Sikh Perspectives towards Death and End-Of-Life Care

Ebrahim, Shanil; Bance, Sheena; Bowman, Kerry W.

doi:10.1177/082585971102700214

Cited by 12 publications

(26 citation statements)

References 22 publications

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“…Language barriers were also reported in two studies . Universal to almost all studies was the role of family members in decision making, and how power differentials vary with culture is also well described in the literature…”

Section: Discussionmentioning

confidence: 89%

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Understanding advance care planning within the South Asian community

Biondo

Kalia

Khan

et al. 2017

Health Expectations

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BackgroundAdvance care planning (ACP) is a process of reflection on and communication of a person's future health‐care preferences. Evidence suggests visible minorities engage less in ACP. The South Asian ethnic group is the largest visible minority group in Canada, and information is needed to understand how ACP is perceived and how best to approach ACP within this diverse community.ObjectiveTo explore perspectives of South Asian community members towards ACP.DesignPeer‐to‐peer inquiry. South Asian community members who graduated from the Patient and Community Engagement Research programme (PaCER) at the University of Calgary utilized the PaCER method (SET, COLLECT and REFLECT) to conduct a focus group, family interviews and a community forum.Setting and participantsFifty‐seven community‐dwelling men and women (22‐86 years) who self‐identified with the South Asian community in Calgary, Alberta, Canada.ResultsThe concept of ACP was mostly foreign to this community and was often associated with other end‐of‐life issues such as organ donation and estate planning. Cultural aspects (e.g. trust in shared family decision making and taboos related to discussing death), religious beliefs (e.g. fatalism) and immigration challenges (e.g. essential priorities) emerged as barriers to participation in ACP. However, participants were eager to learn about ACP and recommended several engagement strategies (e.g. disseminate information through religious institutions and community centres, include families in ACP discussions, encourage family physicians to initiate discussions and translate materials).ConclusionsUse of a patient engagement research model proved highly successful in understanding South Asian community members' participation in ACP.

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Section: Discussionmentioning

confidence: 89%

“…To our knowledge, this is the first study to explore South Asians' perspectives, in Canada, towards ACP. A limited number of studies have explored attitudes towards end‐of‐life care, which occasionally encompassed aspects of ACP, and a few studies have explored other sociocultural perspectives on ACP …”

Section: Discussionmentioning

confidence: 99%

Understanding advance care planning within the South Asian community

Biondo

Kalia

Khan

et al. 2017

Health Expectations

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“…Older South Asian migrants trusted in the culture of shared decision making by involving other relatives (Chattoo and Ahmad, 2008; Cowan, 2014; Ebrahim et al, 2011; Venkatasalu et al, 2013; Weerasinghe and Maddalena, 2016). Perhaps the eldest son held the role of decision maker in the family (Biondo et al, 2017; Ebrahim et al, 2011; Radhakrishnan et al, 2017; Sharma et al, 2012). Therefore, older migrants never felt the need to discuss palliative care issues in advance (Venkatasalu et al, 2013).…”

Section: Resultsmentioning

confidence: 99%

“…Twenty studies identified the issue of limited knowledge and partial awareness of PC as a term and of existing services available to the South Asian ethnic minority families (Biondo et al, 2017; Bowling et al, 2010; Chattoo and Ahmad, 2008; Cowan, 2014; Doorenbos, 2003; Ebrahim et al, 2011; Khosla et al, 2016; Owens and Randhawa, 2004; Radhakrishnan et al, 2017; Randhawa and Owens, 2004; Randhawa et al, 2003; Shanmugasundaram, 2014; Shanmugasundaram and O'Connor, 2009; Somerville, 2001; Venkatasalu et al, 2014; Weerasinghe and Maddalena, 2016; Wilkinson et al, 2016; Wilkinson et al, 2014; Wilkinson, Waqar, et al, 2017; Worth et al, 2009), which in turn affected access to and use of PC services.…”

