Self-management and health related quality of life in persons with chronic obstructive pulmonary disease

Bringsvor, Heidi Breistrand; Langeland, Eva; Oftedal, Bjørg Frøysland; Skaug, Knut; Aßmus, Jörg; Bentsen, Signe Berit

doi:10.1007/s11136-019-02231-8

Cited by 9 publications

(6 citation statements)

References 84 publications

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“…The symptom component consists of eight items, including frequency and distress from respiratory symptoms in terms of phlegm/sputum, shortness of breath, wheezing, and chest trouble [49,50]. The SGRQ has been translated into different languages and has satisfactory reliability and validity [49,51], including in Norwegian samples [52,53].…”

Section: Pain and Other Symptomsmentioning

confidence: 99%

Changes in and predictors of pain and mortality in patients with chronic obstructive pulmonary disease

Bentsen

Holm

Christensen

et al. 2020

Respiratory Medicine

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This longitudinal study of patients with chronic obstructive pulmonary disease (COPD) aimed to investigate changes in pain characteristics (i.e., occurrence, intensity, and interference) and covariates associated with pain from study enrollment to 12 months, and to investigate if the different pain characteristics were associated with 5-year mortality. In total, 267 patients with COPD completed questionnaires five times over 1 year. The mean age of the patients was 63 years (standard deviation: 9.0), 53% were women, and 46% had very severe COPD. Median number of comorbidities was 2.0 (range: 0-11) and 47% of patients reported back/neck pain.Mixed models and Cox regression models were used for analyses. In total, 60% of the patients reported pain at baseline, and 61% at 12 months. The mixed model analyses revealed that those with better forced expiratory volume in 1 second (% predicted), more comorbidities, only primary school education, and more respiratory symptoms reported significantly higher average pain intensity. Moreover, those with more comorbidities, more respiratory symptoms, and more depression reported higher pain interference with function. At the 5-year follow-up, 64 patients (24%) were deceased, and the cumulative 5-year mortality rate was 22% (95% confidence interval [19][20][21][22][23][24][25]). Older age, lower forced expiratory volume in 1 second (% predicted), and higher pain interference at enrollment were all independently and significantly associated with higher 5-year mortality. Our findings show that many patients with COPD have persistent pain, and awareness regarding comorbidities and how pain interferes with their lives is needed.

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Section: Pain and Other Symptomsmentioning

confidence: 99%

Changes in and predictors of pain and mortality in patients with chronic obstructive pulmonary disease

Bentsen

Holm

Christensen

et al. 2020

Respiratory Medicine

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“…Some studies also encompassed person-centred concepts such as empowerment, 57 self-management as self-initiated and self-directed, 55 and self-management as multi-dimensional and based on factors which cross the personal, medical, psychological, social and system domains. 4,54,60,77,78…”

Section: Resultsmentioning

confidence: 99%

“…A minority of studies used other measures of the social and psychological aspects of self-management such as self-management or self-care behaviour, 4,50,54,60 or social and family support 54,55,57,58,60 Some studies also encompassed personcentred concepts such as empowerment, 57 selfmanagement as self-initiated and self-directed, 55 and self-management as multi-dimensional and based on factors which cross the personal, medical, psychological, social and system domains. 4,54,60,77,78 Two texts 53,69 criticised conceptualisations of self-management that adopt a medicocentric view of what people with COPD should do to selfmanage, with an absence of focus on shared decision-making between health care professionals and people with COPD. However, these were in the minority of texts that took the medicocentric perspective, and they still argued that people with COPD need to be encouraged to acquire and apply specific skills in self-management.…”

Section: The Medicocentric Conceptualisation Of Copd Self-managementmentioning

confidence: 99%

Conceptualisations of COPD self-management: A narrative review of the research literature

