Social Characteristics and Quality of Life of Portuguese Multiple Sclerosis Patients

Costa, David Castro; Sá, María José; Calheiros, José Manuel

doi:10.1007/s40120-013-0011-4

Cited by 10 publications

(8 citation statements)

References 31 publications

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“…These results are similar to Costa, et al, (2013), who studied social characteristics and quality of life of Portuguese multiple sclerosis patients, and found a statistically significant relationship between marital status; and physical function and general health.…”

Section: Discussionsupporting

confidence: 89%

“…These results are coincided to Costa, et al, (2013), who stated that, the employment status of MS patients presents a statistically significant relationship with all HRQoL dimensions. Employed patients had better scores than those who were unemployed, retired and student/housewife/inactive, and these differences were statistically significant.…”

Section: Discussionsupporting

confidence: 82%

“…Also, similar to study carried out by Costa, et al, (2013), and who mentioned that patients who had higher levels of education achieved better scores than those with lower education levels.…”

Section: Discussionsupporting

confidence: 75%

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Psychosocial Nursing Intervention for Improving Quality Of Life of Patient with Multiple Sclerosis

Ibrahim

Loutfi

Mourad

2016

Egyptian Journal of Health Care

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Multiple sclerosis (MS) is the most common chronic, non-traumatic neurological disorder afflicting young people during their peak productive ages. It affects approximately 2.5 million people worldwide, and 1.4% of all Neurology cases in Egypt. Once the disease has developed, it continues lifelong, and there is still no cure. The course of the disease can be relapsing-remitting which diminish quality of life (QOL) by interfering with the ability to work, pursue leisure activities, and carry on usual life roles. This study was aiming to assess the effect of psychosocial nursing intervention on quality of life of patient with multiple sclerosis. It was conducted on 50 cases with MS in El-Demerdash day care unit. Data were collected using: 1) Interviewing questionnaire containing the following parts A) Socio-demographic sheet. B) History of illness, C) Patient's knowledge regarding multiple sclerosis. 2) Multiple Sclerosis Quality Of Life (MSQOL-54) instrument. The result of this study showed that, there are highly statistically significant differences were found between pre-and post-intervention as regard knowledge about disease of patient with multiple sclerosis (P= .000). Additionally, there are highly statistically significant difference were found between pre-and post-intervention as regard physical health composite and mental health composite of patient with multiple sclerosis (P= .000) respectively. As well as, there is highly statistically significant difference was found between pre-and postintervention as regard total overall quality of life of patient with multiple sclerosis, (P= .002). Results concluded that the implementation of psychosocial nursing intervention had a positive effect on quality of life of patient with multiple sclerosis. Based on the results, it is recommended to incorporate non-drug therapy (psychosocial intervention) along with pharmacological therapies in MS management to improve quality of life of patients with MS.

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Section: Discussionsupporting

confidence: 89%

Section: Discussionsupporting

confidence: 82%

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Psychosocial Nursing Intervention for Improving Quality Of Life of Patient with Multiple Sclerosis

Ibrahim

Loutfi

Mourad

2016

Egyptian Journal of Health Care

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“…In particular, the proportion of patients with RRMS is considerably lower than what has been observed in studies based on hospital cohorts (82%-85.3%). [15][16][17] This is not surprising as patients on treatment with DMTs, hence the majority with early and predominantly relapsing-remitting MS, are followed in hospitals. The sample in our study was recruited from a wider population in different settings, including therefore also more advanced patients.…”

Section: Discussionmentioning

confidence: 99%

New insights into the burden and costs of multiple sclerosis in Europe: Results for Portugal

Sá

Kobelt²,

Berg³

et al. 2017

Mult Scler

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Background: In order to assess the value of management strategies in multiple sclerosis (MS), outcome data have to be combined with cost data. This, in turn, requires that cost data be regularly updated. Objective and methods: This study is part of a cross-sectional retrospective study in 16 countries collecting current data on resource consumption, work capacity and health-related quality of life (HRQoL). Descriptive analyses are presented by level of severity; costs are estimated in the societal perspective, in EUR 2015.Results: A total of 535 patients (mean age 48.5 years) participated; 92% were below retirement age and of these, 43% were employed. Employment was related to disease severity, and MS was felt to affect productivity at work by 72% of patients, most often through fatigue. Overall, 98% and 74% of patients felt that fatigue and cognition were a problem. Mean utility and costs were 0.756 and €16,500 at the Expanded Disability Status Scale (EDSS) 0-3, 0.572 and €28,700 at EDSS 4-6.5 and 0.206 and €34,400 at EDSS 7-9. The average cost of a relapse was estimated at €2930. Conclusion: This study illustrates the burden of MS on Portuguese patients and provides current data that are important for the development of health policies.

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“…Multiple Sclerosis (MS) is a chronic illness of the central nervous system which affects the physical [1], psychological [2] and social functions [3] of patients. These disturbances have a negative impact in the daily life activities and in the quality of life of patients who are in socially disadvantaged [4] because they often lose their jobs, economic and social status, friends and family [5][6][7].…”

Section: Introductionmentioning

confidence: 99%

Social Support Network and Quality of Life in Multiple Sclerosis Patients

David¹

2017

NNOAJ

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Aim: To analysis the relationship between social support network (SSN) and health related quality of life (HRQOL) in multiple sclerosis (MS) patients. Methods: The sample is composed by 150 MS consecutive patients attending our MS Clinic. To assess the sociodemographic data a specifically designed questionnaire was applied. The HRQOL dimensions were measured with Short-Form Health Survey Questionnaire-SF36 and SSN with the Medical Outcomes Study Social Support Survey. The Spearman's correlation was used to compare the magnitude of relationship between SSN and HRQOL. Results: The mean patient age was 41.7 years (± 10.4; range: 18-70 yr); the mean EDSS was 2.5 (±2.4; range: 0-9). Was found a statistically significant correlation between the structure of SSN and HRQOL. Conclusion: SSN composition, social group membership and participation in voluntary work have an important role in HRQOL of patients with MS.

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Social Characteristics and Quality of Life of Portuguese Multiple Sclerosis Patients

Cited by 10 publications

References 31 publications

Psychosocial Nursing Intervention for Improving Quality Of Life of Patient with Multiple Sclerosis

Psychosocial Nursing Intervention for Improving Quality Of Life of Patient with Multiple Sclerosis

New insights into the burden and costs of multiple sclerosis in Europe: Results for Portugal

Social Support Network and Quality of Life in Multiple Sclerosis Patients

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