sexual issues and people with a learning disability

Parkes, Neville

doi:10.7748/ldp2006.04.9.3.32.c1660

Cited by 8 publications

(23 citation statements)

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Section: Resultsmentioning

confidence: 99%

“…Attitudes of staff were mainly discussed as being either liberal or conservative, with most results being interpreted as (moderately) liberal. For example, liberal attitudes referred to the agreement that sexuality is an important aspect of a person's life and that people with ID have sexual desires similar to those of people without ID (Parkes 2006, Christian et al 2002. Nevertheless, care providers seemed to be more positive toward the sexuality of people from the general population than toward the sexuality of people with ID (Gilmore andChambers 2010, Meaney-Tavares andGavidia-Payne 2012).…”

Section: Structural Stigmamentioning

confidence: 99%

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Stigma research in the field of intellectual disabilities: a scoping review on the perspective of care providers

Pelleboer-Gunnink

Oorsouw

Weeghel

et al. 2019

International Journal of Developmental Disabilities

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Objectives: Care providers are key agents in the lives of individuals with an intellectual disability (ID). The quality of their support can be affected by manifestations of stigma. This scoping review was conducted to explore studies that provide indications of care providers' stigmatization of people with ID. Methods: A structured search was made in four databases to identify relevant studies in English-language peer-reviewed journals. Records were systematically and independently screened by the researchers. Results: The 40 articles included in this review were mainly conducted in Western countries and used Likerttype self-report measures of explicit attitudes. Stigmatization seemed more distinct concerning people with high support needs. The few studies on public stigma preliminary suggest that staff may also stigmatize people with ID based on other social identities. Regarding the support of structural stigma, staff reported skepticism regarding community inclusion for people with high support needs, and tended to be ambivalent about the protection-or-empowerment balance in the support of people with ID. Possible indications of stigmatization regarding sexuality were found on specific issues, such as self-determination and privacy. Agreement of staff with certain rights did not necessarily lead to staff acting in accordance with such rights. Conclusion: Indications of stigmatization of people with ID by care providers were found. Stigmatizing attitudes might affect the quality of care providers' support. Potential leads for future interventions concern creating awareness, sharing power, addressing diagnostic overshadowing, and providing explicit policy translations. Directions for future research concern strengthening the methodology of studies and enriching the studied topics.

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Section: Resultsmentioning

confidence: 99%

Section: Structural Stigmamentioning

confidence: 99%

Stigma research in the field of intellectual disabilities: a scoping review on the perspective of care providers

Pelleboer-Gunnink

Oorsouw

Weeghel

et al. 2019

International Journal of Developmental Disabilities

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“…Assigned scores and global ratings are illustrated in Table 1. Five studies received "high" global quality ratings [27,31,32,48,49], nine received "moderate" global quality ratings [29,[50][51][52][53][54][55][56][57] and two received "low" global quality ratings [30,58]. Butler and colleagues [41] recommend that studies scoring less than six be excluded from reviews.…”

Section: Quality Assessmentmentioning

confidence: 99%

“…Staff in nine studies described the sexuality and relationships of individuals with ID as a human right that should be respected and promoted within services and organizations [27, 29-32, 48-51, 54, 57]. In some cases, there was an acknowledgement that these rights were violated or disrespected, and often this triggered feelings of frustration and anger for staff [49,51,54,57]: "You know what I mean, I'd hate for anybody to miss out because I think it's such a wonderful thing. I just feel so frustrated sometimes when I think this is what they want and people are stopping them" [51, p. 35].…”

Section: Subtheme 1: a Right And A Universal Needmentioning

confidence: 99%

“…In some studies, staff expressed ambivalent or negative views towards the issue of parenthood for individuals with ID [32,54,57]: ''I don't think it's fair to have somebody who is disabled themselves and can't take care of themselves… I don't mind sex but the pregnancy is not fair to the child…'' [57, p. 357]. Similarly, other studies suggested that involvement in same-sex relationships was not viewed as a conscious choice made by in individuals with ID or a legitimate expression of sexuality [51,52] and was met with higher levels of anxiety compared to opposite-sex relationships [56]. Notably, some studies highlighted that, although their participants had generally expressed supportive views about the sexuality and relationships of individuals with ID, these were not necessarily representative of staff attitudes in their organizations overall [51][52][53][54]: "Well, a lot of the group homes there's no real barriers there except for staff attitudes, but they're more of an attitudinal barrier that they actually stop the training from happening" [53, p. 143].…”

Section: Subtheme 2: a Problem And A Source Of Riskmentioning

confidence: 99%

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Supporting Adults with Intellectual Disabilities with Relationships and Sex: A Systematic Review and Thematic Synthesis of Qualitative Research with Staff

2020

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Staff working with individuals with Intellectual Disabilities (ID) play an important role in enabling them to fulfill their sexual and romantic needs. Given the lack of recent reviews providing a synthesis of qualitative research in this population, the present review explored how staff working with individuals with ID in a variety of capacities (e.g. support workers, service managers, nurses, educators, psychologists, social workers) perceived their role in relation to supporting sexuality and relationships. A systematic search of EMBASE, PsychINFO, MEDLINE, CINAHL, ASSIA and SCOPUS was carried out and identified articles were rated against inclusion and exclusion criteria, as well as quality criteria. Findings were analyzed using thematic synthesis. The application of criteria resulted in the inclusion of 15 articles. Four themes were identified: (a) “Attitudes towards sexuality and relationships: A right and a challenge”, (b) “Responding to sexuality and relationships: A conflicted discourse”, (c) “Uncertainty and lack of systemic support”, and (d) “Influences on decision-making”. Findings suggest that staff hold ambivalent attitudes and often respond inconsistently to issues relating to service users’ sexuality. Role uncertainty, fear of accountability, lack of training and policy, as well as factors related to employing organizations and family caregivers were identified as barriers. The findings highlight the importance of providing training and supervision for staff in order to address ambivalent attitudes and anxieties, further developing national and local policy in relation to sexuality and relationships, and supporting family caregivers to meaningfully work alongside staff on issues relating to service users’ sexuality.

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Factors That Impact Support Workers’ Perceptions of the Sexuality of Adults with Developmental Disabilities: A Quantitative Analysis

Saxe

2013

Sex Disabil

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sexual issues and people with a learning disability

Cited by 8 publications

References 0 publications

Stigma research in the field of intellectual disabilities: a scoping review on the perspective of care providers

Stigma research in the field of intellectual disabilities: a scoping review on the perspective of care providers

Supporting Adults with Intellectual Disabilities with Relationships and Sex: A Systematic Review and Thematic Synthesis of Qualitative Research with Staff

Factors That Impact Support Workers’ Perceptions of the Sexuality of Adults with Developmental Disabilities: A Quantitative Analysis

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