Delaney¹,

Cronin

Huntley-Moore

2022

Chronic Illness

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Aim To examine how self-management is conceptualised in the research literature on chronic obstructive pulmonary disease (COPD). Methods A narrative review was undertaken to search the research literature on COPD self-management. Ten databases (2000–2021) were searched for published texts. Sixty-two articles met the inclusion criteria. A thematic analysis was conducted of the literature. Results Three conceptualisations of COPD self-management were identified: 1) a dominant medicocentric conceptualisation which represented self-management as medical in focus; 2) a less dominant experiential conceptualisation that viewed it as arising from the experiences of people living with COPD; and 3) a smaller body of literature that attempted to integrate medicocentric and experiential conceptualisations of self-management. Discussion The dominance of the medicocentric conceptualisation of self-management and the polarisation of medicocentric and experiential perspectives were striking. An integrated conceptualisation of self-management has the potential to unite these competing perspectives and promote collaborative relationships between individuals and professionals, so long as the underlying values informing it are made explicit. However, there is a dearth of literature on this approach and it would benefit from more attention. Methods such as Co-production and the Personal Outcomes Approach offer the potential to support an integrated perspective in clinical practice.

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“…Vivir con EPOC es un proceso complejo de por vida, debido a los fenómenos fisiopatológicos y comportamentales descritos con anterioridad. Las personas con EPOC experimentan una disminución importante en CVRS (41)(42)(43)(44)(45). Factores como la concientización de las implicaciones físicas de la patología y la implementación de medidas de autocuidado, se han destacado cada vez más como importantes, para mejorar la CVRS en personas con EPOC.…”

Section: Intervenciones Con Impacto De La Cvrs En El Epocunclassified

“…Factores como la concientización de las implicaciones físicas de la patología y la implementación de medidas de autocuidado, se han destacado cada vez más como importantes, para mejorar la CVRS en personas con EPOC. El concepto de autocuidado es multidimensional y puede definirse como "la capacidad del individuo para manejar los síntomas, el tratamiento, las consecuencias físicas y psicosociales y los cambios de estilo de vida inherentes a vivir con una enfermedad crónica (41). Este parámetro puede proporcionar un nivel de autogestión suficientemente eficaz, para controlar la propia condición de salud y de efectuar las respuestas cognitivas, conductuales y emocionales necesarias para impactar positivamente en la CV.…”

Section: Intervenciones Con Impacto De La Cvrs En El Epocunclassified

Calidad de vida relacionada con la salud e intervenciones emergentes en EPOC: revisión de literatura

Rebolledo-Cobos¹,

Vera-Brand²,

Ahumada-Sánchez³

et al. 2021

Rev. Fac. Cienc. Salud Univ. Cauca

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La enfermedad pulmonar obstructiva crónica (EPOC) es una enfermedad con amplias implica1qciones sociales y económicas, su incidencia mundial seguirá aumentando, siendo para la próxima década la cuarta causa global de muerte. El deterioro físico subsecuente a la disfunción pulmonar, trae consigo cambios multisistémicos que desencadenan la reducción de la capacidad funcional del individuo, dichos fenómenos están relacionados con la severidad de los síntomas y también el nivel detrimento del sistema cardiovascular y musculoesquelético. Por ende, los pacientes con EPOC tienden a reducir su calidad de vida relacionada con la salud (CVRS) y consigo, una reducción de la expectativa de vida. El tratamiento del paciente con esta enfermedad no se limita a la farmacoterapia y tratamientos paliativos secundarios, sino que también trasciende en la identificación e intervención de factores que afectan la CVRS. La presente revisión tuvo los objetivos de explorar, analizar y exponer evidencia científica conspicua que asocia a la funcionalidad y CVRS en pacientes con EPOC. Los hallazgos muestran la importancia de evaluar e intervenir los factores que reducen la CVRS. Alternativas como la educación y coaching en salud parecen lograr reducir el impacto de la enfermedad en diversas esferas del individuo.

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Self-management and health related quality of life in persons with chronic obstructive pulmonary disease

Cited by 9 publications

References 84 publications

Changes in and predictors of pain and mortality in patients with chronic obstructive pulmonary disease

Changes in and predictors of pain and mortality in patients with chronic obstructive pulmonary disease

Conceptualisations of COPD self-management: A narrative review of the research literature

Calidad de vida relacionada con la salud e intervenciones emergentes en EPOC: revisión de literatura

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