Services and Supports, Partnership, and Family Quality of Life

Kyzar, Kathleen; Brady, Sara E.; Summers, Jean Ann; Haines, Shana J.; Turnbull, Ann P.

doi:10.1177/0014402916655432

Cited by 31 publications

(25 citation statements)

References 44 publications

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“…In 2010, Zuna et al [ 16 ] proposed a definition that highlights the dynamic meaning of the construct. This definition has been cited by 15 of the articles selected in this study [ 6 , 33 , 37 , 38 , 39 , 40 , 41 , 42 , 43 , 44 , 45 , 46 , 47 , 48 , 49 ].…”

Section: Resultsmentioning

confidence: 99%

State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

Mora

Ibáñez

Balcells‐Balcells

2020

IJERPH

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Background: In recent years, there has been a growing international interest in family quality of life The objective of this systematic review is to understand and analyze the conceptualization of the quality of life of families with children with disabilities between 0 and 6 years of age, the instruments for their measurement and the most relevant research results. Method: A bibliographic search was conducted in the Web of Science, Scopus and Eric databases of studies published in English and Spanish from 2000 to July 2019 focused on “family quality of life” or “quality of family life” in the disability field. A total of 63 studies were selected from a total of 1119 and analyzed for their theoretical and applied contributions to the field of early care. Results: The functional conceptualization of family quality of life predominates in this area, and a nascent and enriching holistic conceptualization is appreciated. There are three instruments that measure family quality of life in early care, although none of them is based on unified theory of FQoL; none of them focus exclusively on the age range 0–6 nor do they cover all disabilities. Conclusions: The need to deepen the dynamic interaction of family relationships and to understand the ethical requirement that the methods used to approach family quality of life respect the holistic nature of the research is noted.

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Section: Resultsmentioning

confidence: 99%

State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

Mora

Ibáñez

Balcells‐Balcells

2020

IJERPH

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“…Recently, Kyzar, Brady, Summers, Haines, and Turnbull (2016) examined the relationship between partnership, FQOL, and service/support adequacy for families of children and youth with deaf-blindness. FQOL was defined as “a dynamic sense of well-being of the family, collectively and subjectively defined and informed by its members, in which individual and family-level needs interact” (Zuna, Summers, Turnbull, Hu, & Xu, 2010, p. 262).…”

mentioning

confidence: 99%

Family Quality of Life and Partnership for Families of Students With Deaf-Blindness

Kyzar

Brady²,

Summers

et al. 2018

Remedial and Special Education

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Family–professional partnerships are a key support for families of children with disabilities, but little is known about families of children with deaf-blindness. This study examined (a) the factor structures of the Beach Center on Disability Family–Professional Partnership and Family Quality of Life (FQOL) Scales utilizing a national sample of families of children and youth with deaf-blindness (age birth to 22 years), and (b) the relationship between family–professional partnership and FQOL at the subdomain levels. Results suggested a two-factor solution for family–professional partnership (Enhancing Connection and Enhancing Capacity) and a three-factor solution for FQOL (Family Interaction/Parenting Well-being, Social/Emotional Well-being, Physical/Material Well-being). Enhancing Capacity Partnership moderated the relationship between Enhancing Connection Partnership and Family Interaction/Parenting Well-being FQOL. The significance of these findings in light of the existing family–professional partnership literature is discussed, and implications for research and practice are offered.

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“…Other benefits involve greater academic achievement, goal attainment, and self-determination among individuals with disabilities (Katz, Madjar, & Harari, 2015). Additional benefits of parent-professional collaboration include increased rates of competitive employment after graduation (Francis, Gross, Turnbull, & Parent-Johnson, 2013), increased family wellbeing (Kyzar, Brady, Summers, Haines, & Turnbull, 2016), and enhanced instructional efficacy (Haines, McCart, & Turnbull, 2013).…”

Section: Parent Involvement and Parent-professional Collaborationmentioning

confidence: 99%

Barriers and Supports to Parent Involvement and Collaboration During Transition to Adulthood

Francis

Regester

Reed

2018

Career Development and Transition for Exceptional Individuals

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Parent involvement and parent–professional collaboration influence positive transitions from school into adult life among young adults with disabilities. However, parents frequently report being uninformed and uninvolved in transition planning and there is a paucity of information on how to develop these relationships in high school and postsecondary settings. The purpose of this study was to investigate the perspectives of parents of young adults who graduated from a postsecondary education program. We conducted semistructured interviews with 26 parents of young adults with intellectual and developmental disabilities who graduated from a postsecondary education program in the United States. Participants identified five primary barriers to parent–professional collaboration and six strategies to support parent involvement and collaboration. Implications for practice and research are discussed.

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Services and Supports, Partnership, and Family Quality of Life

Cited by 31 publications

References 44 publications

State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

Family Quality of Life and Partnership for Families of Students With Deaf-Blindness

Barriers and Supports to Parent Involvement and Collaboration During Transition to Adulthood

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