Selbsthilfe und Gesundheit – Analysen, Forschungsergebnisse und Perspektiven

Borgetto, Bernhard

doi:10.1024/1012-5302.19.3.199b

Cited by 12 publications

(24 citation statements)

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“…Tab 7). This is also reflected by the work of [2]. 74% of the older VCHC members know other members in real life.…”

Section: Age -Until 25 Years and Older Than 55 Yearsmentioning

confidence: 85%

“…The questionnaire consists of four parts. (1) Demographical aspects as age, gender, usage of the Internet etc., (2) aspects that cover the disease, (3) aspects handling the offline and online connection, and (4) questions to e-services and the social network. This fourth part consists of 34 questions to medical information and online content, quality assurance mechanisms done on contributions of members and the operator, role of the operator, technical issues, possibilities of interaction, and the emotional bonding of the members to the community.…”

Section: Methodsmentioning

confidence: 99%

“…Parts of these qual-ity assurance issues are statements of members about physicians, clinical institutions, alternative methods of treatments etc. In the offline world these topics are part of discussion in self-help groups [2]. To discuss and to exchange information concerning these topics is important to participants of self-help groups.…”

Section: Influence Factors and E-services Within Vchcmentioning

confidence: 99%

“…Self-help groups have two main goals: mutual support and exchange of information [2]. Typically self-help groups have a number of experienced members that are affected for a long time by the disease and they are active in following research and know about treatments and all kind of medical institutions.…”

Section: Self-help Organizations and Self-help Groups Of Patientsmentioning

confidence: 99%

“…(26) Establishing friendship (7) Ask questions that are uncomfortable (10) Better understanding (12) More differentiating answers to questions (9) Know the people and people know me (6) More and up-to-date information available (28) Discussions about information of VCHC face to face (15) "Global" events (7) "Local" private events (4) Neutral support for medical issues (clinical institutions etc.) (2) Better support for local medical issues (physicians etc.) (5) More opinions to problems (25) Deeper discussion about problems (8) Let us discuss some of the results summarized in Tab.…”

Section: Offline and Online Integrationmentioning

confidence: 99%

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Online and Offline Integration in Virtual Communities of Patients — an Empirical Analysis

Dannecker

Lechner

2007

Communities and Technologies 2007

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“…Tab 7). This is also reflected by the work of [2]. 74% of the older VCHC members know other members in real life.…”

Section: Age -Until 25 Years and Older Than 55 Yearsmentioning

confidence: 85%

Section: Methodsmentioning

confidence: 99%

Section: Influence Factors and E-services Within Vchcmentioning

confidence: 99%

Section: Self-help Organizations and Self-help Groups Of Patientsmentioning

confidence: 99%

Section: Offline and Online Integrationmentioning

confidence: 99%

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Online and Offline Integration in Virtual Communities of Patients — an Empirical Analysis

Dannecker

Lechner

2007

Communities and Technologies 2007

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Development, situation and perspective of self-help support in Germany

Geene

Huber

Hundertmark-Mayser³

et al. 2009

Bundesgesundheitsbl.

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Self-help groups and self-help associations are an important part of the social security system. In Germany, self-help contact points, senior citizen centers, volunteer agencies, citizen centers and multi-generation houses combine citizen participation with innovative professional services. Unfortunately, there is no guarantee of continuous financial support for these important, locally administered institutions. There are about 280 self-help contact points and more than 400 federal self-help associations that support and promote self-help in Germany. Healthy communities, healthy workplaces and healthy people need a decentralized system of self-help programs operated at local and regional levels, in districts and towns. Thereby, professional support systems that operate self-help programs and promote citizen participation in the self-help programs must be managed in a similar regional format. New forms of cooperation from the regional and local governments, private companies, and citizen engagement already exist. Additionally, regional projects of integrated maintenance systems with the regional health maintenance institutions have been established. Currently, the central challenges of the self-help programs are quality development, inclusion of people with social disadvantages and of people with migrational background. The essential prerequisites for this work are continuous financial support and a politically supported infrastructure, which is in fact an important health investment.

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Patientenselbsthilfe, Nutzerperspektive und Versorgungsforschung

Borgetto

Knesebeck

2009

Bundesgesundheitsbl.

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Patient's individual responsibility, self-help and active co-operation are essential for the health care system. This paper presents a synopsis of research in self-help groups and self-help organizations. Studies provide evidence that self-help initiatives are an important contribution to population health. Especially self-help groups increase mutual aid and social support, knowledge about the disease and its consequences and possibilities for changing attitudes of the group members and their social environment. They disburden primary networks and families and reinforce an 'intelligent' utilization of professional health care services. There has been as yet hardly any systematic investigation of the activities of self-help organizations, except from counseling services. Self-help groups and organizations increasingly receive financial support from the social security system and have increasingly become part of the health care system. However, the co-operation between self-help initiatives and the professional health care system is characterized by an imbalance between laymen and experts. Given these results, self-help, user perspective and the health-related behavior of laymen should obtain more significance in the conceptualization and definitions of health services research.

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Selbsthilfe und Gesundheit – Analysen, Forschungsergebnisse und Perspektiven

Cited by 12 publications

References 0 publications

Online and Offline Integration in Virtual Communities of Patients — an Empirical Analysis

Online and Offline Integration in Virtual Communities of Patients — an Empirical Analysis

Development, situation and perspective of self-help support in Germany

Patientenselbsthilfe, Nutzerperspektive und Versorgungsforschung

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