Self‐disgust and stigma both mediate the relationship between stoma acceptance and stoma care self‐efficacy

Jin, Yanfei; Ma, Hongmei; Jiménez-Herrera, María

doi:10.1111/jan.14457

Cited by 31 publications

(17 citation statements)

References 67 publications

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“…In this study, the stigma level of patients with IBD-related stoma was consistent with that of patients with CRC-related stoma in other studies evaluated with the same SIS scale ( 11 , 27 ). However, the average self-efficacy score seems to be slightly lower than the measurement level of the same scale for patients with CRC (75.79 ± 23.91 vs. 81.03 ± 16.30) ( 14 ). One obvious difference was that patients with IBD-related stoma were younger than those with CRC-related stoma (37.10 ± 9.98 vs. 60.95 ± 7.38) ( 14 ).…”

Section: Discussionmentioning

confidence: 96%

“…Additionally, the current status of such patients are poorly recognized. Psychosocial assessments of patients with stoma have been increasingly performed in recent years, but the study population predominantly included patients with CRC ( 11 , 14 ). Few studies have been conducted exclusively on patients with IBD-related stoma.…”

Section: Discussionmentioning

confidence: 99%

“…Therefore, this management strategy seeks to restore patient's autonomy, position patients at the center of their own management process, and help them acquire and maintain competencies to enable them to efficiently manage their condition ( 13 ). From the limited data available, the self-efficacy level of patients with IBD-related stoma is unclear, whereas those with CRC-related stoma showed a moderate level ( 14 ).…”

Section: Introductionmentioning

confidence: 99%

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Perceived Stigma and Self-Efficacy of Patients With Inflammatory Bowel Disease-Related Stoma in China: A Cross-Sectional Study

Wang

Gong

et al. 2022

Front. Med.

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BackgroundPatients with inflammatory bowel disease (IBD)-related stoma face physical, psychological, and social adjustment challenges. However, knowledge about stigmatization and self-management, which is important for clinical care and patient education strategies, is lacking.ObjectiveTo evaluate the level of stigma and self-management ability of Chinese patients with IBD-related stoma using an online questionnaire.MethodsParticipants were recruited from two general hospitals in mainland China and the internet platforms of the China Crohn's and Colitis Foundation (CCCF). Participants completed a questionnaire, which gathered data on sociodemographic, clinical, and experience in online groups, self-efficacy scale, and social impact scale. The influencing factors of self-efficacy and perceived stigma were assessed by stepwise multivariate regression analyses.ResultsOne hundred and seventy-six respondents were included. Most of the respondents (78/176, 44.32%) spent between 500 and 999 RMB ($77–153) on ostomy care accessories monthly. Three patients reported using homemade ostomy products. The average score on the self-efficacy scale was 75.79 ± 23.91, which reflected a moderate level of self-efficacy, and 69 (39.2%) respondents had low-level self-efficacy. The average social impact scale score was 62.76 ± 12.69, which reflected a moderate level of perceived stigma. Forty-three (24.43%) patients experienced severe levels of perceived stigma. Stepwise multivariate regression analysis revealed that self-efficacy was associated with educational level (P = 0.007), whereas stigma was associated with nursing privacy (P = 0.021) and acceptance by the closest person (P = 0.005). A total of 91% of respondents who participated in online peer support groups believed the groups were helpful for disease management.ConclusionsChinese patients with IBD-related stoma reported a moderate degree of perceived stigma; their level of self-efficacy was low to moderate. High educational level was associated with high self-efficacy. Notably, acceptance of the stoma by the closest person was an influencing factor protecting patients from perceived stigma. Interventions aimed at improving patient education, reducing economic burden, and strengthening social support should be considered to help improve the living conditions of patients with IBD-related stoma.

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Section: Discussionmentioning

confidence: 96%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Perceived Stigma and Self-Efficacy of Patients With Inflammatory Bowel Disease-Related Stoma in China: A Cross-Sectional Study

Wang

Gong

et al. 2022

Front. Med.

