In remote communities, where frequent face-to-face contact with health professionals may be difficult, the ongoing review and management of symptoms--a fundamental part of good palliative care--can be difficult to achieve. Telecare and other developments in information technology are increasingly being sought as a means of addressing shifting population demographics and rising demands on stretched health services, and may help in providing a system which allows patients to report their symptoms as they are happening. This may be one way of enhancing symptom management and improving quality of care at the end of life. A study testing the feasibility of using mobile phone-based technology (Advanced Symptom Management System in Palliative Care (ASyMSp)) to monitor and manage symptoms reported by patients being cared for at home in the advanced stages of their illness was carried out in two rural communities in the north of Scotland. The results of this study show that the system was usable and acceptable to patients and the health professionals who cared for them.

Poor oral health is an extremely common problem in patients with advanced cancer and, because of its impact on quality of life, promoting oral care should be regarded as a priority by every hospice and palliative care team. At Accord Hospice, Paisley, UK a protocol for oral care has been developed which is simple, inexpensive and evidence-based. Evaluation of the protocol has shown that it can lead to significant and consistent improvements in oral health and comfort. A survey of mouth-care practices in other Scottish hospice units reveals that although much agreement exists, certain practices that are unsupported by research evidence are still undertaken.

No abstract

Oral disease is common in patients with cancer and mouth care is an important element of palliative care. Responsibility for provision of this care usually falls to nursing staff. This study aimed to determine the level of mouth care provided by nurses for patients with cancer in Scottish hospices and in the community within Scotland, and to assess the value of a training pack in oral disease and oral care. Fifteen hospices, 52 Macmillan nurses and 112 district nurses were invited to participate. Responses to an initial questionnaire confirmed the important role of nurses in providing mouth care, but highlighted significant deficiencies in training, particularly for district nurses, and a lack of formal protocols in this area. There was little interaction with professional dental staff. Training packs, including clinical photographs and simple mouth care protocols were sent to 15 hospices, 20 Macmillan nurses and 45 district nurses. A follow-up questionnaire six weeks later showed that the packs had been very well received and had resulted in significant changes to mouth care practices of many of the users. However, 34% of the respondents felt that further training would still be beneficial.

Pressure ulcer prevention is an important aspect of palliative care nursing. This article reports part 1 of the results of a postal questionnaire survey of all 206 palliative care inpatient units listed in the St Christopher's' information service hospice directory. The key areas surveyed were current pressure ulcer prevention policies in use in UK palliative care units and current practice in relation to pressure ulcer risk assessment. Issues arising from these results are also discussed: the key elements of a pressure ulcer policy and the role and timing of pressure ulcer risk assessment.