Sexual health knowledge and needs among young adults with congenital heart disease

Kwon, Su Jin; Im, Yu-Mi

doi:10.1371/journal.pone.0251155

Cited by 7 publications

(5 citation statements)

References 18 publications

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“…In Korea, ACHD patients scored lower on the Knowledge in Safe Sex Practice scale, especially those with complex cyanotic conditions. 13 Burstrom et al. identified that only 70% of adolescents with CHD could correctly identify whether sexual activity (SA) could worsen their heart condition.…”

Section: Sexual Behavior In People Living With Achdmentioning

confidence: 99%

Sexual Health and Well-Being in Adults With Congenital Heart Disease

Swan,

Windram,

Burchill

et al. 2023

JACC: Advances

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Section: Sexual Behavior In People Living With Achdmentioning

confidence: 99%

Sexual Health and Well-Being in Adults With Congenital Heart Disease

Swan,

Windram,

Burchill

et al. 2023

JACC: Advances

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“…In this context, disease-related knowledge refers to understanding medical aspects related to CHD, including its complications, medical interventions, and disease management strategies. 42,43 Youth with CHD often have limited knowledge about topics such as physical activity, diet, and sexual health related to disease management, [44][45][46] and they frequently struggle to accurately locate their specific cardiac abnormalities and comprehend the complexities of cardiac defects and complications. 44,46 During the transition program, it is recommended to employ strategies such as creating portable electronic files like the MyHealth passport to provide information about heart conditions, and using diagrams to educate patients about anatomical defects.…”

Section: Effects Of Transition Interventionsmentioning

confidence: 99%

Effects of transition programs to adulthood for adolescents and young adults with congenital heart disease: a systematic review with meta-analysis

Lee,

Koo,

Lee

2023

Preprint

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BACKGROUNDThe increased survival rate among individuals with congenital heart disease (CHD) has sparked interest in their transition to adult healthcare. Although there is a general agreement on the importance of transition interventions, the empirical evidence supporting them is insufficient. Therefore, this study aimed to conduct a systematic review and meta-analysis of transition interventions for adult healthcare in adolescents and young adults.METHODS AND RESULTSA literature search was conducted for studies comparing the quantitative effects of transition interventions with control groups, published up to March 15, 2023, in major databases (CENTRAL, Embase, PubMed, Web of Science, CINAHL, KISS, and KMbase), major clinical trial registers, academic journal sites related to the topic, and grey literature databases. Ten studies involving a total of 1,297 participants were identified. Transition interventions proved effective in enhancing disease-related knowledge (Hedge’s g=0.89, 95% CI=0.29-1.48) and self-management (Hedge’s g=0.67, 95% CI=0.38-0.95), as well as reducing loss to follow-up (OR=0.41, 95% CI=0.22-0.77). The certainty of evidence for the estimated values of each major outcome was low or very low.CONCLUSIONSThis study supports the implementation of transition interventions by demonstrating that they can improve patients’ disease knowledge and self-management, while also promoting treatment continuity. However, since the available data on transition interventions for adolescents and young adults with CHD remain limited, the widespread adoption of structured transition interventions in the future may alter the conclusions of this study.REGISTRATIONURL:https://www.crd.york.ac.uk/PROSPERO. Unique identifier: CRD42023399026.CLINICAL PERSPECTIVEWhat Is New?This systematic review of transition programs for individuals of transitional age with congenital heart disease identified 10 relevant studies.Transition programs for adolescents and young adults with congenital heart disease were primarily designed to provide individual education, supplement roles related to anatomical and hemodynamic considerations, manage medications and medical appointments and facilitate communication with healthcare providers.The transition programs demonstrated efficacy in enhancing disease-related knowledge and self-management, as well as in reducing instances of loss to follow-up. However, they did not significantly improve disease-related quality of life.What Are the Clinical Implications?Given the ethical and practical considerations that arise from country-specific conditions and environments, research on congenital heart disease transition programs should utilize a feasible study design that incorporates a control group.Transition programs should address lifestyle factors that can enhance heart function and alleviate clinical symptoms. After promoting long-term commitment to these programs, it is necessary to assess the effects on disease-related quality of life.An execution of a transition program that takes into account the developmental characteristics of the target age group, as well as a transition program involving parents, is necessary. Subsequently, an analysis of the effects of these programs is also required.As a result of the transition program, it is necessary to measure and analyze not only process indicators but also outcome indicators that directly reflect an individual’s health (e.g. emergency room visits, hospital admissions, and the status of disease or complications).

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“…It may be important to initiate the education before adolescence. 35 Similarly, knowledge of contraception may be inadequate in patients with CHD. Each contraceptive method, including oral contraceptives, condoms, and intrauterine devices, has its own risks and benefits.…”

Section: Preconception Counseling and Contraception As Transitional Carementioning

confidence: 99%

Transition in cardiology 2: Maternal and fetal congenital heart disease

Nagata¹,

Yamamura²,

Matsuoka³

et al. 2022

Pediatrics International

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The number of women with congenital heart disease (CHD) reaching reproductive age has been increasing. Many women with CHDs are desirous of pregnancy, but they face issues regarding preconception, antepartum, and postpartum management. On the other hand, the fetal diagnosis of CHD has improved with advances in the technique and equipment for fetal echocardiography. Recently, experiences with fetal intervention have been reported in patients with severe CHD, such as critical aortic stenosis. Nevertheless, some types of CHD are challenge to diagnose prenatally, resulting in adverse outcomes. Medical care is part of the transitional care for women and fetuses with CHD during the perinatal period. Pre-conceptional and prenatal counseling play an important role in transitional care. Sex and reproductive education need to be performed as early as possible. We herein review the current status, important issues to be resolved, and the future of maternal and fetal CHD to relevant caregivers.

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Sexual health knowledge and needs among young adults with congenital heart disease

Cited by 7 publications

References 18 publications

Sexual Health and Well-Being in Adults With Congenital Heart Disease

Sexual Health and Well-Being in Adults With Congenital Heart Disease

Effects of transition programs to adulthood for adolescents and young adults with congenital heart disease: a systematic review with meta-analysis

Transition in cardiology 2: Maternal and fetal congenital heart disease

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