Sharing the Same Fate

Ketokivi, Kaisa

doi:10.1080/14616690902764815

Cited by 16 publications

(12 citation statements)

References 7 publications

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“…Peer support can offer a unique type of relationship that provides generalization of experience and social validation, and promotes feelings of empowerment [7]. In general, peer support is associated with decreased loneliness and feelings of difference, as well as enhanced social competence, social acceptance, and increased acceptance of chronic conditions [8].…”

Section: Introductionmentioning

confidence: 99%

Peer support for stroke survivors: a case study

Kessler

Egan

Kubina

2014

BMC Health Serv Res

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BackgroundInnovative and sustainable programs are required to support the well-being of stroke survivors. Peer support is a potentially low cost way to enhance well-being of recent stroke survivors and the well-being and community reintegration of their peer supporters. This article describes the perceptions of stroke survivors, care partners, peer supporters, and professionals of an individual peer support program.MethodsAn instrumental case study design was used to examine a volunteer peer support program that provides acute care visits and telephone follow-up post-discharge. In particular, a) type of support provided, b) benefits for the stroke survivor and care partner, c) potential harms to the stroke survivor, d) impact of providing support on the peer supporter, and e) required processes were considered. Semi-structured interviews were carried out with 16 new stroke survivors and 8 care partners immediately following hospital discharge and then 6 months later, and with 7 peer supporters, 3 program co-ordinators and 4 health professionals to gather feedback from multiple stakeholders.ResultsEmotional, affirmational and informational support were perceived as being offered by the peer supporters. Peer visits were perceived as providing encouragement, motivation, validation, and decreased feelings of being alone. However, the visits were not perceived as beneficial to all stroke survivors. The impact on the peer supporters included increased social connections, personal growth, enjoyment, and feelings of making a difference in the lives of others. Involvement of the healthcare team, peer supporter training and a skilled coordinator were crucial to the success this program.ConclusionsPeer support can potentially enhance service to stroke survivors and promote community reintegration for peer volunteers. Further research is needed to determine the preferred format and timing of peer support, and the characteristics of stroke survivors most likely to benefit.

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Section: Introductionmentioning

confidence: 99%

Peer support for stroke survivors: a case study

Kessler

Egan

Kubina

2014

BMC Health Serv Res

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“…Such a processual focus on a range of relationships is difficult to capture by focusing solely on belonging. In line with Ketokivi's (2009) scholarship on peer support and suffering selves, we consider the affective pull of biosocial similarity in moments of suffering and the kinds of social bonds that bind fellow sufferers, as well as how these are negotiated according to dis/ similar diagnosis. Unlike social bonds with family or friends, the bond between fellow sufferers Ketokivi (2009) points out, is 'a voluntary and openly individualistic bond which one can enter into and exit from at any time, based on the needs of the self' (p. 90).…”

Section: Conceptualising Biosocial Belonging (And Exclusion) Through ...mentioning

confidence: 99%

“…In line with Ketokivi's (2009) scholarship on peer support and suffering selves, we consider the affective pull of biosocial similarity in moments of suffering and the kinds of social bonds that bind fellow sufferers, as well as how these are negotiated according to dis/ similar diagnosis. Unlike social bonds with family or friends, the bond between fellow sufferers Ketokivi (2009) points out, is 'a voluntary and openly individualistic bond which one can enter into and exit from at any time, based on the needs of the self' (p. 90). Building on this work, here, we examine the social bonds of women with metastatic breast cancer and others within their social worlds, paying attention to how experiences of (in)visibility, (in)authenticity and (in)validation variously constitute and/or erode social bonds.…”

Section: Conceptualising Biosocial Belonging (And Exclusion) Through ...mentioning

confidence: 99%

The incurable self: Negotiating social bonds and dis/connection with metastatic breast cancer

Lewis,

Newton,

Kenny

et al. 2023

Sociology Health & Illness

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As the culture of silence that once surrounded cancer has gradually given way to greater public awareness, normative visions of what cancer survivorship should entail have proliferated. These visions emphasise positivity and perseverance in pursuit of cure. While these visions provide comfort to many, for people with metastatic cancer, the emphasis on cure can undermine their sense of belonging to the broader collective of people living with cancer. Drawing on semi‐structured interviews with 38 Australian women living with metastatic breast cancer, we explore how incurable cancer inflects understandings of self and transforms interpersonal relationships. Extending ideas around biosociality and belonging, we explore the tenuousness of social bonds, revealing how (in)visibility, (in)authenticity and (in)validation circulate within the daily lives of women with metastatic breast cancer. We conceptualise accounts according to four social bonds: (1) threatened bonds where a relationship is strained by misunderstanding, (2) severed bonds where a relationship is ruptured due to misunderstanding, (3) attuned bonds whereby a relationship is based on shared identification and (4) flexible social bonds when a relationship is based on mutual understanding. More broadly, we illustrate the persistence of normative visions of cancer survivorship and their enduring effects on those whom such visions exclude.

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“…Before the COVID‐19 pandemic, these groups provided members with a context for social interaction in a physical space through a range of activities built around a programme of peer support (Dorning et al, 2016 ). Group‐based peer support, founded on shared health experiences, is associated with reductions in feelings of isolation and can promote feelings of empowerment in people living with a range of health conditions, including stroke survivors (Ketokivi, 2009 ; Tamplin et al, 2013 ). An earlier evaluation of these SA peer support groups before the pandemic showed that group members feel positive about being part of a group and report that their confidence, social networks, health and well‐being benefitted from their participation (Dorning et al, 2016 ).…”

Section: The Supportive Effects Of Group Membershipmentioning

confidence: 99%

Shared social identity and perceived social support among stroke groups during the COVID‐19 pandemic: Relationship with psychosocial health

Lamont

Calitri

Mounce

et al. 2022

Applied Psych Health & Well

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Community‐based peer support groups for stroke survivors are common in the United Kingdom and aim to support rehabilitation. This study of 260 stroke survivors across 118 groups nationally used an online survey format, completed on average 3 months into the pandemic. Analysis of both quantitative and open‐ended responses provided insights into how stroke group members maintained contact during the COVID‐19 pandemic and how the group processes of shared social identity and perceived social support related to psychosocial outcomes (self‐esteem, well‐being and loneliness). Group members adapted to the pandemic early through telephone calls (61.6% of participants) and internet‐based contact (>70% of participants), although also showed a desire for greater contact with their groups. A stronger sense of shared social identity and perceptions of social support from the stroke groups were weakly associated with reductions in loneliness among members, and greater perceived social support was associated with higher self‐esteem. However, having poor health and living alone were more strongly associated with more negative psychosocial outcomes. The discussion considers how barriers to contact during pandemics can be managed, including access and use of online communication, limitations imposed by stroke‐related disability, and how the experience of feeling supported and social identification can be better nurtured within remote contexts.

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Sharing the Same Fate

Cited by 16 publications

References 7 publications

Peer support for stroke survivors: a case study

Peer support for stroke survivors: a case study

The incurable self: Negotiating social bonds and dis/connection with metastatic breast cancer

Shared social identity and perceived social support among stroke groups during the COVID‐19 pandemic: Relationship with psychosocial health

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