Sleep positioning systems for children with cerebral palsy

Blake, Sharon; Logan, Stuart; Humphreys, Ginny; Matthews, Justin; Rogers, Morwenna; Thompson-Coon, Jo; Wyatt, Katrina; Morris, Christopher

doi:10.1002/14651858.cd009257.pub2

Cited by 20 publications

(30 citation statements)

References 31 publications

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“…A search of the reference lists of these articles and key articles on hip displacement identified one additional article (Greene et al). One additional paper (Macias‐Merlo et al) and a systematic review (Blake et al) were e‐published ahead of print (October 2015 and November 2015) and were identified through scholarly alerts; these were retrieved and included in the review. After further review, the systematic reviews that met the inclusion criteria (Novak et al, Blake et al) were eliminated because the relevant studies within these reviews were retrieved during our initial search or did not provide any additional information.…”

Section: Resultsmentioning

confidence: 99%

Prevention of hip displacement in children with cerebral palsy: a systematic review

Miller

Juricic

Hesketh

et al. 2017

Develop Med Child Neuro

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Section: Resultsmentioning

confidence: 99%

Prevention of hip displacement in children with cerebral palsy: a systematic review

Miller

Juricic

Hesketh

et al. 2017

Develop Med Child Neuro

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“…Securing funding was noted to be very time‐consuming and lack of robust clinical efficacy data can make the justification for funding problematic (NHS Purchasing & Supply Agency, ). Indeed, in the light of the lack of well‐designed RCTs, the authors of a Cochrane review challenge the assumption that sleep positioning systems are a proven, effective treatment to reduce or prevent hip migration (Blake ). They also suggest that adverse effects appear underreported, perhaps because, in these instances, the equipment is usually abandoned.…”

Section: Discussionmentioning

confidence: 99%

Postural care for people with intellectual disabilities and severely impaired motor function: A scoping review

Robertson

Baines

Emerson

et al. 2016

Research Intellect Disabil

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Background: Poor postural care can have severe and life-threatening complications.This scoping review aims to map and summarize existing evidence regarding postural care for people with intellectual disabilities and severely impaired motor function.Method: Studies were identified via electronic database searches (MEDLINE, CINAHL, PsycINFO and Web of Science) covering January 1990 to March 2016, and email requests to researcher networks. Results were collated via descriptive numerical summary of studies and thematic analysis. Results:Twenty-three studies were identified and summarized narratively in relation to three themes: characteristics and prevalence, interventions and service related issues. The evidence base is small with significant gaps. Lack of evidence for nighttime positioning equipment and 24-hr postural care needs to be addressed urgently. Conclusion:Future research should be clearly directed towards ascertaining how best postural care interventions can be employed to help improve the health and quality of life of people with intellectual disabilities. K E Y W O R D Sintellectual disabilities, postural care, scoping review |Published for the British Institute of Learning Disabilities ROBERTSON ET al. posture also underpin the ability to function and access the environment (Crawford & Stinson, 2015).Over the past 15 years, there has been increased awareness of the need to provide postural care over the entire 24-hr period. This usually involves adaptive seating and/or moulded wheelchairs; night-time positioning equipment (NTPE); moving and handling techniques; and advice and training across all settings that the person accesses (Crawford & Stinson, 2015). NTPE can be used during the substantial proportion of the day when the person is in bed and has been reported to be beneficial even for those with established body shape distortion (Goldsmith, 2000).It has been proposed that most people who lack the ability to change their position would benefit from 24-hr body positioning (Crawford & Stinson, 2015) and that 24-hr postural care strategies should be considered in physical therapy programmes to prevent or delay the development of contractures or skeletal deformities in children and young people at risk of developing these (National Institute for Health & Care Excellence, 2012). However, disabled children generally are not being provided with the specialist equipment they require (such as seating and postural support systems), with provision of equipment being patchy at best (Centre for Economics and Business Research, 2014). It is widely accepted that the current systems that provide equipment and related services to children fail (CSED Consultant's Report, 2010).The importance of the issue of postural care in relation to people with intellectual disabilities has been highlighted in a number of reports noting gaps in services and the need to provide postural care interventions to prevent postural deformities from developing (Heslop et al., 2013;Mansell, 2010;Michael, 2008, RCGP, 2012. No systematic...

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“…Overall, there was high inter-and intrarater reliability on the International Cooperative Ataxia Rating Scale (ICARS), Scale for Assessment and Rating of Ataxia (SARA), and Brief Ataxia Rating Scale (BARS) -results similar to those previously obtained for adult-onset ataxic disorders. 4 Of note, oculomotor items of ICARS and BARS presented the lowest inter-and intrarater agreements. These results indicated SARA, ICARS, and BARS as reliable instruments in EOA, and that SARA might be the preferred one because it lacks oculomotor items.…”

mentioning

confidence: 95%

“…Early research suggests that some commonly practiced interventions in this population (including sleep positioning systems and osteopathy) are unlikely to improve sleep . Other interventions are more worthy of future evaluation and include whether improved sleep is possible through reductions of muscle tone, treatment of obstructive sleep apnoea, and use of adapted behavioural approaches.…”

mentioning

confidence: 99%

Sleep disorders in cerebral palsy

Gringras

2016

Develop Med Child Neuro

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Sleep positioning systems for children with cerebral palsy

Cited by 20 publications

References 31 publications

Prevention of hip displacement in children with cerebral palsy: a systematic review

Prevention of hip displacement in children with cerebral palsy: a systematic review

Postural care for people with intellectual disabilities and severely impaired motor function: A scoping review

Sleep disorders in cerebral palsy

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