Section: Resultsmentioning

confidence: 99%

Palliative care for older South Asian migrants: A systematic review

et al. 2019

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AbstractObjectiveSouth Asian migrants have a higher burden of life-threatening diseases and chronic diseases compared to other ethnic groups. Yet, knowledge gaps remain around their palliative care needs in the host countries. The aim of the review was to present results from a systematic literature review of available international evidence on experiences with and perspectives on palliative care among older South Asian migrants, relatives, and healthcare providers.MethodsA systematic review in accordance with PRISMA guidelines was conducted in February 2018, searching PubMed, CINAHL, PsychINFO, and EMBASE databases. PROSPERO #CRD42018093464. Studies included empirical research, providing international evidence on experiences and perspectives on palliative care of South Asian migrants and were published between 2000 and 2018. Thematic synthesis was used to analyze data.ResultsA total of 30 articles were included: qualitative (24), quantitative (5), and mixed methods (1). Three main themes were discovered: 1) palliative care practice within the family, 2) trust as a precondition of palliative care, and 3) the importance of knowledge and cultural competency. All the themes, to a greater or lesser extent, are related to access to and use of palliative care services by South Asian migrant families.Significance of resultsInvolvement of family members in palliative care decision making could improve the satisfaction of South Asian migrant families toward the service. For example, Advanced Care Planning involving family members could be a possible way to engage family members in palliative care decision making. Supportive interventions, e.g. providing knowledge, aimed at patients and their family members might improve knowledge and increase awareness among South Asian migrant families of palliative care. Knowledge gained from this review could be implemented with other ethnic minority groups.

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“…medications, and the influence of common South Asian religions including Islam, Buddhism, Sikhism or Hinduism. [24][25][26][27][28][29][30] In 2011, Ontario had a population of 12 851 821, of whom the 2 largest ethnic minority groups were South Asian (833 085, 6.5%) and Chinese (531 635, 4.1%). 31 Previous research identified that people in Ontario who were born in South Asia or East Asia experi enced end-of-life care that was different from that experienced by long-standing residents, but this analysis did not investigate patient ethnicity.…”

mentioning

confidence: 99%

Association between Chinese or South Asian ethnicity and end-of-life care in Ontario, Canada

Yarnell

Bonares

et al. 2020

CMAJ

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C ulturally appropriate, patient-focused end-of-life care is an essential component of health care. Despite a preference to die at home, most Canadians die in hospitals and many receive end-of-life care in intensive care units (ICUs). 1-3 Multiple factors contribute to this discrepancy, including uncertainty about the imminence of death, challenges in communication between health care teams and patients and families, poor health literacy and lack of access to palliative care resources. 3-7 These factors may be more pronounced among people from minority ethnic groups. Differences in preferences for intervention at the end of life among ethnic groups may also influence care; the research showing a preference for dying at home included mostly white Canadians. 1 People of Chinese and South Asian ethnicity are the most rapidly growing ethnic groups in Canada, yet little is known about their end-of-life care. 8,9 Comparative studies from the United States have focused on black and Hispanic Americans 8-13 and suggest that minority ethnicity is associated with lower family-rated quality of end-of-life care, 14 increased use of life-support technologies, 13 and decreased use of advanced directives or hospice. 6,12,15-17 Qualitative research describing end-of-life care for people of Chinese or South Asian ethnicities in international settings shows some common themes, including reluctance to share terminal diagnoses, emphasis on collective as opposed to individual decision-making, and attenuation of differences with acculturation. 6,18,19 For people of Chinese ethnicity, research highlights the influence of Confucian philosophy and the role of children in decisions regarding elderly parents. 20-23 For people of South Asian ethnicity, research emphasizes notions of karma, ambivalence toward the cultural appropriateness of hospices or sedating analgesic

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Sikh Perspectives towards Death and End-Of-Life Care

Cited by 12 publications

References 22 publications

Understanding advance care planning within the South Asian community

Understanding advance care planning within the South Asian community

Palliative care for older South Asian migrants: A systematic review

Association between Chinese or South Asian ethnicity and end-of-life care in Ontario, Canada

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