Social circumstances and medical complications in children with intestinal failure

Abstract

Children receiving complex home care may be socially isolated and measures to support improved compliance such as increased community support, social care involvement and respite care may improve outcomes.

Life of patients 10 years after a successful pediatric intestinal transplantation in Europe

“…2 A report of difficulties in social integration for patients with intestinal failure was published in 2013: no difference was found between long term PN and ITx. 5 Our results on level of education are in line with those previously reported. 2 The need for ongoing psychological and psychiatric support, even long after ITx in childhood, is a new finding.…”

Noncompliance/Nonadherence With Home Nutrition Support: An Underrecognized Clinical Dilemma

“…The data regarding interventions for pediatric home nutrition support is scant; only a few studies have been published to date. Zamvar et al completed a small study involving pediatric HPN patients to determine how social issues affect adherence and complications—specifically, catheter‐related bloodstream infection 19 . The following social issues were described as parental disadvantages in the analysis: non‐English‐speaking parent, limited literacy, physical or mental health issues, housing issues, and single‐parent households.…”

What is the right approach to infection prevention and control for children living at home with invasive devices?

“…More than this, we must also appreciate the resources that families develop in order to meet these challenges, and what factors may hinder this capacity. (45) Evidence suggests that families can develop expertise in caring for an invasive device. This is likely to be highly skilled, contextually-specific expertise which is relevant to their unique position as parents and carers of their child.…”