Social construction of the experience of living with chronic kidney disease

Abstract

Objective:To understand the experience of people living with Chronic Kidney Disease who have been transplanted, from the meanings constructed based on the experienced phenomenon. Method:Hermeneutic-phenomenological study based on the five lifeworld existentials, according to Van Manen’s theoretical framework. Eleven transplanted patients participated in the study and data collection was carried out through semi-structured interviews, after approval of the study by the Ethics Committee of the University of Antioquia. Results:The theme of Living with Chronic Kidney Disease emerged, and the subthemes were grouped as lifeworld existentials of Temporality: something unexpected, being present and not seeing it, being young and sick. Relationality: support, feeling stuck and Terminal Chronic Renal Failure. Spatiality: changes in life, sadness and depression. Corporeality: body deterioration and changes in sex life. Materiality: effects on the economic status. Conclusions:The care provided to people must be oriented in order to recognize their individualities, understanding what the illness means for the individual and his family, how they live with it and what the changes are, leading them to modify their lives and start a long process, such as living with a chronic disease.

Adesão à medicação pelo paciente renal crônco em hemodiálise

“…Furthermore, there occurs a series of socioeconomic changes in the life of the patient and their family. 8 In relation to the main reasons found for the higher incidence of male population on RRT, these may be related to the lower attendance of men to health services than women, which contributes to a late diagnosis of CKD and other pathologies. 13 A literature review, whose objective was to discuss the various aspects of the relationship between sex and CKD, showed diverging data regarding sex, pointing out that the prevalence of the disease is higher in women, but, in men, it tends to be more severe and evolve faster, resulting in a higher mortality rate.…”

“…In relation to the presence of a caregiver, most patients reported counting on the help of a caregiver, whose figure is of great importance to the chronic renal patient, whether family or not, since they participate in patient care and contribute to the process of acceptance of the disease and treatment adherence. 8,17 Regarding the clinical causes for the development of CKD, SAH and DM constituted the main ones. Studies highlighted these two morbidities as the main causes for renal failure, and such diseases, when decompensated, eventually cause complications, which include the CKD.…”

“…[6][7] The promotion of self-care by the patient, the support of family and friends and professional guidance are fundamental to encouraging adherence. 8 Among these aspects, the medication adherence is a multidimensional phenomenon, which can be defined as the degree of acceptance of a treatment by the individual to follow it as prescribed and directed. 9 The complexity and long duration of the treatment may constitute a barrier to adherence and, when there is failure in adherence, a series of clinical complications can arise, which directly contributes to reducing the quality of life and increasing the mortality in this group.…”

Validation of Nursing Diagnoses for people with chronic kidney conditions on conservative treatment

“…Therefore, the nurse shall recognize, in the individuality of the person with chronic kidney conditions, the understanding about their illness and its personal and social impact, since this condition brings changes to life habits. Nurses also have to realize that preventive measures are required and shall be implemented to reverberate throughout life (24)(25) .…”

Estado de la investigación en enfermería de América Latina: una revisión de la literatura

“…El cuidado de enfermería durante el ciclo vital permanece en constante transición entre la asistencia hospitalaria y el enfoque comunitario; actúa en la atención al niño (8,9) y al adolescente (10)(11)(12), a la familia gestante (13)(14)(15), al adulto joven (16,17) y al adulto mayor (18); además, invita a la reexión, madurando en sus procesos de salud-enfermedad y sus diferentes dimensiones con especialidad, cienticidad y humanidad en la intervención de enfermedades crónicas y degenerativas (19), enfermedades catastrócas (20), formas de violencia (21,22) y relación con el medioambiente (23); por tanto, se requiere responder con efectividad para el logro de la calidad de vida y salud.…”