Selecting among health-related quality-of-life instruments

Sen, Shuvayu S.; Gupchup, Gireesh V.; Thomas, Joseph

doi:10.1093/ajhp/56.19.1965

Cited by 9 publications

(4 citation statements)

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“…2007). Therefore, a number of diabetes‐specific measures of QoL have been developed and validated in order to assess patients' perceptions on diabetes emotional distress (Sen et al . 1999, Polonsky 2000, Garratt et al .…”

Section: Introductionmentioning

confidence: 99%

The Problem Areas in Diabetes (PAID) scale: psychometric evaluation survey in a Greek sample with type 2 diabetes

Papathanasiou

Koutsovasilis

Shea³

et al. 2012

Psychiatric Ment Health Nurs

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Several instruments have been developed for the assessment of emotional distress in patients with diabetes. The Problem Areas in Diabetes Scale (PAID) is a brief self-report scale that evaluates diabetes-related distress. There is a lack of validated instruments for the evaluation of psychological aspects in patients with diabetes in Greek language. The current study was conducted to translate and adapt the PAID scale in Greek language and to evaluate the psychometric properties in two different study populations of patients with diabetes. The aim of this study was to translate the Problem Areas in Diabetes (PAID) scale into Greek, adapt it culturally to Greece and determine its psychometric properties. The translation process included two forward translations, reconciliation, backward translation and pre-testing steps. The validation incorporated the exploration of internal consistency (Cronbach's alpha), test-retest reliability (interclass correlation coefficient), construct validity (exploratory factor analysis) and responsiveness (Spearman correlation coefficient). Participants included 101 consecutive patients from a rural primary healthcare centre and 101 patients from an urban hospital. All patients completed the PAID scale and the Short Form-36 (SF-36) version 2. Internal consistency considered good (Cronbach's alpha = 0.948). Interclass correlation coefficient was 0.942 (95% CI 0.915-0.961). Factor analysis yielded three factors: 'Diabetes-related emotional problems' (51.79% variance, Cronbach's alpha = 0.910), 'Food-related problems' (9.55% variance, Cronbach's alpha = 0.824) and 'Social support-related problems' (5.96% variance, Cronbach's alpha = 0.704). Screen plot test and conceptual congruency of items supported a three-factor solution. Total PAID showed a negative correlation with both SF-36 mental component summary (r = -0.733, P < 0.0001) and SF-36 physical component summary (r = -0.594, P < 0.0001). Our findings indicate that the Greek version of the PAID questionnaire is reliable and valid for patients with diabetes mellitus in Greece.

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Section: Introductionmentioning

confidence: 99%

The Problem Areas in Diabetes (PAID) scale: psychometric evaluation survey in a Greek sample with type 2 diabetes

Papathanasiou

Koutsovasilis

Shea³

et al. 2012

Psychiatric Ment Health Nurs

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“…Uma análise das publicações sobre qualidade de vida evidencia o crescimento do interesse na área. Enquanto em 1973, uma busca utilizando o termo qualidade de vida na MEDLINE citava somente cinco artigos, em 1998 este número passou a 16.256 citações 3 e, em 2001, chegou a 43.350 artigos com esse termo 4 .…”

Section: Introductionunclassified

Tradução e adaptação cultural do instrumento de avaliação de qualidade de vida para pacientes renais crônicos (KDQOL-SF TM)

Duarte¹,

Miyazaki²,

Ciconelli³

et al. 2003

Rev. Assoc. Med. Bras.

115

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“…The nature of the scales used in the instrument would depend on the intended use: whether the instrument is designed to be used for discriminative (or cross-sectional), evaluative (or longitudinal) or predictive purposes. A discriminative instrument would consist of mainly yes/no type of responses (Juniper, 1995 andSen et al, 1999). For evaluative instruments, individual items have to be sensitive to change.…”

Section: Hrql Measurement: Choice Of Scalesmentioning

confidence: 99%

“…An instrument that is used for discriminative purposes should have established reliability, cross-sectional validity (Guyatt et al, 1992), whereas an evaluative instrument should have reliability and longitudinal validity (Juniper, 1995 andSen et al, 1999). Reliability between patients would be measured by assessing the signal to noise ratio where signal represents between group differences, and noise represents within group differences (Streiner et al, 1989 andJuniper, 1995).…”

Section: Hrql Measurement: Psychometric Stabilitymentioning

confidence: 99%

Economic and humanistic impact of medication nonadherence in patients with asthma and chronic obstructive pulmonary disease

Joshi¹

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Asthma and chronic obstructive pulmonary disease (COPD) significantly impact morbidity and mortality. In spite of the well-known benefits of prophylactic medication use, especially in asthma, the rate of medication nonadherence is more than 50%. In Phase I, this study examined the relationship between refill-based medication nonadherence and healthcare utilization/costs in patients with asthma, COPD, and those with both asthma and COPD from the West Virginia (WV) Public Employees Insurance Agency (PEIA) program. In Phase II, the study measured the relationship between refillbased and self-reported medication nonadherence, health-related quality of life (HRQL), and losses in workplace productivity, all of which were determined via a mailed questionnaire to patients identified from Phase I. Phase I Results: The prevalence of asthma in the study population was similar to national estimates (203/10,000), whereas the prevalence of COPD was higher (598/10,000). Among asthma-only and those with both asthma and COPD, more than half the patients received medications according to NHLBI guidelines. Refill-based medication adherence was highest in patients having both asthma and COPD, as compared to asthma-only or COPD-only enrollees. The number of adverse outcomes such as hospitalizations and ED visits increased with increasing refill-based adherence for the COPD-only patients. Total healthcare costs increased with increasing medication adherence for all three groups. Thus, increasing medication adherence was possibly a reflection of increasing disease severity. Phase II Results: The overall response rate was almost 23% (N=918), and was highest for the asthma-only group (25%), followed by the 'both' group (24%), and the COPD-only group (15%). The perception of HRQL among WV PEIA enrollees was similar to those found in other studies. Only 40% of all Phase II respondents reported themselves as high adherent; the prevalence of self-reported adherence being similar in all three subgroups. The correlations between self-reported and refill-based adherence in the three groups were not clinically significant. Medication adherence was a significant predictor of HRQL for the COPD-only group, with HRQL worsening with increasing adherence. Self-reported health status was a significant predictor of HRQL for each of the three disease groups; and HRQL worsened with deteriorating health status. In all three groups, medication adherence was not significantly associated with losses in workplace productivity dollars.

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Selecting among health-related quality-of-life instruments

Cited by 9 publications

References 0 publications

The Problem Areas in Diabetes (PAID) scale: psychometric evaluation survey in a Greek sample with type 2 diabetes

The Problem Areas in Diabetes (PAID) scale: psychometric evaluation survey in a Greek sample with type 2 diabetes

Tradução e adaptação cultural do instrumento de avaliação de qualidade de vida para pacientes renais crônicos (KDQOL-SF TM)

Economic and humanistic impact of medication nonadherence in patients with asthma and chronic obstructive pulmonary disease

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