Sense-Making Methodology as an Approach to Understanding and Designing for Campaign Audiences: A Turn to Communicating Communicatively

Dervin, Brenda; Foreman-Wernet, Lois

doi:10.4135/9781544308449.n10

Cited by 59 publications

(69 citation statements)

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“…In order to gain insights about how health information available via the Internet fit within broader contexts of health information‐seeking for young women with breast cancer, we adopted a qualitative, person‐centered methodology consistent with Dervin's (1999) sense‐making methodology. A cancer diagnosis signifies a lifetime of “making sense” in a fragmented and uneven information environment (Hesse, Arora, Beckjord & Rutten, 2008).…”

Section: Approach and Methodologymentioning

confidence: 99%

“…We were interested in situating this study within the context of sense‐making throughout critical junctures in the breast cancer journey: discovery of a lump, initial diagnosis, treatment decision‐making, and completing treatment. Similar to Dervin's (1999) approach, we were interested in enlarging the concept of information beyond what Dervin referred to as ‘the usually institutionally‐prescribed scientific facts' to a view of information situated within the context of human practices and acts of sense‐making. Towards this end, we provided respondents with an opportunity to narratize their experiences in ways that were personally meaningful, rather than imposing pre‐assigned response categories on their experiences.…”

Section: Approach and Methodologymentioning

confidence: 99%

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Situating Internet Use: Information-Seeking Among Young Women with Breast Cancer

Balka

Krueger²,

Holmes³

et al. 2010

Journal of Computer-Mediated Communication

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In recent years considerable attention has been focused on the potential of the Internet as a means of health information delivery that can meet varied health information needs and empower patients. In this article, we explore utilization of the Internet as a means of health information consumption amongst young women with breast cancer who were known Internet users. Focusing on a population known to be competent at using the Internet allowed us to eliminate the digital divide as a possible explanation for limited use of the Internet for health information-seeking. Ultimately, this allowed us to demonstrate that even in this Internet savvy population, the Internet is not necessarily an unproblematic means of disseminating health care information, and to demonstrate that the huge amount of health care information available does not automatically mean that information is useful to those who seek it, or even particularly easy to find. Results from our qualitative study suggest that young women with breast cancer sought information about their illness in order to make a health related decision, to learn what would come next, or to pursue social support. Our respondents reported that the Internet was one source of many that they consulted when seeking information about their illness, and it was not the most trusted or most utilized source of information this population sought.doi:10.1111/j. 1083-6101.2010.01506.x Introduction: The Promise of Online Health InformationIn recent years the Internet has received considerable attention as a means for dissemination of health information. Internet based delivery of health information 389is often viewed as an optimal way to disseminate health information because it offers privacy, immediacy, a wide variety of information, and a variety of perspectives (Bischoff and Kelley, 1999). An expansion of health information websites has been supported by health policy documents in many countries, which suggest that greater availability of health information via the Internet will lead to the emergence of more informed patients who are better able to assess the risks and benefits of different treatments for themselves.For example, a Health Canada planning document identified the provision of ''relevant, credible and timely health information to the public to empower individuals to manage their own health through a Canadian Health Network and self-care and telecare services '' (Health Canada, 2000: 79) as one of three priorities. Services such as the National Health Services' NHS Direct Online have been developed in order to ''help people to take more responsibility for their own health and to communicate with healthcare professionals'' (Department of Health, 2004). Similarly a European Union policy document argues that ''as Member States try to contain healthcare costs and the paternalist model of 'doctor-knows-best' is eroded, patients want to learn about their condition, its treatments, and preventative measures'' and calls for promotion of ''the educational power of the Internet to ...

