content of the information perceived.…”

Section: Patient-centred Dialogue or Standardized Informationmentioning

confidence: 99%

In Limbo: Seven Families’ Experiences of Encounter with Cancer Care in Norway

Solberg

Berg

Andreassen

2021

International Journal of Integrated Care

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Introduction: Like many other countries, Norway has seen a shift from inpatient to outpatient cancer care, with pathways aimed at improving the integration and coordination of health services. This study explores the perspectives of seven patients and their family members in light of this change. We focus on one particular phase of the pathway: the first encounter. Our interviews were set in the period from referral until the start of treatment.Methods: Nineteen individual in-depth interviews were conducted in seven families. Seven patients with cancer and 12 family members were interviewed.Results: Three categories of experiences stood out in the empirical material: 'Being in between different health professionals', 'Overwhelmed by written and oral informationʼ and 'Lack of involvement'. Conclusion:This study provides insight into families' experiences with cancer care from referral until the start of treatment. Our findings indicate that families often experience cancer care as fragmented and confusing. Although evaluations have shown that the introduction of cancer pathways seems to have a positive effect on waiting times and standardization of examinations across hospitals and regions, there is still potential for improvement in coordination between services, family involvement, and emotional and practical support. We argue that our findings highlight the tension between two ideals of professional care: standardization and patient-centredness. The study illustrates shortcomings in translating the ideal of patient-centredness into professional practice.

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