School Experiences of Families of Children With Brain Tumors

Bruce, Beth; Chapman, Ann; Macdonald, Allison; Newcombe, Janice

doi:10.1177/1043454208323619

Cited by 38 publications

(109 citation statements)

References 16 publications

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“…All but one focused on child/adolescent siblings. Four qualitative papers were low in sibling‐specific scientific merit …”

Section: Resultsmentioning

confidence: 87%

“…Thirty papers reported on family functioning (3 quantitative, 25 qualitative, 2 mixed‐methods) . Seven qualitative papers were low in sibling‐specific scientific merit …”

Section: Resultsmentioning

confidence: 99%

“…Twenty‐eight papers reported findings related to social functioning (5 quantitative, 20 qualitative, 3 mixed‐methods) . All but one focused on child/adolescent siblings.…”

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review

et al. 2018

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Despite methodological limitations, research indicates a strong need for sibling support. Clinical recommendations include identifying at-risk siblings and developing interventions to facilitate family communication and increase siblings' social support, cancer-related knowledge, and treatment involvement. Future longitudinal studies focusing on mechanisms and moderators of siblings' adjustment would inform timing and targets of psychosocial care.

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“…All but one focused on child/adolescent siblings. Four qualitative papers were low in sibling‐specific scientific merit …”

Section: Resultsmentioning

confidence: 87%

“…Thirty papers reported on family functioning (3 quantitative, 25 qualitative, 2 mixed‐methods) . Seven qualitative papers were low in sibling‐specific scientific merit …”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review

et al. 2018

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“…The developing brain of childhood is particularly vulnerable to injury, especially from radiation (Pimperl, 2005). Children treated for craniopharyngioma can have deficits of higher cortical functions that can impair educational and social performance (Bruce, Chapman, MacDonald, & Newcombe, 2008). Such deficits may not be identified in standard intelligence quotient (IQ) testing.…”

Section: Discussionmentioning

confidence: 99%

Health Status in Long-Term Survivors of Pediatric Craniopharyngiomas

Crom

Smith

Xiong

et al. 2010

Journal of Neuroscience Nursing

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Craniopharyngiomas are the third most common pediatric brain tumor and most common pediatric suprasellar tumor. Contemporary treatment of craniopharyngiomas uses limited surgery and radiation in an effort to minimize morbidity, but the long-term health status of patients treated in this fashion has not been well described. The purpose of this study was to analyze the health status of long-term survivors of pediatric craniopharyngioma treated primarily with radiation and conservative surgical resection. Medical records of all long-term survivors of craniopharyngioma treated at St. Jude Children's Research Hospital and then transferred to the long-term follow-up clinic were reviewed. The initial cohort comprised 55 patients. Of these, 51 (93%) were alive at the time of this analysis. The median age at diagnosis was 7.1 years (range, 1.2Y17.6 years), and 29 (57%) were male. At the time of analysis, the median survival was 7.6 years (range, 5.0Y21.3 years). Diagnosis and treatment included surgical biopsy, resection (n = 50), and radiation therapy (n = 48). Only 1 patient received chemotherapy. Polyendocrinopathy was the most common morbidity, with hypothyroidism (96%), adrenocorticotropic hormone deficiency (84%), and diabetes insipidus (53%) occurring most frequently. Half of the patients were hypogonadal, and 33 (65%) were overweight or obese. The most common neurologic problems included shunt dependence (37%), seizures (28%), and headaches (39%). Psychological and educational deficits were also identified in a significant number of these individuals. Despite efforts to reduce morbidity in these patients, many survivors remain burdened with significant medical complications. In a small percentage of patients, complications may result in death even during extended remission of craniopharyngioma. Because of the broad spectrum or morbidities experienced, survivors of craniopharyngioma continue to benefit from multidisciplinary care.

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“…The child's cognitive problems must also be recognised early and taken into consideration when planning the child's schooling 13, 14. Furthermore, children without problems must be identified in order to avoid subjecting them to lengthy neurocognitive investigations.…”

Section: Introductionmentioning

confidence: 99%

Multiprofessional follow‐up programmes are needed to address psychosocial, neurocognitive and educational issues in children with brain tumours

et al. 2015

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AimThe aim of this study was to coordinate the structured psychosocial, neurocognitive and educational follow‐up of children treated for brain tumours with the medical protocol and apply the model in two Swedish healthcare regions.MethodsWe invited all children living in the two regions, who had been diagnosed with a brain tumour from October 1, 2010, through June 30, 2012, to participate along with their parents. The follow‐up programme evaluated the emotional status of the parents and patients and assessed the children's general cognitive level, working memory, speed of performance, executive functions and academic achievement from diagnosis through to adult care.ResultsDuring the study period, 61 children up to the age of 17.1 years were diagnosed with a brain tumour, but 18 of these were excluded for various reasons. The majority of the mothers (70%) displayed significantly poor emotional status, as did 34% of the fathers and 21% of the children. The majority of the children (57%) also showed poor neurocognitive performance and needed special adaptations at school (66%).ConclusionOur findings indicate the need for coordinated, multiprofessional follow‐up programmes, well anchored in the healthcare organisation, for children diagnosed with brain tumours

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School Experiences of Families of Children With Brain Tumors

Cited by 38 publications

References 16 publications

Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review

Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review

Health Status in Long-Term Survivors of Pediatric Craniopharyngiomas

Multiprofessional follow‐up programmes are needed to address psychosocial, neurocognitive and educational issues in children with brain tumours

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