Self‐concept in children with Down syndrome

Saha, Sayoni; Doran, Eric; Osann, Kathryn; Hom, Christy; Movsesyan, Nina; Rosa, Diana De La; Tournay, Anne; Lott, Ira T.

doi:10.1002/ajmg.a.36597

Cited by 13 publications

(13 citation statements)

References 48 publications

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“…These between group differences may be attributable to caregiver perception of youth self-perception and self-concept awareness. Youth with DS hold very positive self-perceptions across domains (33), though mental age may affect the ability of an individual with DS’s to form a self-concept (34). Thus, providers may be more likely to persuade caregivers of children with DS about the need to lose weight based on threats to health and effects on physical and social functioning rather than on obesity’s negative effects on self-esteem.…”

Section: Discussionmentioning

confidence: 99%

Caregiver-Reported Quality of Life in Youth with Down Syndrome

Xanthopoulos

Walega

Xiao

et al. 2017

The Journal of Pediatrics

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Objectives To describe caregiver-reported QOL in youth with DS and to examine the role of obesity on QOL. Study design Caregivers of youth with and without DS aged 10 through 20 years completed questionnaires examining QOL (PedsQL) and weight-related QOL (Impact of Weight on Quality of Life-Kids: IWQOL-Kids). Age- and sex-specific Z-scores were generated for body mass index (BMI). Obesity was defined as a BMI≥95th percentile for age and sex. Results Caregiver-reported Total QOL, Physical Health, and Psychosocial Health summary scores were all lower in the DS group compared with the non-DS controls (p<0.001). Social and School Functioning were also lower (p<0.001), but Emotional Functioning did not differ between DS and non-DS groups (p=0.31). Physical Functioning (p=0.003) and Total scores (p=0.03) differed between obese and non-obese non-DS youth, but no differences were reported between obese and non-obese youth with DS. On the IWQOL-Kids, caregivers of youth with DS reported higher Body Esteem (p=0.020) and Social Life scores (p=0.03) than caregivers of non-DS youth. Caregivers of youth with obesity, regardless of DS status, reported significantly lower weight-specific QOL scores than caregivers for non-obese youth. Conclusion Caregivers reported lower QOL in youth with DS compared with youth without DS with the exception of emotional functioning. Obesity influences most domains of weight-related QOL in youth with and without DS; therefore, providers should address weight concerns in youth with obesity even in the presence of DS.

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Section: Discussionmentioning

confidence: 99%

Caregiver-Reported Quality of Life in Youth with Down Syndrome

Xanthopoulos

Walega

Xiao

et al. 2017

The Journal of Pediatrics

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“…This is reflected already in toy research: when children with Down's syndrome were given a choice of dolls, they preferred to play with the non-disabled doll as opposed to the doll with features of Down's syndrome (Saha et al, 2014). In addition, the children attributed more positive traits to the non-disabled doll (Saha et al, 2014). Toys, then, are important not just for representation, but for opening dialogue around diversity, impairment, and what this means.…”

Section: Towards Positive Representation In the Toy Industrymentioning

confidence: 92%

Parents' responses to toys representing physical impairment

Jones

Ali

Bhuyan

et al. 2020

EDI

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PurposeThis study aimed to look at parents' perceptions of a number of different toy prototypes that represented physical impairments and predictors of these perceptions.Design/methodology/approachA correlational survey design was used. Parents of children aged 4–10 years who identified their child as having a disability (n = 160) and not as having a disability (n = 166) took part. They rated a number of prototypes for likelihood that their child would enjoy playing with them and completed measures of their responses toward children with disabilities and of their own and their child's direct contact with people with disabilities.FindingsIt was found that, among parents of children who did not declare that their child had a disability, the more open the parents were toward disability, the more contact the children had with other children with disabilities and the more likely they were to consider that their child would like to play with a toy prototype representing a physical impairment. This pattern of results was not found among parents who identified their child as having a disability, where instead positive friendship intentions of parents mediated this association.Research limitations/implicationsThese findings have implications for theories informing the positive benefits of disability representation.Practical implicationsThese findings indicate different paths through which parents might be moved to purchase toys that represent physical impairments for their children.Social implicationsThese findings suggest that representative toys might be associated with an open dialogue around the topic of disability.Originality/valueThis is the first study of the responses of parents to toys that represent physical impairments known to the authors.

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“…In fact, diverse dolls might not even be welcomed by the children they represent. Like Clark’s original doll studies, 5 children belonging to marginalized groups have repeatedly been shown to favor typical dolls over those that look like them, 6,8,16 suggesting that they are not immune to recreating societal stigma in the dollhouse. Furthermore, researchers have found that when exposed to Emme dolls representative of a size 16, young girls report greater “desire to be thin when adults” compared to neutral controls, suggesting not only that realistically sized dolls might lack the desired effect on body‐esteem, but that they might instead have the opposite effect of decreasing it 11 .…”

mentioning

confidence: 89%

“Doll #135 with vitiligo”: Are alopecia and vitiligo Barbie worth the hype?

Shah

2020

Pediatric Dermatology

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Long legs, blonde hair, and flawless skin: Barbie's globally renowned image. However, it is out with exclusionary appearances and in with a "multi-dimensional view of beauty" as Mattel released a new line of Fashionista Barbie dolls earlier this year. 1 Dubbed "the most diverse doll line" and developed alongside a dermatologist, the latest collection boasts four body types, 34 skin tones, and 94 hairstyles, including vitiligo and alopecia (totalis) Barbie. 1 The dolls received widespread celebration for their potential to benefit children with similar dermatoses, and dermatologists have even recommended the dolls to their younger patients. 1,2 However, the dolls' effects on children's self-esteem and stigmatization have yet to be established. Here, we present a more realistic view than that purported by the media, arguing that vitiligo and alopecia Barbies' proposed benefits are unlikely to materialize.

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Self‐concept in children with Down syndrome

Cited by 13 publications

References 48 publications

Caregiver-Reported Quality of Life in Youth with Down Syndrome

Caregiver-Reported Quality of Life in Youth with Down Syndrome

Parents' responses to toys representing physical impairment

“Doll #135 with vitiligo”: Are alopecia and vitiligo Barbie worth the hype?

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