Service users' views regarding user involvement in mental health services: A qualitative study

Laitila, Minna; Nummelin, Jalmiina; Kortteisto, Tiina; Pitkänen, Anneli

doi:10.1016/j.apnu.2018.03.009

Cited by 33 publications

(25 citation statements)

References 36 publications

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“…A recent study about service users' views regarding involvement in mental health services supports our findings that patient involvement is enhanced when they are part of the creation of care pathways and specific training for the workers. Scaria argues that interprofessional teamwork through use of care pathways is perceived as being essential for the delivery of a high‐quality service that results in patient satisfaction and that health care professionals with different sets of knowledge, skills, and talents should collaborate to achieve common goals.…”

Section: Discussionsupporting

confidence: 84%

See 1 more Smart Citation

Patients' perspectives on care pathways and informed shared decision making in the transition between psychiatric hospitalization and the community

Sather

Iversen

Svindseth

et al. 2019

Evaluation Clinical Practice

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Rationale, aims, and objectives Patients with mental health problems experience numerous transitions into and out of hospital. This study explores former patients' views of pathways in transition between district psychiatric hospital centres (DPCs) and community mental health services. Method A descriptive qualitative design was chosen. Three focus group interviews with a total of 10 informants from five different communities were conducted. Interviews were transcribed and analysed thematically where themes describe promoting or inhibitory factors to the transition phase. Results The informants shared their experiences on issues promoting and preventing successful care pathways in mental health. Four main paired themes were identified: (a) patient participation/activation/empowerment versus paternalism and institutionalization, (b) patient‐centred care versus care interpreted as humiliation, (c) interprofessional collaboration or teamwork versus unsafe patient pathways in mental health services, and (d) sustainable integrated care versus fragmented, noncollaborative care. Conclusions Shared decision making was reported more precisely as informed shared decision making. Shared information between all parties involved in care pathways is key.

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Section: Discussionsupporting

confidence: 84%

“…A recent study 59 informants reported that this did not always happen. Dialogue and entering the transition process at an early stage was strongly recommended.…”

Section: Interprofessional Collaboration or Teamwork Versus Unsafe mentioning

confidence: 99%

Patients' perspectives on care pathways and informed shared decision making in the transition between psychiatric hospitalization and the community

Sather

Iversen

Svindseth

et al. 2019

Evaluation Clinical Practice

View full text Add to dashboard Cite

show abstract

“…Just as in research, clinician regard of patients as true partners has failed to occur in some environments despite policies intended to support such collaboration. [46][47][48] In clinical practice, it is clear that the development of a therapeutic alliance is associated with improved behavioral health care outcomes. [49][50][51] Additionally, the shift toward a more person-centered care model, including an asset-based, collaborative process and shared decision-making, are thought to improve engagement.…”

Section: Sharing Of Clinical Notes To Support Patients As Agentsmentioning

confidence: 99%

Patients as Agents in Behavioral Health Research and Service Provision: Recommendations to Support the Learning Health System

Galvin¹,

Petersen

Subbian

et al. 2019

Appl Clin Inform

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Authentic inclusion and engagement of behavioral health patients in their care delivery and in the process of scientific discovery are often challenged in the health care system. Consequently, there is a growing need to engage with and better serve the needs of behavioral health patients, particularly by leveraging health information technologies. In this work, we present rationale and strategies for improving patient engagement in this population in research and clinical care. First, we describe the potential for creating meaningful patient–investigator partnerships in behavioral health research to allow for cocreation of knowledge with patients. Second, in the context of behavioral health services, we explore the utility of sharing clinical notes to promote patients' agency in care delivery. Both lines of inquiry are centered in a Learning Health System model for behavioral health, where patients are agents in enhancing the therapeutic alliance and advancing the process of knowledge generation. Recommendations include genuinely democratizing the health care system and biomedical research enterprise through patient-centered information technologies such as patient portals. In research and technology development, we recommend seeking and tailoring behavioral health patients' involvement to their abilities, promoting patient input in data analysis plans, evaluating research and informatics initiatives for patients and clinicians, and sharing success and research findings with patients. In clinical practice, we recommend encouraging patients to read behavioral health notes on portals, engaging in proactive communication regarding note content, assessing outcomes including stress and anxiety in response to note content, and working with technology providers to support note-sharing governance and deployment.

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“…Patton (2013) found that while nurses appeared to be confident about their level of engagement with consumers, some thought that unwell consumers were not able to engage and participate in their care initially. Consumers, on the other hand, in a study by Laitila et al (2018) emphasized the need to be more involved in decision-making about their care and they described how deficits in professionals' knowledge and skills might inhibit this. Daremo and Haglund (2014) found that consumers believed that it was important to have an agreement about the purpose of their care and they identified that this agreement did not always occur, but that when they did engage with staff they felt well supported.…”

Section: Factors Hindering Nurse-consumer Therapeutic Engagementmentioning

confidence: 99%

A lack of therapeutic engagement and consumer input in acute inpatient care planning limits fully accountable mental health nursing practice

Rio

Fuller

Taylor

et al. 2019

Int J Mental Health Nurs

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It is mental health consumer's human right to lead a fulfilling life as they are empowered to actively manage their recovery. This can be facilitated through care planning, yet research suggests that the care plan is not routinely created, discussed, or updated in acute mental health settings. Research on care planning and the role of the mental health nurse highlights the importance of therapeutic communication in care plan development. This paper argues that the lack of meaningful care plan discussions between consumers and mental health nurses in an acute setting is a limitation to the practice of fully accountable mental health nursing care. We explore this limitation in quality care provision by examining literature on accountability and conclude that in mental health nursing, accountability is frequently enacted through an overarching focus on the organizational need to manage risks, rather than on therapeutic engagement.

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Service users' views regarding user involvement in mental health services: A qualitative study

Cited by 33 publications

References 36 publications

Patients' perspectives on care pathways and informed shared decision making in the transition between psychiatric hospitalization and the community

Patients' perspectives on care pathways and informed shared decision making in the transition between psychiatric hospitalization and the community

Patients as Agents in Behavioral Health Research and Service Provision: Recommendations to Support the Learning Health System

A lack of therapeutic engagement and consumer input in acute inpatient care planning limits fully accountable mental health nursing practice

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