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Section: Approach and Methodologymentioning

confidence: 99%

Section: Approach and Methodologymentioning

confidence: 99%

Situating Internet Use: Information-Seeking Among Young Women with Breast Cancer

Balka

Krueger²,

Holmes³

et al. 2010

Journal of Computer-Mediated Communication

View full text Add to dashboard Cite

show abstract

“…3 Communication is the mechanism by which teachers teach and learners learn, 4 by which marketers promote products and services, and consumers decide what to buy and to consume. Communication is a fundamental human process without which most individual, group, organizational, and societal activities could not happen, including how people think about and respond to HIV/AIDS.…”

Section: What Is Communication?mentioning

confidence: 99%

What Is Health Communication and How Does It Affect the HIV/AIDS Continuum of Care? A Brief Primer and Case Study From New York City

Storey

Seifert-Ahanda

Andaluz

et al. 2014

JAIDS Journal of Acquired Immune Deficiency Syndromes

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This article responds to key questions related to health communication that are commonly asked in the HIV/AIDS arena: "What is health communication?"; "What is its role beyond HIV prevention?"; and "How can it be used to achieve better HIV/AIDS outcomes?" We review how communication scientists think about their own discipline and build on a basic definition of communication as a fundamental human process without which most individual, group, organizational, and societal activities could not happen, including how people think about and respond to health issues such as HIV and AIDS. Diverse factors and processes that drive human behavior are reviewed, including the concept of ideation (what people know, think, and feel about particular behaviors) and the influence of communication at multiple levels of a social ecological system. Four main functions of communication-information seeking and delivery, persuasion, social connection and structural/cultural expression and maintenance-are linked to a modified version of the Department of Health and Human Services Continuum of Care and are used to conceptualize ways in which communication can achieve better HIV/AIDS outcomes. The article provides examples of how communication complements other types of interventions across the HIV/AIDS continuum of care and has effects on HIV-related knowledge, attitudes, social norms, risk perceptions, service delivery quality, and behavioral decisions that affect if and when the virus is transmitted, when and where testing and care are sought, and how well adherence to antiretroviral therapy is maintained. We illustrate this approach with a case study of HIV/AIDS communication conducted by the New York City Health Department during 2005-2013.

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“…This recognizes that responses made by participants are in an ongoing state of change and development, and are not fixed (Dervin and Foreman-Wernet 2013). It posits that people often need space and time to engage in open and honest communication, to share and compare responses, provide genuine feedback, and to resist influences that may inadvertently encourage compliance, consensus or agreement (Dervin & Foreman-Wernet 2013, 153-55).…”

Section: Discussionmentioning

confidence: 99%

“…This paper reports on an inclusive design approach for people living with advanced dementia and stakeholders in their care. The study employs mixed methodologies and draws on ethnographic approaches, arts engagement practices, communication theories, co-design research theories and practices, and design approaches for people living with dementia (Dervin and Foreman-Wernet 2013;Hendriks et al 2014;Kenning 2016;Maldonado Branco, Quental, and Ribeiro 2017;Stephens, Cheston, and Gleeson 2012;Treadaway and Kenning 2015). The pilot, design research project enabled people living with dementia to have input into the design process, regardless of their abilities and level of contribution.…”

Section: Introductionmentioning

confidence: 99%

Reciprocal design: inclusive design approaches for people with late stage dementia

Kenning

2018

Design for Health

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More people, than ever before, are living into advanced old age. As a result incidences of agerelated, non-communicable disease such as dementia will increase. Dementia is an umbrella term for a range of conditions that impact cognitive and physical functioning. It is terminal.Scientific and medical communities continue to search for a cure. Meanwhile, attention is increasingly being refocused and, rather than prioritizing a long life at any cost, exploring what it means to have a good quality of life and how to live well with dementia, regardless of the stage of the disease.Design has an important role to play in supporting quality of life of people living with dementia.However, designers need to take into account the many varied contexts in which people live, the different manifestations of the disease, and individual wants, needs and preferences. Co-creative approaches can enable people living with dementia and stakeholders in their care, to engage in the design process and impact products and services made for them, provide opportunities for social engagement, interaction and pleasure, and give designers insights into the embodied experience of living with dementia and the social and cultural impact. This paper discusses a participatory design research project with people living with advanced dementia in residential care facilities in Australia.

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Sense-Making Methodology as an Approach to Understanding and Designing for Campaign Audiences: A Turn to Communicating Communicatively

Cited by 59 publications

References 0 publications

Situating Internet Use: Information-Seeking Among Young Women with Breast Cancer

Situating Internet Use: Information-Seeking Among Young Women with Breast Cancer

What Is Health Communication and How Does It Affect the HIV/AIDS Continuum of Care? A Brief Primer and Case Study From New York City

Reciprocal design: inclusive design approaches for people with late stage dementia

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