Social outcomes in young adult survivors of low incidence childhood cancers

Johannsdottir, Inga Maria; Hjermstad, Marianne Jensen; Moum, Torbjørn; Wesenberg, Finn; Hjorth, Lars; Lähteenmäki, Päivi; Jónmundsson, Guđmundur; Loge, Jon Håvard

doi:10.1007/s11764-009-0112-3

Cited by 22 publications

(29 citation statements)

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“…Dieluweit et al reported a higher proportion of adolescent cancer survivors who were employed compared to an age-matched sample from the general population [20]. Nevertheless, most of the published studies found the employment rate to be lower among childhood cancer survivors compared with the controls [6,13,[15][16][17][18]29]. However, some of these studies include survivors of childhood brain and central nervous system cancers, and the difference in employment rate with the controls disappears when those types of cancers are excluded [24,30].…”

Section: Discussionmentioning

confidence: 99%

“…Concerning occupational outcomes, most of the studies conducted have reported higher rates of unemployment among childhood cancer survivors than among their siblings or the population as a whole [4,6,[13][14][15][16][17][18]. Factors found to be associated with unemployment risk in the survivor population are both demographic (current age, female gender, interrupted schooling, lower education) [16,17,19,20] and cancerrelated (younger age at diagnosis, treatment with cranial irradiation, somatic late effects) [13,14,[16][17][18][19][20][21][22].…”

Section: Introductionmentioning

confidence: 99%

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Employment in French young adult survivors of childhood leukemia: an LEA study (for Leucemies de l’Enfant et de l’Adolescent—childhood and adolescent leukemia)

et al. 2016

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Employment in French young adult survivors of childhood leukemia: an LEA study (for Leucemies de l’Enfant et de l’Adolescent—childhood and adolescent leukemia)

et al. 2016

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“…In addition to various physical problems in childhood cancer survivors (CCSs) [3], social outcomes vis-à-vis marriage, education and employment are apparently affected by these late effects, either directly or indirectly. An increasing number of studies have focused on the social outcomes of CCSs [4][5][6][7][8][9][10][11][12].…”

Section: Introductionmentioning

confidence: 99%

“…On the other hand, the results of the Childhood Cancer Survivor Study (CCSS) suggest that CCSs generally have high school graduation rates similar to those in the general population, but they are slightly less likely to attend college; they are also more likely to be unemployed and not married as young adults [5]. Johannsdottir et al [6] also outline important differences in social outcomes (i.e., employment and parenthood) between CCS and controls early in adult life.…”

Section: Introductionmentioning

confidence: 99%

Social outcomes and quality of life of childhood cancer survivors in Japan: a cross-sectional study on marriage, education, employment and health-related QOL (SF-36)

et al. 2011

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Social outcomes and quality of life (QOL) of childhood cancer survivors (CCSs) remain unknown in Japan. We investigated these outcomes in young adult CCSs compared to those of their siblings in Japan, and analyzed the association between social outcome and SF-36 health survey subscale scores. Between 2007 and 2009, we performed a cross-sectional survey using self-rating questionnaires. We estimated social outcomes and health-related QOL by performing the SF-36 in each group: CCSs with or without stem cell transplantation (SCT)/radiotherapy (RT) and their siblings. Adjusted odds ratios for outcomes of interest were estimated using logistic regression analysis. Questionnaires from 185 CCSs and 72 CCS's siblings were analyzed. There were no differences in educational attainment or annual income. The SF-36 subscale scores of CCSs with SCT and RT were significantly lower than those of siblings in physical functioning (PF) (p < 0.001 and 0.003, respectively) and general health (GH) (both p = 0.001). Lower PF scores correlated with recurrence (p = 0.041) and late effects (p = 0.010), and poor GH scores with late effects (p = 0.006). The CCSs had made efforts to attain educational/vocational goals; however, a significant proportion of CCSs who had experienced late effects remain at increased risk of experiencing diminished QOL.

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“…Also, data have been included in a Nordic study of the psycho-social effects of having had cancer during childhood 9–11…”

Section: Resultsmentioning

confidence: 99%

Danish Childhood Cancer Registry

Schrøder¹,

Rechnitzer²,

Wehner³

et al. 2016

CLEP

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Aim of databaseThe overall aim is to monitor the quality of childhood cancer care in Denmark; to register late effects of treatment; to analyze complications of permanent central venous catheters (CVCs); to study blood stream infections in children with cancer; and to study acute toxicity of high-dose methotrexate infusions in children with leukemia.Study populationAll children below 15 years of age at diagnosis living in Denmark diagnosed after January 1, 1985 according to the International Classification of Diseases 10, including diagnoses DC00–DD48.Main variablesCancer type, extent of disease, treatment, participation in international studies, recurrence of malignant disease, survival, yearly follow-up status, causes of death, and development of secondary malignancies. Type of CVC, causes for removal of the CVC, type of blood stream infection, pathogens isolated, antimicrobial sensitivity, and outcome of antimicrobial chemotherapy.Descriptive dataSince 1985, 4,944 children below 15 years of age have been registered in the database. There has been no significant change in the incidence of childhood cancer in Denmark since 1985. The 5-year survival has increased significantly since 1985 and is now 86%. The median number of days from diagnosis to initiation of therapy is 7 days and in 80% of the children less than 14 days. Clinical data of 95% of the patients are reported to open international studies.ConclusionThe survival of Danish children with cancer since 2003 compares favorably with other international population-based studies. The annual reports support the collaboration within pediatric oncology in Denmark.

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Social outcomes in young adult survivors of low incidence childhood cancers

Cited by 22 publications

References 50 publications

Employment in French young adult survivors of childhood leukemia: an LEA study (for Leucemies de l’Enfant et de l’Adolescent—childhood and adolescent leukemia)

Employment in French young adult survivors of childhood leukemia: an LEA study (for Leucemies de l’Enfant et de l’Adolescent—childhood and adolescent leukemia)

Social outcomes and quality of life of childhood cancer survivors in Japan: a cross-sectional study on marriage, education, employment and health-related QOL (SF-36)

Danish Childhood Cancer Registry

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