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“…Meaningfulness, as the principal mediator in the current study, seems to be the key dimension of sense of coherence and might carry off the role of the other two facets ( Super et al, 2015 ). The socially threatened sense of self brought about by stigma endangers meaningful orientation toward life and ongoing (adverse) events, which are crucial for patients with chronic diseases ( Wang et al, 2016 ; Jin et al, 2020 ). So, stigma may impact the quality of life in patients with breast cancer by diminishing their sense of meaningfulness.…”

Section: Discussionmentioning

confidence: 99%

Stigma and Quality of Life in Women With Breast Cancer: Mediation and Moderation Model of Social Support, Sense of Coherence, and Coping Strategies

et al. 2022

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ObjectivesThe breast cancer stigma affects Health-related quality of life (HRQoL), while general resilience resources (GRRs), namely, sense of coherence (SOC), social support, and coping skills, are thought to alleviate this effect. The study aimed to explore the mediating/moderation role of GRRs in the relationship between stigma and HRQoL and its dimensions in Iranian patients with breast cancer.MethodsIn this cross-sectional study, Stigma Scale for Chronic Illness 8-item version (SSCI-8), SOC-13, Medical Outcome Survey- Social Support Scale (MOS-SSS), Brief COPE, and Functional Assessment of Cancer Therapy-Breast (FACT-B) were investigated in a convenience sample of Iranian women with confirmed non-metastatic breast cancer. Following the establishment of correlations using Pearson’s correlation, single and parallel mediation analysis and moderation analysis were conducted to determine the extent to which each GRR might be impacted by stigma or decrease the adverse impact of stigma on HRQoL.ResultsAn analysis of 221 women (response rate of 87.5%) with the mean age of 47.14 (9.13) showed that stigma was negatively correlated to all HRQoL’s dimensions (r = −0.27∼0.51, p < 0.05), SOC (r = −0.26∼0.35, p < 0.01), social support (r = −0.23∼0.30, p < 0.01), and the bulk of coping skills. In the single mediation analysis, stigma affected all facets of SOC, all subscales of social support, and positive reframing, which partially reduced breast cancer HRQoL. Stigma affects general HRQoL through damaging meaningfulness, social support (except for tangible), and positive reframing. Meaningfulness was marked as the most impacted GRR in terms of all domains of HRQoL. In parallel mediation, reduced meaningfulness, total social support, and positive reframing were highlighted as the pathways of diminished breast cancer HRQoL. Moderation analysis indicated the higher levels of humor, behavioral disengagement, and use of instrumental support behaviors to be functional in protecting different dimensions of HRQoL, while the results were mixed for venting, especially in patients with mastectomy surgery.ConclusionWhile GRRs may be impacted by stigma, they exert a relatively small protective effect against the impact of stigma on HRQoL. This study provides some novel findings, but longitudinal studies are needed to further verify these before any causal conclusion or recommendations for health policy can be drawn.

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“…Feelings about leprosy, such as whether the condition is perceived in strong affective terms like 'disgust', may automatically influence self-care behaviour too. 18,19 These behaviours are impacted by many factors that can be encompassed by COM-B. The need to earn a living, for example, by walking miles every day to the field or through physical work, often limits opportunity and presents an environmental barrier for many people living with leprosy.…”

Section: Mo Ti Vati O Nmentioning

confidence: 99%

Application of behavioural psychology principles to self-care programmes for people living with leprosy

Choudhury

Kudrna

Celiktemur

et al. 2021

LEPROSY

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Self‐disgust and stigma both mediate the relationship between stoma acceptance and stoma care self‐efficacy

Cited by 31 publications

References 67 publications

Perceived Stigma and Self-Efficacy of Patients With Inflammatory Bowel Disease-Related Stoma in China: A Cross-Sectional Study

Perceived Stigma and Self-Efficacy of Patients With Inflammatory Bowel Disease-Related Stoma in China: A Cross-Sectional Study

Stigma and Quality of Life in Women With Breast Cancer: Mediation and Moderation Model of Social Support, Sense of Coherence, and Coping Strategies

Application of behavioural psychology principles to self-care programmes for people living with leprosy

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