Self care and end of life care in advanced cancer: Literature review

Johnston, Bridget; McGill, Maria; Milligan, Stuart; McElroy, Dorothy; Foster, Claire; Kearney, Nora

doi:10.1016/j.ejon.2009.04.003

Cited by 51 publications

(54 citation statements)

References 56 publications

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“…2 Previous studies have established that having access to information about the disease and being encouraged to take self-care measures can help reduce both physical and psychosocial symptoms. 3 It is also known that many cancer patients desire more information and want to participate more actively in their own medical care. 4 The combination of these factors poses a challenge for healthcare providers, who must try to understand how patients view themselves as individuals, what is important to them, and how their relationships with others may affect their information needs and decision making during and after treatment.…”

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confidence: 99%

The Development of a Nurse-Led Internet-Based Learning and Self-care Program for Cancer Patients With Symptoms of Anxiety and Depression—A Part of U-CARE

et al. 2017

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Background: Having access to information about the disease and being encouraged to participate in self-care activities may reduce anxiety and depression symptoms in cancer patients. Internet-based interventions may be one way to support effective self-care strategies to improve emotional well-being and health-related quality of life. Objective: The aim of this study was to describe the development and acceptance of an Internet-based program intended to support cancer patients with anxiety and depression symptoms. Methods: A structured collaboration between patients, clinicians, and researchers was used to develop a theory- and evidence-based interactive health communication application (IHCA) based on Orem’s self-care deficit nursing theory with influences from Bandura’s social learning theory and psychoeducation. Results: The result is an IHCA described as a Nurse-led, Internet-based Learning and Self-care program that helps patients to perform self-care using different types of material in interaction with patients and healthcare staff. The acceptance of the program is consistent with the results of similar studies. Conclusions: Collaboration between patients, clinicians, and researchers seems to be a fruitful approach in the development of an IHCA aiming to support cancer patients’ self-care strategies. Well-designed intervention studies are needed to evaluate the effects of the IHCA. Implications for Practice: This article suggests a theoretical foundation for an IHCA and allows researchers and healthcare providers to take part in the discussion regarding format and content of IHCAs.

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confidence: 99%

The Development of a Nurse-Led Internet-Based Learning and Self-care Program for Cancer Patients With Symptoms of Anxiety and Depression—A Part of U-CARE

et al. 2017

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“…All of these roles and responsibilities allude to the concept known as 'self-management'. There is ambiguity present in the terminology used to describe self-management, which often also incorporates a number of other closely related concepts such as self care and self-help (Johnston et al (2009), Johnston et al (2014). A recent concept analysis identified that supported self-managemnet is a professionally facilitated process which is 'linked to the outcomes of the patient's actual and potential capacity to meet their identified needs' (Johnston et al 2014).…”

Section: Ijpn Daily Management Final Version Post Review Versionmentioning

confidence: 99%

The experiences of patients and carers in the daily management of care at the end of life

2014

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Background Home is the preferred location for most people with an advanced disease and at the end of life. A variety of care professionals work in community settings to provide support to this population. Patients and their spouses, who also care for them (spouse-carers), are rarely accompanied by these sources of support at all times, and have to manage independently between their contact with care professionals. Aim To explore how patients and spouse-carers manage their involvement with care professionals in the community setting. Method Interpretive phenomenology informs the design of the research, whereby 16 interviews were conducted with the patients and spouse-carers. Interviews were recorded and transcribed verbatim. Data were analysed using phenomenological techniques including template analysis. Findings Patients and spouse-carers were interdependent and both parties played a role in co-ordinating care and managing relationships with professional care providers. The patients and spouse-carers actively made choices about how to manage their situation, and develop and modify managing strategies based on their experiences. Conclusions When daily management is effective and care professionals acknowledge the dyadic nature of the patient and spouse-carer relationship, people have confidence in living with advanced disease.

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“…At the same time, individual capacities and preferences for self-management are likely to vary according to health status [14,19], learning styles [24] and sociodemographic profile [1,38]. Over-enthusiastic and simplistic promotion of selfmanagement might risk reinforcing inequality in favour of those individuals and groups with greater resources for self-care.…”

Section: Discussionmentioning

confidence: 99%

“…Whatever a person can be taught and encouraged to do by way of maximising their health in these circumstances can be seen as beneficial to them. Even in a condition such as advanced cancer, where there may be a shortened lifespan and more frequent interaction with health care professionals, self-care behaviours may contribute to reduced symptom burden and improved quality of life [14]. In a health system with finite resources it is rational to find ways to reduce utilisation of services, and hence lower expenditure, where those reductions do not compromise an individual's health status.…”

Section: Discussionmentioning

confidence: 99%

“…It is a relatively well-defined concept in long-term conditions such as arthritis, diabetes and asthma; but self-management of a long-term condition has been seen as very different from self-management of a lifeshortening illness [14]. Understanding of self-management in people with advanced cancer has been developing over the last decade or so [15][16][17][18][19][20].…”

Section: Introductionmentioning

confidence: 99%

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Supporting self-management of pain by patients with advanced cancer: views of palliative care professionals

Hughes

Closs

Flemming

et al. 2016

Support Care Cancer

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Methods: Qualitative research using focus group interviews.Results: Participants viewed self-management of cancer pain as desirable and achievable but also as something that could be problematic. Challenges to selfmanagement were perceived in: patient attitudes and behaviours, professionals' own beliefs and actions, the wider social system. Practitioners showed awareness of potential tension between their espoused views (the desirability that patients manage pain autonomously) and their tacit views (the undesirability of patients managing pain in ways which conflict with professionals' knowledge and identity).Conclusions Practitioners espoused patient-centred professional practice which inclined them towards supporting self-management. They showed awareness of factors which might inhibit them from effectively incorporating education and support for selfmanagement into routine practice.3

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Self care and end of life care in advanced cancer: Literature review

Cited by 51 publications

References 56 publications

The Development of a Nurse-Led Internet-Based Learning and Self-care Program for Cancer Patients With Symptoms of Anxiety and Depression—A Part of U-CARE

The Development of a Nurse-Led Internet-Based Learning and Self-care Program for Cancer Patients With Symptoms of Anxiety and Depression—A Part of U-CARE

The experiences of patients and carers in the daily management of care at the end of life

Supporting self-management of pain by patients with advanced cancer: views of palliative care professionals

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